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Parenting experiences of mother in children with developmental disabilities

발달장애 아동 어머니의 양육 경험

  • Received : 2018.05.15
  • Accepted : 2018.08.03
  • Published : 2018.08.31

Abstract

The purpose of this study is to understand and describe in depth the meaning of parenting experiences of mothers with children with developmental disabilities through phenomenological methods. Participants of this study were selected by convenience sampling 11 mothers who were taking care of children with developmental disabilities who were being treated at the Welfare Center for the Disabled in C city. Data were collected from February to April, 2018 by using in-depth interview and tape-recording. The interview data were analyzed by the phenomenological analysis method of Giorgi. As the result of analysis, the following seven constituents were emerged; Regreting to delay the uncertain diagnosis, Difficulty in accommodating children with disabilities, Unbearable gaze around, Family disagreements due to children with disabilities, Adopting and dedicated to child care for disabled childre, Tiring of raising children with disabilities, Accepting children with disabilities. In conclusion, the parenting attitude of mother with developmental disability is influenced not only by the children with developmental disabilities but also by the social contact opportunities of daily life and interpersonal relationship including mothers' emotional stability and social isolation, It is considered that medical and welfare should be systematically introduced for physical, psychological and emotional support for mothers.

본 연구의 목적은 현상학적인 방법을 통해 발달장애 아동이 있는 어머니의 양육 경험의 의미가 무엇인지 이해하여 본질을 추구하고 그 현상의 의미를 심층적으로 기술하고자 함이다. 본 연구의 대상자는 C 시에 있는 장애인복지관에서 치료를 받고 있는 발달장애 아동을 돌보고 있는 어머니 11명을 편의표본 추출하여 선정하였다. 연구방법은 심층 인터뷰와 녹음 테이프를 사용하여 2018년 2월에서 2018년 4월까지 자료를 수집하였다. 인터뷰 자료는 Giorgi의 현상학적 분석방법으로 분석하였다. 분석결과는 다음과 같은 일곱 가지 구성요소가 도출되었다: 장애진단이 늦어짐을 후회함, 장애자녀 수용이 어려움, 주변의 참기 어려운 시선, 장애자녀로 인한 가족 간의 불화, 장애자녀 양육을 수용하고 전념함, 장애자녀 양육에 지쳐감, 장애자녀를 받아들임. 결론으로 발달장애 아동 어머니의 양육태도는 발달장애 아동뿐만 아니라 어머니의 정서적 안정을 포함한 일상생활과 대인관계의 사회적 접촉기회, 사회적 고립 여부까지도 영향을 줄 수 있기 때문에 발달장애자녀를 돌보는 어머니들을 위한 신체적, 심리적, 정서적인 지원을 위한 의료나 복지가 체계적으로 도입되어야 할 것으로 사료된다.

Keywords

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