Effect of a telerehabilitation program in sarcoidosis
Main Article Content
Keywords
Sarcoidosis, Rehabilitation, Telerehabilitation, Virtual agents, Telemedicine
Abstract
Rehabilitation is recommended in sarcoidosis to improve exercise capacity. Focus on creating flexible rehabilitation options is warranted to keep patients with sarcoidosis employed. Telerehabilitation (TR) might be an alternative. We investigated the effectiveness of TR on exercise capacity in patients with sarcoidosis. Study included stable patients with sarcoidosis who were enrolled in either a control group where they received the usual standard of care or in the 3 months TR group composed of video and chat-consultations with a physiotherapist and workout sessions with a virtual autonomous physiotherapist agent. 6-minute-walk-test (6MWT), forced-vital-capacity (FVC), diffusion-capacity-of-the-lung-for- carbon-monoxide (DLCO), isometric-voluntary-contraction (MVC), 7 days pedometry, Saint-George-Respiratory-Questionnaire for interstitial lung disease (SGRQ-I), The King's-Brief Interstitial-Lung-Disease-Questionnaire (KBILD) and General-Anxiety-Disorder-7-Questionnaire (GAD7) were tested before and after 3 months of TR, and after 3 and 6 months follow-up. Patient-satisfaction was measured with a 5-point scale and adherence was calculated as percent of tasks and time spent training. Thirty patients aged 53.9±13.5 years, male 63.3%, FVC% 88.9±18.8, DLCO% 65.2±16.0, 6MWT 513.1±141.3 were included. Fifteen patients were randomized to TR and 15 patients to the control group. Differences in meters walked (6MWTD) between groups was at baseline (-28.9 m (p=0.58)), after 3 (+25.8 m (p=0.57)), 6 (+48.4 m (p=0.39)) and 9 months (+77.3 m (p=0.18)) follow-up in favor of TR. No differences were observed in other variables. Exercise adherence in the intervention group was 64% with an average of 28 minutes per exercise session during the first 3 months. Patient-satisfaction scored 3.8 ± 0.7. No adverse events were reported. TR did not result in any change. A statistically non-significant trend for improved 6MWTD was observed during follow-up. TR was safe, had high patient-satisfaction and acceptable adherence.
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José Cerdán-de-las-Heras, Aarhus University Hospital Department of Respiratory Diseases and Allergy, Research Section
JOSE MANUEL CERDÁN DE LAS HERAS, PhD student researching the feasibility of telerehabilitation with a new platform (Virtual Autonomous Physiotherapist Agent, (VAPA)) for patients with chronic lung conditions as Chronic Obstructive Pulmonary Disease, Idiopathic Pulmonary Fibrosis and Pulmonary Sarcoidosis under the supervision of Elisabeth Bendstrup. He is the main coordinator of the EUROSTARS funded project VAPA in a European Research and Development Consortium between SMEs and research organizations in Denmark, France and Finland.
José participates as speaker in international and national European Respiratory Society congress and preceptorships at Aarhus University Hospital (AUH). Participating three times at the Medical Innovation Day (both in challenge and new ideas, winning the challenge in 2019) and PhD day at AUH. Mentor for graduate and master students from CBS and Metropol based on their subproject attached to his research field and entrepreneur adviser at VIA University College for graduate students regarding innovation and entrepreneurship.
Fernanda Balbino, Department of Clinical Research, Nordsjaellands Hospital, Hilleroed, Denmark
Experienced statistician with Mechanical Engineering Ph.D. My motivation is developed data-driven solutions to support the decision-making process. I applied predictive models and programmed in R, SPSS, and Matlab. Used frequentist and Bayesian Inference with MCMC simulations.
With 5 years’ experience in the financial area in a multinational company. Working in business support service with several countries, I developed strong interpersonal communication skills, especially in a multicultural environment. I have learned to effectively understand and resolve customer issues.
With more than 3 years as a lectured, I enhanced my management and leadership skills.
My former co-workers considered me organized, patient, efficient, pro-active and willing to help any time they need.
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