Exploring the Social Networks of Women Bereaved by Stillbirth: A Descriptive Qualitative Study
Abstract
:1. Introduction
2. Method
2.1. Data Collection
2.2. Analysis
2.3. Rigor
3. Results
3.1. Findings Regarding Women’s Social Networks and the Factors Influencing It
3.1.1. The Perception of Shame
“After I put to bed [gave birth], I hid the loss from people because I was ashamed that people might call me a failure…”(SK1)
“Whenever I saw someone who knew I was pregnant, my heart would skip [nervous] and I always tried to scurry away as if I had done something wrong… I felt like I had some impediments that I needed to be ashamed of”.(SK5)
“Grieving as a mother whose child passed away is very tricky and challenging. On the one hand, you cannot move on too quickly because people expect a lengthy and genuine portrayal of soberness from you… your conduct should convince people that the loss truly and deeply pained you. On the other hand, you also cannot dwell on it for too long because people expect you to be grateful for your own life… So, grieving a stillborn child is like a performance; the timing of your re-entrance into the society, the way you carry yourself and your countenance must genuinely reflect your sadness but also your gratitude… Performing this role is hard”.(SK13)
“When it happened [stillbirth], it felt like I was alone and I felt like there was nothing good about me anymore. But with the support of my mother, my level of shame started to reduce, and I started to become more comfortable in the presence of others”.(SK13)
3.1.2. Expectation of Support
“owo epo ni araye n’banila, won ki n’banila t’eje [people want to taste part of the oil (palm oil) in your hands, but not the blood]”.(SK12)
“The person [child’s father] who was supposed to help and support me was nowhere to be found. Everything he was supposed to do as a spouse and the father of the child, he did not do”.(SK12)
“I would have loved my mother-in-law to be there for me, but she ended up disappointing me”.(SK17)
“I did not feel that those around me understood my grief. Even though people surrounded me, I felt alone… Everyone was saying the same thing and doing the same thing, but I had other needs that nobody cared about”.(SK14)
“My mum was very supportive… she moved closer to me and listened to my views about how I felt about the whole situation. During that time, I needed someone to talk to, not just people who would tell me it will be alright”.(SK9)
3.1.3. Trust
“When it happened, I felt like some people thought I deserved to lose the child because I had a home birth. Whenever I walk past, they gossip about me and I sometimes overhear them saying, ‘look at the woman who did not value the life of a child’… I came out of the experience as a very introverted and paranoid person”.(SK17)
“After the incident, the doctors and the nurses did not even give me the chance to gather myself together before they started asking how we were going to pay the hospital bills… they did not show any human feeling and I did not trust them to look after me”.(SK10)
“From my experience, I think the greatest gift you can receive when you lose a child is a true friend that you can trust with your pains… My husband was the one who really stood by me. He didn’t go to work until two weeks after the incident…”.(SK2)
4. Discussion
5. Strength and Limitations
6. Conclusions and Practice Recommendations
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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N = 20 | |
---|---|
Age in years | |
Mean (range) | 33.5 (22–44) |
Educational level | |
No education | 7 |
Primary/secondary/Tertiary | 3/2/8 |
Marital status | |
Married or cohabiting | 15 |
Single | 4 |
Widowed | 1 |
Time of death of baby | |
Intrapartum (during childbirth) | 17 |
Antepartum (before childbirth) | 3 |
Place of birth | |
Healthcare facilities | 19 |
Homebirth | 1 |
Gestational age at the time of loss | |
37 weeks and above | 16 |
30–36 weeks | 4 |
Gravidity (number of previous pregnancies before stillbirth) | |
Primigravida | 8 |
Multigravida | 12 |
Semi-Structured Interview Guide | Social Network Diagrams |
---|---|
1. What was your relationship with friends, neighbors, colleagues, family and others like after loss? | 1. I would like you to draw an image of yourself. |
2. Could you tell me how the loss of your child impacted on your relationship with others? | 2. I would like you to add images of people (friends, neighbors, partner, extended families, colleagues) that come to mind when you think of the loss of your child. |
3. What are those things that you can say assisted you to deal with your loss and where did you receive those from? | 3. I would like you to add images of any social/environmental systems (hospital, church, mosque, midwife/nurse/doctor, school, work, child support agency) that played either positive or negative roles in your experience of loss. |
4. How well would you say you were supported by your relatives, friends, colleagues and others after the loss of your baby? | 4. Please join yourself to the people you have added to your drawing with a maximum of three lines and a minimum of one line, depending on how you perceive the person’s support. |
Before Stillbirth N = 20 Diagrams | After Stillbirth N = 20 Diagrams | |
---|---|---|
Social networks | ||
Total network size | 127 | 99 |
Range | 2–15 | 2–8 |
Mean | 6.35 | 4.95 |
Composition of social networks | ||
Family | 65 | 50 |
Friends | 34 | 30 |
Acquaintance | 16 | 12 |
Colleagues | 7 | 3 |
Neighbors | 4 | 3 |
Healthcare providers | 1 | 1 |
Gender composition of social networks | ||
Female | 98 | 69 |
Male | 29 | 30 |
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Popoola, T.; Skinner, J.; Woods, M. Exploring the Social Networks of Women Bereaved by Stillbirth: A Descriptive Qualitative Study. J. Pers. Med. 2021, 11, 1056. https://doi.org/10.3390/jpm11111056
Popoola T, Skinner J, Woods M. Exploring the Social Networks of Women Bereaved by Stillbirth: A Descriptive Qualitative Study. Journal of Personalized Medicine. 2021; 11(11):1056. https://doi.org/10.3390/jpm11111056
Chicago/Turabian StylePopoola, Tosin, Joan Skinner, and Martin Woods. 2021. "Exploring the Social Networks of Women Bereaved by Stillbirth: A Descriptive Qualitative Study" Journal of Personalized Medicine 11, no. 11: 1056. https://doi.org/10.3390/jpm11111056