The comparison between health literacy and quality of life in three groups of mothers with cerebral palsy, Autism and intellectual impairments

Document Type : Original Article

Authors

1 Assistant Professor of Counseling, Psychology and Education Department, Faculty of Humanities, Khatam University, Tehran, Iran

2 MSc of Clinical Psychology, Department of counseling, Islamic Azad University, Arak, Iran.

3 MSc of Counseling, Psychology and Education Department, Faculty of Humanities, Khatam University, Tehran, Iran.

Abstract

Background and objective: disability of children has multiple negative impacts on psychological and social on mothers. The study of health literacy in mothers with children with special needs and the impact of the health literacy on quality of life is necessary. The aim of this study was to compare the health literacy and quality of life in three groups of mothers including; Cerebral palsy, Autism, and intellectual impairments.

Methods: The research method of this study was ex-post design. The statistical society of present study was all of the mothers with special needs care referred to rehabilitation centers in the west region of Tehran city by 2016. The samples of research were dividing into three groups (each group was 40 mothers). All of the participants were 120 mothers selecting by simple sampling method. For gathering data using the Health Literacy Questionnaire for Adults (HELIA) and World Health Organization Questionnaire of Quality of Life (WHOQOL). The data were analyzed by ANOVA and with SPSS software version 21.

Results: The results indicated that three groups of mothers had a significant difference in health literacy and sub-scales of the questionnaire (p<0/05). The mothers with Autism child had more scores than other two groups. However, the quality of life scores had not shown the significant difference in three groups expect the two scales psychological and physical health (P>0/05).

Conclusion: The findings revealed that the study of health literacy was the impact of quality of life of mothers. Therefore, the educational and awareness programs seem to be urgent for improving the health literacy and quality of life in three groups of mothers and considering by health professionals. 

Paper Type: Research Article.

Keywords

References

1. Taulbee J. Understanding children of special needs: the guide for parents, teachers and care-givers. 2nd ed. Tehran: Jungle; 2009.
2. Khodabakhshi Koolaee A. Patterns of family therapy and parent education. 2nd ed. Tehran: Jungle; 2011.
3.Jalili, N. Gudarzi, M. Rasafiani, M. Haghgu, H.Dalvand, H. Farzi, M. The quality of life of mothers of children with severe cerebral palsy and the factors affecting it. New Rehabilitation Scientific Journal,2013;7(3).
4. Jaberi Moghadam, A. Mashalahi, A. Ghadiri, F. Soleimani, M. Quality of life related to the health of boys in active and passive cerebral palsy in Tehran. Magazine Growth and Learning-Sport, 2012; 11(2)
5.  Sanctis, R., Romeo, M. G., Mazzone, D. & Mercuri, E. (2010). Quality of life in parents of children with cerebral palsy: is it influenced by the child's behaviour?, Neuropediatrics, 41(3),121-126.
6. Keim-Malpass J, Letzkus LC, Kennedy C. Parent/caregiver health literacy among children with special health care needs: a systematic review of the literature. BMC Pediatr 2015;1:1–10.
7. Rezaie, K. Hosseini, M. Khademi, J. Ghafari, A. Addiction in work environments. Selected Proceedings of the 30th Provincial Congress on Early Prevention of Addiction,2010.
8. Romeo, D. M., Cioni, M., Distefano, A., Battaglia, L. R., Costanzo, L., Ricci, D., De Sanctis, R., Romeo, M. G., Mazzone, D. & Mercuri, E. Quality of life in parents of children with cerebral palsy: is it influenced by the child's behaviour?, Neuropediatrics, 2010; 41(3),121-126.
9. Demirel M. Primary School Curriculum for Educable Mentally Retarded Children: A Turkish Case. US-China Education Review.2010; 7(3):79-89.
10. Alaghband, M. The effect of coping therapy on the general health of mothers with genetically retarded children. Journal of Shahid Sadoughi University of Medical Sciences,Yazd,2011; 19(1):104:113.
11. Paschala AM., Mitchellb QP., Wilroy JD., Hawley SR., & Mitchelld JB. Parent health literacy and adherence-related outcomes in children with epilepsy. Epilepsy and Behavior,2016; 56;73-82. doi.org/10.1016/j.yebeh.2015.12.036
12. Akbari A, Bayatiani Pour Mohammad, Rezaye Tajrishi M, Gangalivand N, Mirzamani M, Salehi M.[The Relationship between Social Network and Quality of Life in Parents of students with Intellectual Disabilities. 2011:163-174. [Persian]
13. Jon Baio. Developmental Disabilities Monitoring Network Surveillance Year, Principal Investigators. Prevalence of autism spectrum disorder among children aged 8 years-autism and developmental disabilities monitoring network, 11 sites, United States. Morb Mort Wkly Rep Surveil Summ. 2014;63(2):1.
14. Haglund N, Dahlgren S, Källén K, Gustafsson P, Rastam M. The Observation Scale for Autism(OSA): A New Screening Method to Detect Autism Spectrum Disorder before Age Three Years. Journal of Intellectual Disability - Diagnosis and Treatment. 2015;3(4):230-237.
15. Shur-Fen, G. S., Chou, M., Chiang, H., Lee, J., Wong, C., Chou, W. & Wu, Y. Parental adjustment, marital relationship, and family function in families of children with autism. Research in Autism Spectrum Disorders, 2012; 6(1), 263–270.
16. Payot, A., Keith, J. & Barrington, K. The Quality of Life of Young Children and Infants with Chronic Medical Problems: Review of the Literature. Curr Probl Pediatr Adolesc Health Care, 2011; 41: 91-101.
17. Cheshire, A., Barlow, J. H. & Powell, L. A. The psychosocial well-being of parents of children with cerebral palsy: a comparison study, Disabil Rehabil, 2010; 32(20):1673-7
18. Davis, E., Shelly, A., Waters, E., Boyd, R., Cook, K., Davern, M. & Reddihough, D. The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers. Child Care Health Dev, 2010; 36(1): 63-73.
19. Mugno, D., Ruta, L., D'Arrigo, V. G. & Mazzone, L. Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health and Quality of Life Outcomes, 2007; 5(1), 22-41.
20. Ahmadizadeh, z., RASSAFIANI M, EHSANI F, HOSSEINI A. comparing the quality of life of mothers of children with cerebral palsy based on the ability to walk children. Research in Rehabilitation Sciences, 2014:10(1):88-98.
21. Abbasi M, Ayadi N, Pirani Z, Montazeri Z. The Effect of Cognitive Rehabilitation on Social Well-Being, Quality of Life and Marital Satisfaction of Nurses. Iran J Health Educ Health Promot. 2017; 5 (3) :231-239
22. Khayatzade Mahani, M. Comparison of the quality of life of mothers of children with cerebral palsy, retardation of life and mothers of healthy children. Journal of Daneshvar Raftar,2010;3(1):1-12.
23. Meraji M, Rafat-Panah H, Mahmoodian S, Daeyan A. Assessment of university student health literacy toward Influenza. J Health Lit. 2016; 1 (3) :191-197
24. Fouladi N, Hazrati S, Shabani M, Nejaddadgar N. Investigating Middle-aged Health Literacy in Ardabil . J Health Lit. 2017; 2 (1) :39-44
25. Montazeri A, Tavousi M, Rakhshani F, Azin SA, JahangiriK, Ebadi M, et al. Health Literacy for Iranian Adults (HELIA): development and psychometric properties. Payesh Journal (2014); 13(5):589-599. (Persian)
26. Nejat S, Montazeri A, Holakouie Naieni K, Mohammad K, Majdzadeh S. The World Health Organization quality of Life (WHOQOL-BREF) questionnaire: Translation and validation study of the Iranian version. sjsph. 2006; 4 (4) :1-12: URL: http://sjsph.tums.ac.ir/article-1-187-fa.html
27.Jenaabadi, H. The Effect of Social Skills Training on Reducing Behavioral Disorders in Vocational School Students Co-operative School in Zahedan. Exceptional Children Psychology Quarterly. 2012;1(2):73-84.
28. Samadibeyk, M. National study on the prevalence of autism in five-year-old children in Iran. Autism Journal. 2013;16(1):5-14.
29. Kharazi SS., Peyman N., & Esmaily H. Association between maternal health literacy level with pregnancy care and its outcomes. The Iranian Journal of obstetrics, Gynecology and infertility. 2017;19(37):40-50.
30. Saeedi Koupai M, Motaghi M. Comparing Health Literacy in High School Female Students and Their Mothers Regarding Women’s Health. Journal of Health Literacy.
2017;1(4):220-9.
31. Pati S, Siewert E, Wong A, Bhatt S, Calixte R, Cnaan A. The influence of maternal health literacy and child’s age on participation in social welfare programs. Matern child health J. 2014; 18(5): 1176–1189. 6.
32.Kheyr, N. G.-I. Quality of life of care givers of children with Autism in Qatar. Published on line before print,2012; 6(3):293-29.
33. Khodabakhshi-Koolaee A, Rajaee-Asl N. Efficacy of Hope-Oriented Group Therapy on Quality of Life and Parent-Child Relationship in Mothers with Autistic Children. J Prev Health. 2016; 2 (2) :32-43
URL: http://hpjournal.ir/article-1-70-fa.html
34. Lin J, Hu J, Yen C, Hsu Sh, Lin L, Loh C, Chen M, Wu Sh ,Chu C, Wu J. Quality of life in caregivers of children and adolescents with intellectual disabilities: Use of WHOQOL-BREF survey. Research in Developmental Disabilities,2009; 30(6), 1448–1458.
35. Musavi, S. Quality of Life of Mothers of Children with Cerebral Palsy and Normal in Kermanshah. Monthly Journal of Kermanshah University of Medical Sciences, 2014;18(9).
36. Ginieri-Coccossis, M., Rotsika, V., Skevington, S., Papaevangelou, S., Malliori, M.,
Tomaras, V. & Kokkevi, A. Quality of life in newly diagnosed children with specific learning disabilities (SLD) and differences from typically developing children: a study of child and parent reports. Child Care Health Dev, 2012;10(1111):1365-2214.
37. Lin J, Hu J, Yen C, Hsu Sh, Lin L, Loh C, Chen M, Wu Sh ,Chu C, Wu J. Quality of life in caregivers of children and adolescents with intellectual disabilities: Use of WHOQOL-BREF survey. Research in Developmental Disabilities,2009; 30(6): 1448–1458.
38-Khodabakhshi Koolaee A, Arab Varamin A, Rooshan Cheseli R. Effectiveness of “Kozloff Parental Training Program” on Expressed Emotion and Burden Among Mothers With Autistic Child. IJRN. 2016; 3 (1) :29-34URL: http://ijrn.ir/article-1-260-fa.html

Journal of Health Literacy
Volume 2, Issue 4 - Serial Number 8
March 2018
Pages 245-254

Files

Share

How to cite

Statistics