COVID-19 Questionnaires, Surveys, and Item-Banks: Overview of Clinical- and Population-Based Instruments

9 Pages Posted: 30 Jul 2020 Last revised: 19 Aug 2020

See all articles by Carsten Oliver Schmidt

Carsten Oliver Schmidt

University Medicine Greifswald - ICM

Rajini Nagrani

Leibniz Institute for Prevention research and Epidemiology

Christina Stange

University Medicine Greifswald - ICM

Matthias Löbe

University of Leipzig - Institute for Medical Informatics, Statistics and Epidemiology (IMISE)

Atinkut Zeleke

University Medicine Greifswald

Guillaume Fabre

RI-MUHC - Maelstrom Research

Sofiya Koleva

RI-MUHC - Maelstrom Research

Karine Trudeau

RI-MUHC - Maesltrom Research

Stefan Sauermann

UAS Technikum Wien

Jay Greenfield

CODATA

Claire C. Austin

Environment and Climate Change Canada

RDA COVID-19 WG

Research Data Alliance

Date Written: July 15, 2020

Abstract

New COVID-19 related instruments are being rapidly developed around the world to collect patient- and population-based information. Heterogeneity between instruments limits comparability of results. The present study provides an overview of instruments and resources. We scoped the content domain on a selection of instruments using the Maelstrom taxonomy. Content of the instruments varied widely, from proximal measures (e.g., clinical symptoms, comorbidities, etc.) to distal measures such as political attitudes. We recommend that researchers reuse existing instruments to the greatest extent possible, and that they make results openly available in machine-readable format to facilitate reuse and maximize comparability of results across studies and countries.

Note: Funding: This work was partially funded through the Deutsche Forschungsgemeinschaft (DFG) research grant PI 345/17-1/SCHM 2744/9-1.

Conflict of Interest: None to declare.

Keywords: COVID-19, SARS-CoV-2, questionnaire, survey, collection tool, instrument, epidemiology, clinical, population, symptoms, interoperability, taxonomy, semantic annotation

Suggested Citation

Schmidt, Carsten Oliver and Nagrani, Rajini and Stange, Christina and Löbe, Matthias and Zeleke, Atinkut and Fabre, Guillaume and Koleva, Sofiya and Trudeau, Karine and Sauermann, Stefan and Greenfield, Jay and Austin, Claire C. and WG, RDA COVID-19, COVID-19 Questionnaires, Surveys, and Item-Banks: Overview of Clinical- and Population-Based Instruments (July 15, 2020). Available at SSRN: https://ssrn.com/abstract=3652027 or http://dx.doi.org/10.2139/ssrn.3652027

Carsten Oliver Schmidt

University Medicine Greifswald - ICM ( email )

Fleischmannstraße 8
Greifswald, 17475
Germany

Rajini Nagrani (Contact Author)

Leibniz Institute for Prevention research and Epidemiology ( email )

Achterstraße 30
Bremen, 28359
Germany

Christina Stange

University Medicine Greifswald - ICM ( email )

Greifswald
Germany

Matthias Löbe

University of Leipzig - Institute for Medical Informatics, Statistics and Epidemiology (IMISE) ( email )

Härtelstraße 16-18
Leipzig, Saxony 04107
Germany

Atinkut Zeleke

University Medicine Greifswald ( email )

Ellernholzstraße 1-2
Greifswald, 17489
Germany

Guillaume Fabre

RI-MUHC - Maelstrom Research ( email )

1001 Decarie Blvd
Montreal, QC H4A 3J1
Canada

Sofiya Koleva

RI-MUHC - Maelstrom Research ( email )

Montreal
Canada

Karine Trudeau

RI-MUHC - Maesltrom Research ( email )

1001 Decarie Blvd
Montreal, QC H4A 3J1
Canada
1 (514) 934-1934 ext 71872 (Phone)

Stefan Sauermann

UAS Technikum Wien ( email )

Jay Greenfield

CODATA ( email )

Claire C. Austin

Environment and Climate Change Canada ( email )

Gatineau
Canada

RDA COVID-19 WG

Research Data Alliance ( email )

HOME PAGE: http://rd-alliance.org/groups/rda-covid19

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