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Reproductive Freedom, Self-Regulation, and the Government of Impairment in Utero

Published online by Cambridge University Press:  25 March 2020

Abstract

This article critically examines the constitution of impairment in prenatal testing and screening practices and various discourses that surround these technologies. While technologies to test and screen (for impairment) prenatally are claimed to enhance women's capacity to be self-determining, make informed reproductive choices, and, in effect, wrest control of their bodies from a patriarchal medical establishment, I contend that this emerging relation between pregnant women and reproductive technologies is a new strategy of a form of power that began to emerge in the late eighteenth century. Indeed, my argument is that the constitution of prenatal impairment, by and through these practices and procedures, is a widening form of modem government that increasingly limits the field of possible conduct in response to pregnancy. Hence, the government of impairment in utero is inextricably intertwined with the government of the maternal body.

Type
Research Article
Copyright
Copyright © 2006 by Hypatia, Inc.

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References

Amundson, Ron. 2000. Against normal function. Studies in the History and Philosophy of Biological and Biomedical Sciences 31C: 3353.CrossRefGoogle Scholar
Amundson, Ron. 2005. Disability, ideology, and quality of life: A bias in biomedical ethics. In Quality of life and human difference. ed. Wasserman, David, Wachbroit, Robert, and Bickenbach, Jerome. Cambridge: Cambridge University Press.Google Scholar
Carlo, Roberto Rivera y. 20022003. Targeting the disabled. Boundless webzine. http://www.boundless.org/2002_2003/features/a0000685.html. Cited May 2003.Google Scholar
Boorse, Christopher. 1977. Health as a theoretical concept. Philosophy of Science 44: 542–73.CrossRefGoogle Scholar
Browner, Carole H., and Press, Nancy Ann. 1995. The normalization of prenatal diagnostic screening. In Conceiving the new world order: The global politics of reproduc’ tion. ed. Ginsberg, Ruth and Rapp, Rayna. Berkeley and Los Angeles: University of California Press.Google Scholar
Buchanan, Allen, Brock, Dan W., Daniels, Norman, and Wikler, Daniel. 2000. From chance to choice: Genetics and justice. Cambridge: Cambridge University Press.CrossRefGoogle Scholar
Butler, Judith. 1993. Bodies that matter: On the discursive limits of ‘sex.’ New York: Routledge.Google Scholar
Butler, Judith. 1999. Gender trouble: Feminism and the subversion of identity, 10th anniversary edition. New York: Routledge.Google Scholar
Cho, Mike, Cohen, Mike, and Sistla, Seetla. n.d. What is a “normal” phenotype? In Bioethics for developmental biologists, ed. Gilbert, Scott F. and Zackin, Emily. Available online at: http://www.devbio.com/keyword.phpkw=bioethics. Cited August 2004.Google Scholar
Dean, Mitchell. 1999. Governmentality: Power and rule in modern society. London: Sage Publications.Google Scholar
Disabled Peoples’ International Europe. 2000. Disabled people speak on the new genetics. DPI Europe position statement on bioethics and human rights. http://www.dpieurope.org/htm/bioethics/dpsngfullreport.htm.Google Scholar
Duden, Barbara. 1993. Disembodying women: Perspectives on pregnancy and the unborn. Cambridge, Mass.: Harvard University Press.Google Scholar
Ewald, Francois. 1991. Insurance and risk. In The Foucault effect: Studies in governmen‐tality. ed. Burchell, Graham, Gordon, Colin, and Miller, Peter. Chicago: University of Chicago Press.Google Scholar
Fausto‐Sterling, Anne. 2000. Sexing the body: Gender politics and the construction of sexuality. New York: Basic Books.Google Scholar
Foucault, Michel. 1978. The history of sexuality. Volume 1. An introduction. Trans. Hurley, Robert. New York: Random House.Google Scholar
Foucault, Michel. 1983. The subject and power. In Michel Foucault: Beyond structuralism and hermeneutics. ed. Dreyfus, Hubert and Rabinow, Paul. Chicago: University of Chicago Press.Google Scholar
Foucault, Michel. 1997. The birth of biopolitics. In Michel Foucault: Ethics, subjectivity and truth. ed. Rabinow, Paul. New York: New Press.Google Scholar
Foucault, Michel. 2003. Society must be defended: Lectures at Collège de France, 1975‐‐1976. ed. Bertani, Mauro and Fontana, Alessandro. Trans. Macey, David. New York: Picador.Google Scholar
Gordon, Colin. 1991. Governmental rationality: An introduction. In The Foucault effect: Studies in governmentality. ed. Burchell, Graham, Gordon, Colin, and Miller, Peter. Chicago: University of Chicago Press.Google Scholar
Hacking, Ian. 1991. How should we do the history of statistics? In The Foucault effect: Studies in governmentality. ed. Burchell, Graham, Gordon, Colin, and Miller, Peter. Chicago: University of Chicago Press.Google Scholar
Hacking, Ian. 1999. The social construction of what? Cambridge, Mass.: Harvard University Press.Google Scholar
Haraway, Donna. 1990. Primate visions: Gender, race, and nature in the world of modern science. New York: Routledge.Google Scholar
Hughes, Bill, and Paterson, Kevin. 1997. The social model of disability and the disappearing body: Towards a sociology of impairment. Disability & Society 12: 325–40.CrossRefGoogle Scholar
Lippman, Abby. 1991. Prenatal testing and screening: constructing needs and reinforcing inequities. American Journal of Law and Medicine 17, nos. 1 & 2: 1550.Google ScholarPubMed
Morgan, Kathryn. 1998. Contested bodies, contested knowledges: Women, health, and the politics of medicalization. In The politics of women's health: Exploring agency and autonomy. ed. Sherwin, Susan. Philadelphia: Temple University Press.Google Scholar
Novas, Carlos, and Rose, Nikolas. 2000. Genetic risk and the birth of the somatic individual. Economy and Society 29, no. 4: 485513.CrossRefGoogle Scholar
Oliver, Michael. 1990. The politics of disablement. London: Macmillan Education.CrossRefGoogle Scholar
Oliver, Michael. 1996. Understanding disability: From theory to practice. London: Macmillan.CrossRefGoogle Scholar
Priestley, Mark. 2003. Disability: A life course approach. Cambridge: Polity.Google Scholar
Rapp, Rayna. 1995. Risky business: genetic counseling in a shifting world. In Articulating hidden histories: Exploring the influence of Eric R. Wolf. ed. Schneider, Jane and Rapp, Rayna. Berkeley and Los Angeles: University of California Press.Google Scholar
Rapp, Rayna. 1999. Testing women, testing the fetus: The social impact of amniocentesis in America. New York: Routledge.Google Scholar
Rose, Nikolas. 1996. Governing “advanced” liberal democracies. In Foucault andpolitkal reason: Liberalism, neo‐liberalism, and rationalities of government. ed. Barry, Andrew, Osborne, Thomas, and Rose, Nikolas. Chicago: University of Chicago Press.Google Scholar
Sawicki, Jana. 1991. Disciplining mothers: Feminism and the new reproductive technologies. In Disciplining Foucault: Feminism, power, and the body. New York: Routledge.Google Scholar
Saxton, Marsha. 2000. Why members of the disability community oppose prenatal diagnosis and selective abortion. In Prenatal testing and disability rights. ed. Parens, Erik and Asch, Adrienne. Washington, D.C.: Georgetown University Press.Google Scholar
Shakespeare, Tom. 1992. A response to Liz Crow. Coalition. (September): 4042.Google Scholar
Shakespeare, Tom. 1998. Choices and rights: Eugenics, genetics and disability equality. Disability & Society 13, no. 5: 665–81.CrossRefGoogle ScholarPubMed
Silvers, Anita, Wasserman, David, and Mahowald, Mary B. 1998. Disability, difference, discrimination: Perspectives on justice in bioethics and public policy. Lanham, Md.: Rowman & Littlefield.Google Scholar
Steinbock, Bonnie. 2000. Disability, prenatal testing, and selective abortion. In Prenatal testing and disability rights. ed. Parens, Erik and Asch, Adrienne. Washington, D.C.: Georgetown University Press.Google Scholar
Tremain, Shelley. 2001. On the government of disability. Social Theory and Practice 27, no. 4: 617–36.CrossRefGoogle Scholar
Tremain, Shelley. 2002. On the subject of impairment. In Disabilitylpostmodernity: Embodying political theory. ed. Corker, Marian and Shakespeare, Tom. London: Continuum.Google Scholar
Tremain, Shelley. 2005. Foucault, governmentality, and critical disability theory: An introduction. In Foucault and the government of disability. ed. Tremain, Shelley. Ann Arbor: University of Michigan Press.Google Scholar
UPIAS. 1976. The fundamental principles of disability. London: Union of the Physically Impaired against Segregation.Google Scholar
Waldschmidt, Anne. 1992. Against selection of human life: People with disabilities oppose genetic counseling. Issues in Reproductive and Genetic Engineering 5, no. 2: 155–67.Google Scholar
Weir, Lorna. 1996. Recent developments in the government of pregnancy. Economy and Society 25, no. 3: 372–92.CrossRefGoogle Scholar
Wolbring, Gregor. 2001. Where do we draw the line? Surviving eugenics in a technological world. In Disability and the life‐course: Global perspectives. ed. Priestley, Mark. Cambridge: Cambridge University Press.Google Scholar