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Currents in Contemporary Ethics: The Role of Parents in Expanded Newborn Screening

Published online by Cambridge University Press:  01 January 2021

Abstract

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Type
JLME Column
Copyright
Copyright © American Society of Law, Medicine and Ethics 2009

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References

See, e.g., The President's Council on Bioethics, The Changing Moral Focus of Newborn Screening: An Ethical Analysis by the President's Council on Bioethics, December 2008, at 2, 21, and 49; Botkin, J. R., “Assessing the New Criteria for Newborn Screening,” Health Matrix: Journal of Law-Medicine 19, no. 1 (2009): 163185, at 174.Google Scholar
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There are technical difficulties as well as different ethical problems with using some of these prenatal techniques. See Botkin, , supra note 1, at 178–179 (stating that current screens that test the level of biochemicals are ineffective in carrier adults) and Ross, L. Friedman and Acharya, K., “Policy Considerations in Designing a Fragile X Population Screening Program,” Genetic Medicine 9, no. 10 (2008): 711713, at 712 (stating that “[t]he major disadvantage of implementing prenatal screening for FrX rather than NBS is the greater disparity in access to prenatal genetic testing than to neonatal screening”). However, the technical problems may be overcome now or in the future, and the ethical problems may prove to be lesser than those caused by mandatory screening.Google Scholar
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