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Potential impact of the COVID-19 pandemic on everyday preferences for persons with cognitive impairment

Published online by Cambridge University Press:  25 August 2023

James M. Wilkins Open the ORCID record for James M. Wilkins [Opens in a new window] ,
Joseph J. Locascio ,
Teresa Gomez-Isla ,
Bradley T. Hyman ,
Deborah Blacker ,
Brent P. Forester  and
Olivia I. Okereke
James M. Wilkins*
Affiliation:
Division of Geriatric Psychiatry, McLean Hospital, Harvard Medical School, Belmont, MA, USA
Joseph J. Locascio
Affiliation:
Department of Neurology, Massachusetts Alzheimer’s Disease Research Center, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA Harvard Catalyst Biostatistical Consulting, Harvard Catalyst/CTSA, Harvard Medical School, Boston, MA, USA
Teresa Gomez-Isla
Affiliation:
Department of Neurology, Massachusetts Alzheimer’s Disease Research Center, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA
Bradley T. Hyman
Affiliation:
Department of Neurology, Massachusetts Alzheimer’s Disease Research Center, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA
Deborah Blacker
Affiliation:
Department of Neurology, Massachusetts Alzheimer’s Disease Research Center, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA Department of Psychiatry, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA
Brent P. Forester
Affiliation:
Division of Geriatric Psychiatry, McLean Hospital, Harvard Medical School, Belmont, MA, USA
Olivia I. Okereke
Affiliation:
Department of Neurology, Massachusetts Alzheimer’s Disease Research Center, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA Department of Psychiatry, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA
*
Correspondence should be addressed to: J. M. Wilkins, Division of Geriatric Psychiatry, McLean Hospital, 115 Mill Street, Belmont, MA, 02478, USA. Phone: 617-855-3982; Fax: 617-855-3246. Email: jwilkins1@mclean.harvard.edu.
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Abstract

The COVID-19 pandemic and subsequent social distancing guidelines and restrictions brought on changes in the everyday experiences of older adults. It is not clear, however, to what extent the pandemic has impacted the importance of everyday preferences for persons with cognitive impairment (CI) or the proxy ratings of those preferences. The sample of this study included 27 dyads of persons with CI and their care partners. The Preferences for Everyday Living Inventory was used to assess importance of preferences among persons with CI; care partners completed concurrent proxy assessments. Mixed random and fixed effects longitudinal models were used to evaluate changes in ratings and concordance levels between persons with CI and care partners prior to and during the COVID-19 pandemic. Persons with CI rated autonomous choice preferences as significantly more important during the COVID-19 pandemic than before; there was no association between the COVID-19 pandemic and change in other everyday preferences domains or discrepancy in proxy assessments of everyday preferences. Identifying avenues to support and provide for autonomy in the decision-making of older adults with CI may offer a way forward in mitigating the psychological and behavioral impacts of the COVID-19 pandemic in this population.

Keywords

Dementiaautonomy and self-efficacydecision-making
Type
Brief Report
Information
International Psychogeriatrics , First View , pp. 1 - 6
Copyright
© International Psychogeriatric Association 2023

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