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Evaluation of a video, telephone follow-ups, and an online forum as components of a psychoeducational intervention for caregivers of persons with advanced cancer

Published online by Cambridge University Press:  13 April 2016

Mabel Q.H. Leow  and
Sally W.C. Chan
Mabel Q.H. Leow*
Affiliation:
Biomechanics Laboratory, Singapore General Hospital, Singapore
Sally W.C. Chan
Affiliation:
School of Nursing and Midwifery, Faculty of Health and Medicine, University of Newcastle, New South Wales, Australia
*
Address correspondence and reprint requests to Mabel Q.H. Leow, Research Nurse, National Skin Centre, 1 Mandalay Road, Singapore 308205. E-Mail: mabel.leow@u.nus.edu.
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Abstract

Objective:

Our aim was to evaluate caregivers' perceptions of a video, telephone follow-up, and online forum as components of a psychoeducational intervention.

Method:

Qualitative semistructured face-to-face interviews were conducted with 12 participants two weeks post-intervention. The study was conducted from September of 2012 to May of 2015. Family caregivers were recruited from four home hospice organizations (HCA Hospice Care, Metta Hospice, Singapore Cancer Centre, and Agape Methodist Hospice) and the National Cancer Centre outpatient clinic in Singapore. A purposive sample was employed, and participants were recruited until data saturation. Qualitative interviews were transcribed verbatim. Transcripts were coded and analyzed using content analysis. Two of the research team members were involved in the data analysis.

Results:

Two-thirds of participants were females (n = 8). Their ages ranged from 22 to 67 (mean = 50.50, SD = 11.53). About two-thirds were married (n = 7). Most participants were caring for a parent (n = 10), one for a spouse, and one for her mother-in-law. Caregivers favored the use of video for delivery of educational information. They liked the visual and audio aspects of the video. The ability to identify with the caregiver and scenarios in the video helped in the learning process. They appreciated telephone follow-ups from healthcare professionals for informational and emotional support. The online forum as a platform for sharing of information and provision of support was not received well by the caregivers in this study. The reasons for this included their being busy, not being computer savvy, rarely surfing the internet, and not feeling comfortable sharing with strangers on an online platform.

Significance of Results:

This study provided insight into caregivers' perceptions of various components of a psychoeducational intervention. It also gave us a better understanding of how future psychoeducational interventions and support for caregivers of persons with advanced cancer could be provided.

Keywords

Online forumPsychoeducational interventionTelephone follow-upVideo
Type
Original Articles
Information
Palliative & Supportive Care , Volume 14 , Issue 5 , October 2016 , pp. 474 - 478
Copyright
Copyright © Cambridge University Press 2016 

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References

REFERENCES

Agency for Integrated Care (2009). Hospices. Available from http://www.aic.sg/caregiverstraininggrant/.Google Scholar
Bucy, E.P. (2000). Social access to the internet. The International Journal of Press/Politics, 5(1), 50–61.Google Scholar
Duggleby, W., Wright, K., Williams, A., et al. (2007). Developing a Living with Hope Program for caregivers of family members with advanced cancer. Journal of Palliative Care, 23(1), 24–31.CrossRefGoogle ScholarPubMed
Gallagher-Thompson, D., Wang, P., Liu, W., et al. (2010). Effectiveness of a psychoeducational skill training DVD program to reduce stress in Chinese American dementia caregivers: Results of a preliminary study. Aging & Mental Health, 14(3), 263–273.CrossRefGoogle ScholarPubMed
Harding, R., Epiphaniou, E., Hamilton, D., et al. (2012). What are the perceived needs and challenges of informal caregivers in home care palliative care? Qualitative data to construct a feasible psycho-educational intervention. Supportive Care in Cancer, 20(9), 1975–1982.CrossRefGoogle ScholarPubMed
Hudson, P.L., Aranda, S. & Hayman-White, K. (2005). A psycho-educational intervention for family caregivers of patients receiving palliative care: A randomized controlled trial. Journal of Pain and Symptom Management, 30(4), 329–341.CrossRefGoogle ScholarPubMed
Kilbourn, K.M., Costenaro, A., Madore, S., et al. (2011). Feasibility of a telephone-based counseling program for informal caregivers of hospice patients. Journal of Palliative Medicine, 14(11), 1200–1205.CrossRefGoogle ScholarPubMed
Klemm, P. & Noland, M.T. (1998). Internet cancer support groups: Legal and ethical issues for nurse researchers. Oncology Nursing Forum, 25(4), 673–676.Google ScholarPubMed
Leow, M.Q.H., Chan, M. & Chan, S.W.C. (2014). Predictors of change in quality of life of family caregivers of patients near the end of life with advanced cancer. Cancer Nursing, 37(5), 391–400.CrossRefGoogle ScholarPubMed
Leow, M., Chan, M.F. & Chan, S. (2015). A pilot randomised controlled trial of the effectiveness of a psychoeducation intervention on family caregivers for a person with advanced cancer. Oncology Nursing Forum, 42(2), E63–E72.CrossRefGoogle ScholarPubMed
Ngiam, J., Khosla, A., Kim, M., et al. (2011). Multimodal deep learning. Paper presented at the 28th International Conference on Machine Learning. Available from http://machinelearning.wustl.edu/mlpapers/paper_files/ICML2011Ngiam_399.pdf.Google Scholar
Ow, R. (1999). Social work in Singapore. In Singapore studies II: Critical surveys of the humanities and social sciences. Chua, B.H. (ed.), pp. 204–228. Singapore: Singapore University Press.Google Scholar
Rodriguez, R.O., Green, M.T. & Ree, M.J. (2003). Leader generation X: Do the old rules apply? Journal of Leadership and Organizational Studies, 9(4), 67–75.CrossRefGoogle Scholar
Thorne, S., Kirkman, S. & O'Flynn-Magee, K. (2004). The analytic challenge in interpretive description. International Journal of Qualitative Methods, 3(1), 1–11.CrossRefGoogle Scholar
Trade Chakra (2008). Per capita income of Singapore. Available from http://www.tradechakra.com/economy/singapore/per-capita-income-of-singapore-22.php.Google Scholar
Walsh, S. & Schmidt, L. (2003). Telephone support for caregivers of patients with cancer. Cancer Nursing, 26(6), 448–453.CrossRefGoogle ScholarPubMed
Washington, K.T., Dermiris, G., Oliver, D.P., et al. (2012). Qualitative evaluation of a problem-solving intervention for informal hospice caregivers. Palliative Medicine, 26(8), 1018–1024.CrossRefGoogle ScholarPubMed
Williams, V.P., Bishop-Fitzpatrick, L., Lane, J.D., et al. (2010). Video-based coping skills to reduce health risk and improve psychological and physical well-being in Alzheimer's disease family caregivers. Psychosomatic Medicine, 72(9), 897–904.CrossRefGoogle ScholarPubMed