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Stakeholder Meeting: Integrated Knowledge Translation Approach to Address the Caregiver Support Gap

Published online by Cambridge University Press:  05 January 2017

Jayna M. Holroyd-Leduc ,
Jacqueline McMillan ,
Nathalie Jette ,
Suzette C. Brémault-Phillips ,
Wendy Duggleby ,
Heather M. Hanson  and
Jasneet Parmar
Jayna M. Holroyd-Leduc*
Affiliation:
Departments of Medicine and Community Health Sciences and Hotchkiss Brain Institute and O’Brien Institute for Public Health, University of Calgary, and Alberta Health Services Seniors Health Strategic Clinical Network
Jacqueline McMillan
Affiliation:
Department of Medicine, University of Calgary
Nathalie Jette
Affiliation:
Departments of Clinical Neurosciences and Community Health Sciences and Hotchkiss Brain Institute and O’Brien Institute for Public Health, University of Calgary
Suzette C. Brémault-Phillips
Affiliation:
Department of Occupational Therapy, University of Alberta
Wendy Duggleby
Affiliation:
Faculty of Nursing, University of Alberta
Heather M. Hanson
Affiliation:
Alberta Health Services Seniors Health Strategic Clinical Network
Jasneet Parmar
Affiliation:
Department of Family Medicine, University of Alberta, and Covenant Health Network of Excellence in Seniors’ Health and Wellness
*
† La correspondance et les demandes de tirés-à-part doivent être adressées à : / Correspondence and requests for offprints should be sent to: Dr. Jayna Holroyd-Leduc Foothills Medical Center, South Tower Room 1104, 1403-29th St NW Calgary, AB T2N 2T9 (jayna.holroyd-leduc@albertahealthservices.ca)
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Abstract

Family caregivers are an integral and increasingly overburdened part of the health care system. There is a gap between what research evidence shows is beneficial to caregivers and what is actually provided. Using an integrated knowledge translation approach, a stakeholder meeting was held among researchers, family caregivers, caregiver associations, clinicians, health care administrators, and policy makers. The objectives of the meeting were to review current research evidence and conduct multi-stakeholder dialogue on the potential gaps, facilitators, and barriers to the provision of caregiver supports. A two-day meeting was attended by 123 individuals. Three target populations of family caregivers were identified for discussion: caregivers of seniors with dementia, caregivers in end-of-life care, and caregivers of frail seniors with complex health needs. The results of this meeting can and are being used to inform the development of implementation research endeavours and policies targeted at providing evidence-informed caregiver supports.

Résumé

Les aidants familiaux sont une partie intégrante et de plus en plus débordée du système de soins de santé. Il y a un écart entre ce que les données de recherche démontrent être bénéfique pour les soignants et ce qui est réellement fourni. À l’aide d’une approche basée sur l’application intégrée des connaissances (AC), une réunion des intervenants a inclus des chercheurs, des aidants familiaux, des associations de soignants, des cliniciens, des administrateurs de soins de santé et des décideurs. Les objectifs de la réunion étaient d’examiner les données issues des recherches en cours et de tenir un dialogue entre les intervenants multiples sur les lacunes, les facilitateurs et les obstacles à la fourniture d’un soutien aux aidants naturels. Cent vingt-trois individus ont participé à cette réunion. Trois populations cibles des aidants familiaux ont été identifiées pour discussion: soignants d’aînés atteints de démence, soignants en fin de vie et soignants d’aînés ayant des besoins de santé complexes. Les résultats de cette réunion sont et seront utilisés pour éclairer le développement des efforts visant à mettre en œuvre à la fois des recherches et des politiques afin de fournir un soutien aux aidants familiaux en se basant sur les preuves.

Keywords

agingcaregiversknowledge translationend of lifedementiafrailtyvieillissementaidantsapplication des connaissances (AC)fin de viedémencefragilité
Type
Policy and Practice Note / Note de politique et practique
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 36 , Issue 1 , March 2017 , pp. 108 - 119
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Copyright
Copyright © Canadian Association on Gerontology 2017 

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Footnotes

* Funding and Ethics: This project was funded by a Canadian Institutes of Health Research (CIHR) planning grant and by contributions from the Alberta Health Services Seniors Health Strategic Clinical Network, Covenant Health, the Alberta Caregiver Association, and the Alzheimer’s Society of Alberta and Northwest Territories. N. Jette is the holder of a Canada Research Chair Tier 2 in Neurological Health Services Research. Ethics approval was obtained from the University of Alberta Research Ethics Board.

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