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Evaluating Patient and Family Experience Among Spanish-Speaking and LatinX Patients: a Scoping Review of Existing Instruments

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Abstract

Introduction

LatinX populations are rapidly growing in the USA, but still report lower levels of patient centered care and satisfaction when compared to their non-LatinX white counterparts. This review encompasses literature which describes patient experience instruments that (1) evaluate LatinX experience, (2) have validated Spanish versions, or (3) measure language-concordant care experiences.

Methods

A scoping review of literature in Ovid Medline, CINAHL, and PsycINFO was conducted. Articles were excluded if they were not applicable to the health care industry, did not include a patient experience instrument, or did not include LatinX or Spanish-speaking individuals within their study population. Data extraction was performed for concepts measured, study size, population, health care setting, and languages validated.

Results

This review identified 224 manuscripts. Of these, 81 met full inclusion criteria and represented 60 unique instruments. These covered six categories: general patient experience (43%, n = 26/60), experiences of discrimination/mistrust (12%, n = 7/60), cultural factors (10%, n = 6/60), patient-provider relationship (10%, n = 6/60), and communication (8%, n = 5/60). The remaining instruments measured multiple categories (17%, n = 10/60). Just over one third of instruments (n = 24, 5 pediatric, 19 adult) were validated in Spanish and an additional 14 (23%) were validated in English alone. Finally, 4 (7%) instruments were identified which were developed for use in a language concordant setting.

Conclusion

Many instruments were identified which evaluate LatinX patient experience; however, none was both validated in Spanish and measured in all key categories of experience described above. Additionally, few instruments were developed for holistic evaluation of patient experience in pediatric or language concordant care settings.

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Data Availability

Charting data and/or variables may be made available if requested from the corresponding author.

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Acknowledgements

The authors would like to thank Todd Edwards and Kathleen Sie for their mentorship on this project and Sue Groshong from the Seattle Children’s Library for their assistance with the literature search.

Funding

This study was funded by the Excellence in Research New Investigator Award through the Seattle Children’s Research Institute (J.B-V.).

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Authors and Affiliations

  1. Department of Otolaryngology–Head and Neck Surgery, University of Washington School of Medicine, Seattle, WA, USA

    Allison Rollins, Grace Wandell, Sherise Epstein & Juliana Bonilla-Velez

  2. Division of Pediatric Otolaryngology, Seattle Children’s Hospital, 4800 Sand Point Way NE, Mail Stop OA.9.220, Seattle, WA, 98105, USA

    Juliana Bonilla-Velez

  3. Center for Clinical and Translational Research, Seattle Children’s Research Institute, Seattle, WA, USA

    Juliana Bonilla-Velez

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  1. Allison Rollins
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  2. Grace Wandell
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AR, abstract review, data extraction, data analysis, manuscript writing and editing; GW, project inception, search algorithm, abstract review, data analysis, manuscript writing and editing; SE, data analysis, manuscript editing critical for intellectual content; JBV, project inception, search algorithm, abstract review, manuscript writing and editing.

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Correspondence to Juliana Bonilla-Velez.

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Rollins, A., Wandell, G., Epstein, S. et al. Evaluating Patient and Family Experience Among Spanish-Speaking and LatinX Patients: a Scoping Review of Existing Instruments. J. Racial and Ethnic Health Disparities 10, 1878–1898 (2023). https://doi.org/10.1007/s40615-022-01371-x

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