Skip to main content

Advertisement

Log in

Racial/ethnic disparities in health-related quality of life and health status across pre-, early-, and mid-adolescence: a prospective cohort study

  • Published:
Quality of Life Research Aims and scope Submit manuscript

Abstract

Purpose

To examine (1) racial/ethnic disparities in health-related quality of life (HRQOL) and overall health status among Black, Latino, and White youth during adolescence; (2) whether socioeconomic status (SES) and family contextual variables influence disparities; and (3) whether disparities are consistent from pre- to early- to mid-adolescence.

Methods

A population sample of 4823 Black (1755), Latino (1812), and White (1256) youth in three US metropolitan areas was prospectively assessed in a longitudinal survey conducted on three occasions, in 5th, 7th, and 10th grades, when youth reported their HRQOL using the PedsQL™ short-form Total, Physical and Psychosocial scales and youth and parents separately reported on youth’s overall health status. Parents reported their education and household income to index SES, family structure, and use of English at home.

Results

Based on analysis conducted separately at each grade, marked racial/ethnic disparities were observed across all measures of HRQOL and health status, favoring White and disfavoring Black, and especially Latino youth. More strongly present in 5th and 7th grade, HRQOL disparities decreased by 10th grade. Most disparities between White and Black youth disappeared when adjusting for SES. However, even after adjusting for SES, family structure, and English use, overall health status disparities disfavoring Latino youth remained across all three assessments.

Conclusions

Racial/ethnic disparities in adolescent HRQOL and health are substantial. These disparities appear consistent from pre- to early-adolescence but diminish for HRQOL by mid-adolescence. As disparities appear influenced by SES and other family contextual variables differently in different racial/ethnic groups, efforts to reduce health disparities in youth should address culturally specific conditions impinging on health.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1

Similar content being viewed by others

Abbreviations

HRQOL:

Health-related quality of life

OHS:

Overall health status

PedsQL™:

Pediatric Quality of Life Inventory

SES:

Socioeconomic status

GLM:

General linear model

References

  1. Centers for Disease Control and Prevention, Division on Adolescent and School Health. (2018). Health disparities [Web page]. Retrieved October 25, 2018, from https://www.cdc.gov/healthyyouth/disparities/index.htm#1.

  2. Flores, G. American Academy of Pediatrics Committee on Pediatric Research (2010). Technical report-Racial and ethnic disparities in the health and health care of children. Pediatrics 125(4), e979-e1020.

    Article  PubMed  Google Scholar 

  3. Schuster, M. A., Elliott, M. N., Kanouse, D. E., Wallander, J. L., Tortolero, S. R., Ratner, J. A., et al. (2012). Racial and ethnic health disparities among fifth-graders in three cities. New England Journal of Medicine, 367(8), 735–745.

    Article  CAS  PubMed  Google Scholar 

  4. Wallander, J. L., Fradkin, C., Chien, A. T., Mrug, S., Banspach, S. W., Davies, S., et al. (2012). Racial/ethnic disparities in health-related quality of life and health in children are largely mediated by family contextual differences. Academic Pediatrics, 12(6), 532–538.

    Article  PubMed  Google Scholar 

  5. Bloom, B., Jones, L. I., & Freeman, G. (2013). Summary health statistics for US children: National Health Interview Survey, 2012. National Center for Health Statistics. Vital Health Statistics. 10(258).

  6. World Health Organization. (1948). Constitution of the World Health Organization. New York: World Health Organization. Retrieved February 27, 2018, from http://apps.who.int/gb/bd/PDF/bd47/EN/constitution-en.pdf.

  7. Healthy people 2020. Health-related quality of life and well-being [Web page]. Retrieved October 25, 2018, from https://www.healthypeople.gov/2020/about/foundation-health-measures/Health-Related-Quality-of-Life-and-Well-Being.

  8. Wallander, J. L. (2001). Theoretical and developmental issues in quality of life for children and adolescents. In H. M. Koot & J. L. Wallander (Eds.), Quality of life in children and adolescents (pp. 23–48). London: Brunner/Routledge.

    Google Scholar 

  9. Varni, J. W., Burwinkle, T. M., Seid, M., & Skarr, D. (2003). The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 3, 329–341.

    Article  PubMed  Google Scholar 

  10. Varni, J. W., Burwinkle, T. M., & Seid, M. (2006). The PedsQL TM 4.0 as a school population health measure: Feasibility, reliability, and validity. Quality of Life Research, 15(2), 203–215.

    Article  PubMed  Google Scholar 

  11. Flores, G., & Tomany-Korman, S. C. (2008). Racial and ethnic disparities in medical and dental health, access to care, and use of services in US children. Pediatrics, 121(3), e286–e298.

    Article  PubMed  Google Scholar 

  12. Flores, G., Bauchner, H., Feinstein, A. R., & Nguyen, U. D. T. (1999). The impact of ethnicity, family income, and parental education on children’s health and use of health services. American Journal of Public Health, 89, 1066–1071.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  13. Lieu, T. A., Newacheck, P., & McManus, M. A. (1993). Race, ethnicity, and access to ambulatory care among US adolescents. American Journal of Public Health, 83, 960–965.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  14. Shone, L. P., Dick, A. W., Brach, C., Kimminau, K. S., LaClair, B. J., Shenkman, E. A., et al. (2003). The role of race and ethnicity in the State Children’s Health Insurance Program (SCHIP) in four states: Are there baseline disparities and what they mean for SCHIP? Pediatrics, 112(suppl. E1), e521-e532.

    Google Scholar 

  15. Stevens, G. D. (2006). Gradients in the health status and developmental risks of young children: The combined influences of multiple social risk factors. Maternal and Child Health Journal, 10, 187–199.

    Article  PubMed  Google Scholar 

  16. Chen, E., Matthews, K. A., & Boyce, W. T. (2003). Socioeconomic differences in children’s health: How and why do these relationships change with age? Psychological Bulletin, 128, 295–329.

    Article  Google Scholar 

  17. Williams, D. R., & Mohammed, S. A. (2009). Discrimination and racial disparities in health: Evidence and needed research. Journal of Behavioral Medicine, 9, 39:20–47.

    Article  Google Scholar 

  18. Chen, E., Martin, A. D., & Matthews, K. A. (2006). Understanding health disparities: The role of race and socioeconomic status in children’s health. American Journal of Public Health, 96, 702–708.

    Article  PubMed  PubMed Central  Google Scholar 

  19. Windle, M., Grunbaum, J. A., Elliott, M., Tortolero, S. R., Berry, S., Gilliland, J., et al. (2004). Healthy Passages: A multilevel multimethod longitudinal study of adolescent health. American Journal of Preventive Medicine, 27(2), 164–172.

    Article  PubMed  Google Scholar 

  20. Varni, J. W., Seid, M., & Kurtin, P. S. (2001). The PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Medical Care, 39, 800–802.

    Article  CAS  Google Scholar 

  21. Chan, K. S., Mangione-Smith, R., Burwinkle, T. M., Rosen, M., & Varni, J. W. (2005). The PedsQL™: Reliability and validity of the short-form generic core scales and asthma module. Medical Care, 43(3), 256–265.

    Article  PubMed  Google Scholar 

  22. Limbers, C. A., Newman, D. A., & Varni, J. W. (2009). Factorial invariance of child self-report across race/ethnicity groups: A multigroup confirmatory factor analysis approach utilizing the PedsQL™ 4.0 Generic Core Scales. Annals of Epidemiology, 19, 575–581.

    Article  PubMed  Google Scholar 

  23. Bauman, L. J., Silver, E. J., & Stein, R. E. (2006). Cumulative social disadvantage and child health. Pediatrics, 117, 1321–1328.

    Article  PubMed  Google Scholar 

  24. Bramlett, M. D., & Blumberg, S. J. (2007). Family structure and children’s physical and mental health. Health Affairs, 26, 549–558.

    Article  PubMed  Google Scholar 

  25. Kohen, D. E., Brehaut, J. C., Garner, R. E., Miller, A. R., Lach, L. M., Klassen, A. F., & Rosenbaum, P. L. (2007). Conceptualizing childhood health problems using survey data: a comparison of key indicators. BMC Pediatrics, 7(1), 40.

    Article  PubMed  PubMed Central  Google Scholar 

  26. Kauffman, J. S., Cooper, R. S., & McGee, D. L. (1997). Socioeconomic status and health in blacks and whites: The problem of residual confounding and the resiliency of race. Epidemiology, 8, 621–628.

    Google Scholar 

  27. Williams, D. R. (1999). Race, socioeconomic status, and health: The added effects of racism and discrimination. Annals of the New York Academy of Science, 896, 173–188.

    Article  CAS  Google Scholar 

  28. Markham, C. M., Fleschler Peskin, M., Addy, R. C., Baumler, E. R., & Tortolero, S. R. (2009). Patterns of vaginal, oral, and anal sexual intercourse in an urban seventh-grade population. Journal of School Health, 79, 193–200.

    Article  PubMed  Google Scholar 

  29. Peña, J., Wyman, P., Brown, C., Matthieu, M., Olivares, T., Hartel, D., & Zayas, L. H. (2008). Immigration generation status and its association with suicide attempts, substance use, and depressive symptoms among Latino adolescents in the USA. Prevention Sciences, 9, 299–310.

    Article  Google Scholar 

  30. Jiang, Y., Perry, D. K., & Hesser, J. E. (2010). Adolescent suicide and health risk behaviors: Rhode Island’s 2007 youth risk behavior survey. American Journal of Preventive Medicine, 38, 551–555.

    Article  PubMed  Google Scholar 

  31. Springer, A., Lewis, K., Kelder, S., Fernandez, M., Barroso, C., & Hoelscher, D. (2010). Physical activity participation by parental language use in 4th, 8th, and 11th grade students in Texas. USA. Journal of Immigrant and Minority Health, 12, 69–78.

    Google Scholar 

  32. Koepke, S., & Denissen, J. J. (2012). Dynamics of identity development and separation–individuation in parent–child relationships during adolescence and emerging adulthood—a conceptual integration. Developmental Review, 32, 67–88.

    Article  Google Scholar 

  33. Wallander, J. L., & Koot, H. M. (2016). Quality of life in children: A critical examination of concepts, approaches, issues, and future directions. Clinical Psychology Review, 45, 131–142.

    Article  PubMed  Google Scholar 

  34. Koot, H. M., & Wallander, J. L. (Eds.). (2001). Quality of life in children and adolescents. London: Brunner/Routledge.

    Google Scholar 

  35. Szilagyi, P. G., & Schor, E. L. (1998). The health of children. Health Services Research, 33(pt 2), 1001–1039.

    CAS  PubMed  PubMed Central  Google Scholar 

  36. Healthy People.gov (2015). Healthy People 2020. Framework: The Vision, mission, and goals of Healthy People 2020. Retrieved February 27, 2018, from https://www.healthypeople.gov/sites/default/files/HP2020Framework.pdf.

  37. Seid, M., Varni, J. W., Cummings, L., & Schonlau, M. (2006). The impact of realized access to care on health-related quality of life: A two-year prospective cohort study of children in the California State Children’s Health Insurance Program. Journal of Pediatrics, 149, 354–361.

    Article  PubMed  Google Scholar 

  38. Sherman, A. (1997). Poverty matters: The cost of child poverty in America. Washington DC: Children’s Defense Fund.

    Google Scholar 

Download references

Acknowledgements

The Healthy Passages™ study was funded by the Centers for Disease Control and Prevention (Cooperative Agreements CCU409679, CCU609653, CCU915773, U48DP000046, U48DP000057, U48DP000056, U19DP002663, U19DP002664, and U19DP002665). The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the CDC. Dr. Fradkin was funded by a 2017–2018 Fulbright Scholar award. The contributions made to this research by study participants in the Birmingham, Houston, and Los Angeles areas, other Healthy Passages™ investigators, field teams at each site, and the CDC Division of Adolescent and School Health are gratefully acknowledged.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Jan L. Wallander.

Ethics declarations

Conflict of interest

The authors have no conflict of interest to disclose.

Additional information

Publisher’s Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Wallander, J.L., Fradkin, C., Elliott, M.N. et al. Racial/ethnic disparities in health-related quality of life and health status across pre-, early-, and mid-adolescence: a prospective cohort study. Qual Life Res 28, 1761–1771 (2019). https://doi.org/10.1007/s11136-019-02157-1

Download citation

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s11136-019-02157-1

Keywords

Navigation