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Lessons Learned to Building Stakeholder Engagement during the Initial Stages of Pragmatic Research Development and Implementation

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Abstract

Research does not occur in a vacuum. Effective stakeholder engagement occurs on several levels, including outside influence and cooperation inside the institution. Little guidance around designing and implementing pragmatic mental health research exists. The following paper outlines lessons learned during the initial stages of research design and implementation for a project focused on mental health treatment outcomes.

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References

  1. Concannon TW, Fuster M, Saunders T, Patel K, Wong JB, Leslie LK, et al. A systematic review of stakeholder engagement in comparative effectiveness and patient-centered outcomes research. J Gen Intern Med. 2014;29(12):1692–701 https://link.springer.com/article/10.1007%2Fs11606-014-2878-x.

    Article  Google Scholar 

  2. Domecq JP, Prutsky G, Elraiyah T, Wang Z, Nabhan M, Shippee N, Brito JP, Boehmer K, Hasan R, Firwana B, Erwin P, Eton D, Sloan J, Montori V, Asi N, Abu Dabrh AM, Murad MH Patient engagement in research: a systematic review. BMC Health Serv Res 2014;14:89. https://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-14-89

  3. Frank L, Basch E, Selby JV. Patient-Centered Outcomes Research Institute. The PCORI perspective on patient-centered outcomes research. JAMA. 2014;312(15):1513–4 https://jamanetwork.com/journals/jama/fullarticle/1901303.

    Article  CAS  Google Scholar 

  4. Harrison JD, Auerbach AD, Anderson W, Weiss R, Fagan M, Hanson C, et al. Patient stakeholder engagement in research: a narrative review to describe foundational principles and best practice activities. Health Expect. 2019;22(3):307–16. https://doi.org/10.1111/hex.12873.

    Article  PubMed  PubMed Central  Google Scholar 

  5. Hemphill R, Forsythe LP, Heckert AL, Amolegbe A, Maurer M, Carman KL, et al. What motivates patients and caregivers to engage in health research and how engagement affects their lives: qualitative survey findings. Health Expect. 2020;23(2):328–36. https://doi.org/10.1111/hex.12979.

    Article  PubMed  Google Scholar 

  6. Garland AF, Brookman-Frazee L. Therapists and researchers: advancing collaboration. Psych other Res. 2015;25(1):95–107 https://www.tandfonline.com/doi/full/10.1080/10503307.2013.838655.

    Google Scholar 

  7. Pandi-Perumal SR, Akhter S, Zizi F, Jean-Louis G, Ramasubramanian C, Edward Freeman R, et al. Project stakeholder management in the clinical research environment: how to do it right. Front Psych. 2015;6:71. https://doi.org/10.3389/fpsyt.2015.00071.

    Article  Google Scholar 

  8. Walker ER, Zahn R, Druss BG. Applying a model of stakeholder engagement to a pragmatic trial for people with mental disorders. Psychiatric Services (Washington, D.C.). 2018;69(11):1127–30. https://doi.org/10.1176/appi.ps.201800057.

    Article  Google Scholar 

  9. Witteman HO, Chipenda Dansokho S, Colquhoun H, Fagerlin A, Giguere AMC, Glouberman S, et al. Twelve lessons learned for effective research partnerships between patients, caregivers, clinicians, academic researchers, and other stakeholders. J Gen Intern Med. 2018;33:558–62. https://doi.org/10.1007/s11606-017-4269-6.

    Article  PubMed  PubMed Central  Google Scholar 

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Authors and Affiliations

  1. Cincinnati Children’s Hospital and Medical Center, Cincinnati, OH, USA

    Jennifer Combs, Drew Barzman, Rosalie Hemphill, Alexander Osborn, Michael Sorter & Reine Decker

  2. Division of Child and Adolescent Psychiatry, Cincinnati Children’s, 3333 Burnet Avenue, MLC 9009, Cincinnati, OH, 45229, USA

    Jennifer Combs

Authors
  1. Jennifer Combs
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  2. Drew Barzman
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  3. Rosalie Hemphill
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  4. Alexander Osborn
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  5. Michael Sorter
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  6. Reine Decker
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Correspondence to Jennifer Combs.

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All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

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Informed consent was obtained from all individual participants included in the study.

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Combs, J., Barzman, D., Hemphill, R. et al. Lessons Learned to Building Stakeholder Engagement during the Initial Stages of Pragmatic Research Development and Implementation. Psychiatr Q 92, 781–791 (2021). https://doi.org/10.1007/s11126-020-09848-w

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  • DOI: https://doi.org/10.1007/s11126-020-09848-w

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