Abstract
Transgender and gender diverse (TGD) youth experience significant risk for negative health outcomes, yet few studies exist that address TGD youth’s experiences of health care. This paper explores the equitable access and utilization of health care in a sample of TGD youth of diverse gender and racial/ethnic identities. Data for this analysis are from the TGD subsample (n = 1415) of the 2018 Survey of Today’s Adolescent Relationships and Transitions (START) Project. We assessed five health care experiences: being insured, having a current health care provider, being out to one’s provider, believing your provider was knowledgeable about transgender issues, and barriers to accessing care due to gender identity/expression. We examined the proportion of TGD youth who reported each of these outcomes and within-group differences by gender identity and race/ethnicity using descriptive statistics, logistic regression, and predicted probabilities. When differences were examined by gender identity, barriers to equitable care were consistently more present among transgender females than youth of other gender identities. There were few significant differences by race/ethnicity; however, dual referent models demonstrated barriers to equitable care were particularly evident among Black and Hispanic transgender women. We discuss these findings through the lens of intersectionality and highlight the importance of research and intervention work focused on reducing barriers to equitable care for TGD youth.
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The data that support the findings of this study are available from the corresponding author, MMJ, upon reasonable request.
References
Agénor, M. (2020). Future directions for incorporating intersectionality into quantitative population health research. American Journal of Public Health, 110(6), 803–806. https://doi.org/10.2105/ajph.2020.305610
Agénor, M., Pérez, A. E., Koma, J. W., Abrams, J. A., McGregor, A. J., & Ojikutu, B. O. (2019). Sexual orientation identity, race/ethnicity, and lifetime HIV testing in a national probability sample of US women and men: An intersectional approach. LGBT Health, 6(6), 306–318.
Andrzejewski, J., Pampati, S., Johns, M. M., Sheremenko, G., Lesesne, C., & Rasberry, C. N. (2020a). Sexual behaviors, referral to sexual health services, and use of sexual health services among transgender high school students. Journal of School Health, 90(5), 349–357. https://doi.org/10.1111/josh.12880
Andrzejewski, J., Pampati, S., Steiner, R. J., Boyce, L., & Johns, M. M. (2020b). Perspectives of transgender youth on parental support: qualitative findings from the Resilience and Transgender Youth Study. Health Education and Behavior, 1090198120965504. https://doi.org/10.1177/1090198120965504
Arayasirikul, S., & Wilson, E. C. (2019). Spilling the T on trans-Misogyny and microaggressions: An intersectional oppression and social process among trans women. Journal of Homosexuality, 66(10), 1415–1438. https://doi.org/10.1080/00918369.2018.1542203
Baral, S. D., Poteat, T., Strömdahl, S., Wirtz, A. L., Guadamuz, T. E., & Beyrer, C. (2013). Worldwide burden of HIV in transgender women: A systematic review and meta-analysis. The Lancet Infectious Diseases, 13(3), 214–222. https://doi.org/10.1016/s1473-3099(12)70315-8
Becasen, J. S., Denard, C. L., Mullins, M. M., Higa, D. H., & Sipe, T. A. (2019). Estimating the prevalence of HIV and sexual behaviors among the US transgender population: A systematic review and meta-analysis, 2006–2017. American Journal of Public Health, 109(1), e1–e8.
Ben, J., Cormack, D., Harris, R., & Paradies, Y. (2017). Racism and health service utilisation: A systematic review and meta-analysis. PLoS ONE, 12(12), e0189900.
Bowleg, L. (2008). When Black+ lesbian+ woman≠ Black lesbian woman: The methodological challenges of qualitative and quantitative intersectionality research. Sex Roles, 59(5–6), 312–325.
Braveman, P. (2006). Health disparities and health equity: Concepts and measurement. Annual Review of Public Health, 27, 167–194. https://doi.org/10.1146/annurev.publhealth.27.021405.102103
Chen, D., Hidalgo, M. A., Leibowitz, S., Leininger, J., Simons, L., Finlayson, C., & Garofalo, R. (2016). Multidisciplinary care for gender-diverse youth: A narrative review and unique model of gender-affirming care. Transgend Health, 1(1), 117–123. https://doi.org/10.1089/trgh.2016.0009
Clark, B. A., Veale, J. F., Townsend, M., Frohard-Dourlent, H., & Saewyc, E. (2018). Non-binary youth: Access to gender-affirming primary health care. Int J Transgend, 19(2), 158–169.
Cohen, R. A., Terlizzi, E. P., & Martinez, M. E. (2019) 'Health insurance coverage: Early release of estimates from the National Health Interview Survey, 2018'. Centers for Disease Control and Prevention, Atlanta, GA: National Center for Health Statistics.
Cole, E. R. (2009). Intersectionality and research in psychology. American Psychologist, 64(3), 170–180.
Commission on Social Determinants of Health. (2008). Closing the gap in a generation: Health equity through action on the social determinants of health. World Health Organization.
Curry, C. W., Felt, D., Beach, L. B., Ruprecht, M. M., Wang, X., & Phillips, G. L., 2nd. (2020). Lifetime asthma prevalence and correlates among US youths by sexual identity and race/ethnicity, 2009–2017. Am J Public Health, e1–e8. https://doi.org/10.2105/AJPH.2020.305664
Crenshaw, K. (1991). Mapping the margins: Intersectionality, identity politics, and violence against women of color. Stanford Law Rev, 43(6), 1241–1299.
de Vries, E., Kathard, H., & Muller, A. (2020). Debate: Why should gender-affirming health care be included in health science curricula? BMC Medical Education, 20(1), 51. https://doi.org/10.1186/s12909-020-1963-6
Dinno, A. (2017). Homicide rates of transgender individuals in the United States: 2010–2014. American Journal of Public Health, 107(9), 1441–1447. https://doi.org/10.2105/AJPH.2017.303878
Eiduson, R., Murchison, G. R., Agenor, M., Suarez, L., & Gordon, A. R. (2022). Sexual healthcare experiences of nonbinary young adults. Culture, Health, and Sexuality, 24(10), 1319–1335.
GenIUSS Group (2013) 'Gender-related measures overview'. The Williams Institute. Available at: https://williamsinstitute.law.ucla.edu/wp-content/uploads/GenIUSS-Gender-related-Question-Overview.pdf
Genoff, M. C., Zaballa, A., Gany, F., Gonzalez, J., Ramirez, J., & Jewell, S. T., et al. (2016). Navigating language barriers: A systematic review of patient navigators’ impact on cancer screening for limited English proficient patients. Journal of General Internal Medicine, 31(4), 426–434. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4803699/pdf/11606_2015_Article_3572.pdf
Gridley, S. J., Crouch, J. M., Evans, Y., Eng, W., Antoon, E., Lyapustina, M., et al. (2016). Youth and caregiver perspectives on barriers to gender-affirming health care for transgender youth. Journal of Adolescent Health, 59(3), 254–261. https://doi.org/10.1016/j.jadohealth.2016.03.017
Grossman, A. H., & D’Augelli, A. R. (2006). Transgender youth: Invisible and vulnerable. Journal of Homosexuality, 51(1), 111–128. https://doi.org/10.1300/J082v51n01_06
Healthy People 2030. (n.d.). Access to Health Services. https://health.gov/healthypeople/priority-areas/social-determinants-health/literature-summaries/access-health-services
Hudson, K. D. (2018). (Un)doing transmisogynist stigma in health care settings: Experiences of ten transgender women of color. J Prog Hum Serv, 30(1), 69–87. https://doi.org/10.1080/10428232.2017.1412768
Hughes, R. A., Heron, J., Sterne, J. A. C., & Tilling, K. (2019) Accounting for missing data in statistical analyses: Multiple imputation is not always the answer. International Journal of Epidemiology, 1294–1304.
Johns, M. M., Beltran, O., Armstrong, H. L., Jayne, P. E., & Barrios, L. C. (2018). Protective factors among transgender and gender variant youth: A systematic review by socioecological level. The Journal of Primary Prevention, 39(3), 263–301.
Johns, M. M., Lowry, R., Andrzejewski, J., Barrios, L. C., Demissie, Z., McManus, T., et al. (2019). Transgender identity and experiences of violence victimization, substance use, suicide risk, and sexual risk behaviors among high school students — 19 states and large urban school districts, 2017. MMWR, 68, 67–71.
Krell, E. C. (2017). Is transmisogyny killing trans women of color? Black trans feminisms and the exigencies of white femininity. Transgender Studies Quarterly, 4(2), 226–242.
Lennon, E., & Mistler, B. J. (2014). Cisgenderism. Transgender Stud Q, 1(1–2), 63–64.
Movement Advancement Project. (2022). Healthcare Laws and Policies. Retrieved September 2, 2022 from https://www.lgbtmap.org/equality-maps/healthcare_laws_and_policies
McConnell, E. A., Janulis, P., Phillips II, G., Truong, R., & Birkett, M. (2018). Multiple minority stress and LGBT community resilience among sexual minority men. Psychol Sex Orientat Gend Divers, 5(1), 1. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5846479/pdf/nihms922347.pdf
Naylor, K., Ward, J., & Polite, B. N. (2012). Interventions to improve care related to colorectal cancer among racial and ethnic minorities: A systematic review. Journal of General Internal Medicine, 27(8), 1033–1046. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3403155/pdf/11606_2012_Article_2044.pdf
Pampati, S., Andrzejewski, J., Steiner, R., Rasberry, C. N., Adkins, S. H., Lesesne, C. A., et al. (2020). “We deserve care and we deserve competent care”: Qualitative perspectives from transgender youth in the Southeast. J Pedatr Nurs, 56, 54–59.
Paradies, Y., Truong, M., & Priest, N. (2014). A systematic review of the extent and measurement of healthcare provider racism. Journal of General Internal Medicine, 29(2), 364–387. https://doi.org/10.1007/s11606-013-2583-1
Reisner, S. L., Greytak, E. A., Parsons, J. T., & Ybarra, M. L. (2015a). Gender minority social stress in adolescence: Disparities in adolescent bullying and substance use by gender identity. Journal of Sex Research, 52(3), 243–256. https://doi.org/10.1080/00224499.2014.886321
Reisner, S. L., Vetters, R., Leclerc, M., Zaslow, S., Wolfrum, S., Shumer, D., et al. (2015b). Mental health of transgender youth in care at an adolescent urban community health center: A matched retrospective cohort study. Journal of Adolescent Health, 56(3), 274–279. https://doi.org/10.1016/j.jadohealth.2014.10.264
Rider, G. N., McMorris, B. J., Gower, A. L., Coleman, E., & Eisenberg, M. E. (2018). Health and care utilization of transgender and gender nonconforming youth: A population-based study. Pediatrics, 141(3), e20171683.
Ryan, C. (2010). Engaging families to support lesbian, gay, bisexual, and transgender Youth: The Family Acceptance Project. Prev Res, 17(4), 11–13.
Serano, J. (2016). Whipping girl: A transsexual woman on sexism and the scapegoating of femininity. Hachette UK.
Srivastava, A., Davis, J. P., & Goldbach, J. T. (2020). Gender and sexual identities predicting patterns of co-occurring health risks among sexual minority youth: A latent class analysis approach. Prevention Science, 1–9.
Stephens, S. C., Bernstein, K. T., & Philip, S. S. (2011). Male to female and female to male transgender persons have different sexual risk behaviors yet similar rates of STDs and HIV. AIDS and Behavior, 15(3), 683–686. https://doi.org/10.1007/s10461-010-9773-1
Stern, M. J., Fordyce, E., Carpenter, R., Viox, M. H., Michaels, S., Harper, C., et al. (2020a). Evaluating the data quality of a national sample of young sexual and gender minorities recruited using social media: The influence of different design formats. Social Science Computer Review. https://doi.org/10.1177/0894439320928240
Stern, M. J., Fordyce, E., Hansen, C., Heim Viox, M., Michaels, S., Schlissel, A., et al. (2020b). Social media recruitment for a web survey of sexual and gender minority youth: An evaluation of methods used and resulting sample diversity. LGBT Health, 7(8), 448–456.
Stotzer, R. L. (2017). Data sources hinder our understanding of transgender murders. American Journal of Public Health, 107(9), 1362–1363. https://doi.org/10.2105/AJPH.2017.303973
Tanner, A. E., Reboussin, B. A., Mann, L., Ma, A., Song, E., Alonzo, J., & Rhodes, S. D. (2014). Factors influencing health care access perceptions and care-seeking behaviors of immigrant Latino sexual minority men and transgender individuals: Baseline findings from the HOLA intervention study. Journal of Health Care for the Poor and Underserved, 25(4), 1679–1697. https://doi.org/10.1353/hpu.2014.0156
Vance, S. R., Jr., Halpern-Felsher, B. L., & Rosenthal, S. M. (2015). Health care providers’ comfort with and barriers to care of transgender youth. Journal of Adolescent Health, 56(2), 251–253. https://doi.org/10.1016/j.jadohealth.2014.11.002
Viner, R. M., Ozer, E. M., Denny, S., Marmot, M., Resnick, M., Fatusi, A., & Currie, C. (2012). Adolescence and the social determinants of health. The Lancet, 379(9826), 1641–1652. https://doi.org/10.1016/s0140-6736(12)60149-4
World Health Organization. (2012). Making Health services adolescent friendly. Switzerland.
World Health Organization. (2016). Availability, accessibility, acceptability, quality infographic. https://www.who.int/gender-equity-rights/knowledge/aaaq-infographic/en/. Accessed 8/12/2019.
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Jack Andrzejewski was supported by the National Institute on Drug Abuse (NIDA), National Institutes of Health (NIH) under Award Number T32DA023356. The work of all other authors was supported by their salaries at their respective organizations.
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Johns, M.M., Gordon, A.R., Andrzejewski, J. et al. Differences in Health Care Experiences among Transgender and Gender Diverse Youth by Gender Identity and Race/Ethnicity. Prev Sci 24, 1128–1141 (2023). https://doi.org/10.1007/s11121-023-01521-5
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DOI: https://doi.org/10.1007/s11121-023-01521-5