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Distress of inpatients with terminal cancer in Japanese palliative care units: from the viewpoint of spirituality

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Abstract

A qualitative study was conducted in an attempt to improve our understanding of the spiritual distress of terminally ill cancer patients in Japan. The subjects were inpatients at four approved palliative care units in Japan. The patients were interviewed and they expressed their own experiences in which spirituality was considered to be identifiable. Literal records of the interviews were analyzed using constant comparative analyses as proposed in relation to the grounded theory approach. The analysis included 11 inpatients and a variety of expressions of distress were obtained. After the conditions of the subjects were evaluated in order to search for common factors related to distress, consciousness of the gap between the patient's aspirations and the present situation were found to cause gap-induced distress. Distress was classified into three categories: distress due to the gap between the present situation and how the individual wanted to live, how the individual wished to die, and the individual's wish to maintain relations with others. The aspirations causing the gap were then interpreted from the viewpoint of spirituality as "anchors in life" for Japanese patients with terminal cancer. It was also revealed that in patients who possessed pictures of how they wished to die as their "anchors in life" and who were in a severe physical condition, distress increased and they became confused after their physical symptoms were relieved following admission to PCU.

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Acknowledgements

We thank all participants and the staff of the PCUs who made the study possible. We acknowledge the contributions of Dr. Tatsuya Morita, Dr. Taketoshi Ozawa and Dr. Noriko Yamamoto who provided supervision and valuable support to accomplish this study. The study was supported by a Grant-in-Aid for Scientific Research (C) from the Japan Society for the Promotion of Science (no. 12672314), and by a grant from the Mitsubishi Foundation.

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Authors and Affiliations

  1. Department of Adult Nursing/Terminal and Long-term Care Nursing, School of Health Sciences and Nursing, Graduate School of Medicine, The University of Tokyo, 7-3-1 Hongo, Bunkyo-Ku, 113-0033, Tokyo, Japan

    Masako Kawa, Etsuko Maeyama & Yuka Imamura

  2. Department of Psychiatric Nursing, School of Health Sciences and Nursing, Graduate School of Medicine, The University of Tokyo, 7-3-1 Hongo, Bunkyo-Ku, 113-0033, Tokyo, Japan

    Mami Kayama

  3. Department of Adult Nursing, St. Luke's College of Nursing, 10-1 Akashi-cho, Chuo-ku, 104-0044, Tokyo, Japan

    Noriko Iba

  4. Department of Social Work, Graduate School of Health Sciences, Tokai University, Bouseidai, Isehara, 259-1193, Kanagawa, Japan

    Hisayuki Murata

  5. Toyo Eiwa Society for Human Science, The Graduate School of Toyo Eiwa University, 5-14-40 Roppongi, Minato-Ku, 106-8507, Tokyo, Japan

    Tikayo Koyama

  6. Department of Adult and Elderly Nursing, School of Nursing, Ishikawa Prefectural Nursing University, Tsu-7-1 Aza-nakanuma, Takamatsu, Kahoku-gun, 929-1212, Ishikawa, Japan

    Michiyo Mizuno

Authors
  1. Masako Kawa
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  2. Mami Kayama
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  3. Etsuko Maeyama
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  4. Noriko Iba
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  5. Hisayuki Murata
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  6. Yuka Imamura
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  7. Tikayo Koyama
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  8. Michiyo Mizuno
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Correspondence to Masako Kawa.

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Kawa, M., Kayama, M., Maeyama, E. et al. Distress of inpatients with terminal cancer in Japanese palliative care units: from the viewpoint of spirituality. Support Care Cancer 11, 481–490 (2003). https://doi.org/10.1007/s00520-003-0460-x

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  • DOI: https://doi.org/10.1007/s00520-003-0460-x

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