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Krankheitsbewältigung bei systemischem Lupus erythematodes

Overcoming disease in systemic lupus erythematosus

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Zusammenfassung

Hintergrund

Die mit multiplen Symptomkonstellationen einhergehende, chronisch verlaufende Autoimmunerkrankung systemischer Lupus erythematodes (SLE) beeinträchtigt in erheblichem Maße die Lebensqualität der Betroffenen. In den zurückliegenden 10 Jahren wurde die Prognose durch intensiveres Monitoring und neue Therapien deutlich verbessert. Noch immer sind aber nichtmedikamentöse Strategien zur Symptomkontrolle, Selbstwirksamkeit und Bewältigung für die Betroffenen zu wenig etabliert.

Zielsetzung

Möglichkeiten und Grenzen der nichtmedikamentösen Strategien werden in diesem Beitrag erörtert und Vorschläge für zukünftige Versorgung und Forschung vorgelegt.

Ergebnisse

Erste Interventionsstudien mit den Instrumenten der Psychoedukation, psychosozialer Maßnahmen oder der Verhaltenstherapie weisen konsistent darauf hin, dass Bedürfnisse und Erwartungen der Erkrankten an Hilfestellung und Unterstützung durch Ärzte und professionelle Pflege adäquat und nachhaltig beantwortet werden und Bewältigungsfertigkeiten sowie die gesundheitsbezogene Lebensqualität zunehmen können.

Abstract

Background

Systemic lupus erythematosus (SLE) is a chronic inflammatory autoimmune disease affecting a broad range of different organ systems and, hence, presenting with multiple symptomatic domains, which considerably reduces the quality of life of patients. Within the last decade the prognosis of the disease has been significantly improved by novel therapies and intensive monitoring; however, non-pharmaceutical strategies for symptom control, self-efficacy and coping abilities for those affected are still insufficiently established.

Objective

This article describes the possibilities and limitations of non-pharmaceutical strategies and makes suggestions for future treatment and research.

Results

Preliminary interventional studies using psychoeducational, psychosocial and behavioral psychotherapeutic approaches, have consistently shown that the needs and expectations of patients related to help and support by doctors and professional care can be adequately and sustainably met. In addition, coping abilities and the quality of life can be increased.

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Einhaltung ethischer Richtlinien

Interessenkonflikt. M. Schneider und M. Haupt geben an, dass kein Interessenkonflikt besteht.

Dieser Beitrag beinhaltet keine Studien an Menschen oder Tieren.

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Authors and Affiliations

  1. Universitätsklinikum Düsseldorf, Moorenstr. 5, 40225, Düsseldorf, Deutschland

    M. Schneider

  2. Neuro-Centrum Düsseldorf, Düsseldorf, Deutschland

    M. Haupt

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  1. M. Schneider
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  2. M. Haupt
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Correspondence to M. Schneider.

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Schneider, M., Haupt, M. Krankheitsbewältigung bei systemischem Lupus erythematodes. Z Rheumatol 74, 591–596 (2015). https://doi.org/10.1007/s00393-014-1556-z

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  • DOI: https://doi.org/10.1007/s00393-014-1556-z

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