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Negative emotions and quality of life of parents with children diagnosed with anorectal malformations

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Abstract

Purpose

To investigate the anxiety, depression, stress, and quality of life of parents with children diagnosed with anorectal malformations.

Methods

68 parents participated in the study and completed the unified Self-Rating Anxiety Scale, Self-Rating Depression Scale, Perceived Stress Scale, and the World Health Organization Quality of Life-BREF.

Results

Compared with the Chinese reference values, parents in our study had higher scores on anxiety and depression and lower scores on the psychological and environmental domain of the World Health Organization Quality of Life-BREF. Parents who live in rural areas, pay for medical treatment out of pocket, and have multiple children are prone to feel anxious. Parents with multiple children also scored worse in the domains of physiology, psychology, social relationships, and general quality of life assessment. They scored significantly lower in the domains of psychology and social relationships when parents had a low education level. Parents of children who had undergone staged operations got lower scores on the general quality of life assessment.

Conclusions

Parents of children with anorectal malformations have varying degrees of psychological and emotional problems that require attention in the clinic.

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Data availability

The datasets used during the current study are available from the corresponding author on reasonable request.

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Acknowledgements

We gratefully acknowledge the support of the Program for Youth Innovation in Future Medicine, Chongqing Medical University (grant number: W0125) and General Program for Clinical Medical Research of National Clinical Research Center for Child Health and Disorders (grant number: NCRCCHD-2022-GP-03).

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Authors and Affiliations

  1. Department of General & Neonatal Surgery, Ministry of Education Key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Pediatrics, National Clinical Research Center for Child Health and Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, 401122, People’s Republic of China

    Benjuan Ying, Fang Wu, Yi Wang, Wei Feng, Jinping Hou & Rong Liu

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  1. Benjuan Ying
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  2. Fang Wu
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  3. Yi Wang
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  4. Wei Feng
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  6. Rong Liu
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Contributions

BY: Conceived the study, collected the data, interpreted the data, wrote the first draft, and revised the manuscript. FW: Wrote the first draft, analyzed the data, and revised the manuscript. YW: Collected and analyzed the data, and revised the manuscript. WF and JH: Conceived the study, interpreted the data, and revised the manuscript. RL: Conceived the study, revised the manuscript and she is accountable for all aspects of the work. All authors have read and approved the manuscript for publication.

Corresponding author

Correspondence to Rong Liu.

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Ying, B., Wu, F., Wang, Y. et al. Negative emotions and quality of life of parents with children diagnosed with anorectal malformations. Pediatr Surg Int 39, 190 (2023). https://doi.org/10.1007/s00383-023-05469-z

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