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Dementie: een moeilijk te vertellen diagnose

Een systematisch literatuuronderzoek

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Huisarts en wetenschap Aims and scope

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Janson J, Derksen E, Vernooij-Dassen M, Lucassen P, Olde Rikkert M. Dementie: een moeilijk te vertellen diagnose. Een systematisch literatuuronderzoek. Huisarts Wet 2006;49(11):538-43.Inleiding Door de toenemende incidentie van dementie krijgen huisartsen steeds meer te maken met de diagnostiek van deze aandoening. Doel van dit literatuuronderzoek is in kaart te brengen wat de houding en werkwijze van huisartsen is ten aanzien van het meedelen van de diagnose dementie en wat de ervaringen van patiënten en mantelzorgers hiermee zijn.Methode Wij zochten met behulp van Cinahl, Psychinfo en MEDLINE naar artikelen en trokken de daarin genoemde referenties na. Twee onderzoekers beoordeelden de artikelen aan de hand van twee criteria: ze moesten over het meedelen van de diagnose dementie in de eerste lijn gaan en Nederlands- of Engelstalig zijn.Resultaat Na selectie van 477 artikelen bleven er 25 over. De sneeuwbalmethode voegde nog 4 artikelen toe. Huisartsen bleken terughoudend in het meedelen van de diagnose; patiënten en mantelzorgers ervoeren dit ook. Verder bleek er een verschil te bestaan tussen de opvattingen van artsen en hun praktisch handelen bij het meedelen van de diagnose.Beschouwing Door scholing zou de huisarts meer zekerheid en inzicht kunnen krijgen in het stellen en meedelen van de diagnose dementie en zijn rol daarin. Er is helaas maar weinig onderzoek gedaan dat primair is gericht op het meedelen van de diagnose dementie en de effecten daarvan in de eerste lijn.

Abstract

Janson J, Derksen E, Vernooij-Dassen M, Lucassen P, Olde Rikkert M. Dementia: difficulties in disclosing the diagnosis. A systematic review. Huisarts Wet 2006;49(11):538-43.Background General practitioners (GPs) more often will have to solve the diagnostic issues in dementia, because of it’s increasing incidence. In this review of current literature, we aim to describe the attitudes and practice of general practitioners in disclosing the diagnosis of dementia, as well as the experiences of patients and carers with this primary care disclosure of dementia.Methods We searched Cinahl, Psychinfo and MEDLINE databases. Two researchers judged the articles for the inclusion and exclusion criteria: papers had to present empirical data on disclosing dementia diagnosis, had to deal with primary care and had to be written in English or Dutch.Results 25 from the 477 articles found could be included. By tracking references 4 additional articles could be included. GPs turned out to be reluctant in disclosing dementia diagnosis, which was confirmed by patients’ and carers’ experiences. GPs’ attitudes on the one hand and their daily practice on disclosing dementia on the other differed substantially.Discussion By teaching GPs in dementia diagnostics and disclosure techniques, they could feel more confident and gain competency in disclosing the diagnosis. Unfortunately, research primary aimed at assessing the effects of different techniques of dementia disclosure in general practice is scarce.

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    Jolanda Janson

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  1. Jolanda Janson
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  2. Els Derksen
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  3. Myrra Vernooij-Dassen
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  4. Peter Lucassen
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  5. Marcel Olde Rikkert
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Corresponding author

Correspondence to Jolanda Janson.

Additional information

UMCN St Radboud, Alzheimer Centrum Nijmegen, Kenniscentrum Geriatrie, Postbus 9101, 6500 HB Nijmegen: mw. J. Janson, psycholoog; prof.dr. M.G.M. Olde Rikkert, klinisch geriater; afdeling Kwaliteit van Zorg: mw. E. Derksen, verpleegwetenschapster; mw. dr. M. Vernooij-Dassen, senior-onderzoeker; afdeling Huisartsgeneeskunde: dr. P.L.B.J. Lucassen, huisarts.

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Janson, J., Derksen, E., Vernooij-Dassen, M. et al. Dementie: een moeilijk te vertellen diagnose. HUWE 49, 769–776 (2006). https://doi.org/10.1007/BF03084929

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