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What counselling do patients with ankylosing spondylitis receive? results of a questionnaire survey

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Abstract

This questionnaire survey of 71 patients with ankylosing spondylitis (members of the National Ankylosing Spondylitis Society of the UK) revealed that a substantial proportion of patients were apparently not told of several aspects of their illness by their doctors such as likely cause(s), familial clustering, role of HLA tissue typing and diet (appropriately). Only a small percentage (4.2%) were counselled to actively seek screening for close family members. As HLA B27 presence is not diagnostic of ankylosing spondylitis, and it cannot be prevented or arrested even if diagnosed at onset or early stages, routine screening of close family members cannot be justified at present.

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Authors and Affiliations

  1. Department of Rheumatology, South Manchester University Hospitals NHS Trust, Withington Hospital, Room 17, Pavilion 10, M20 2LR, Nell Lane, West Didsbury, UK

    B. Pal (Consultant Rheumatologist)

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  1. B. Pal
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Pal, B. What counselling do patients with ankylosing spondylitis receive? results of a questionnaire survey. Clin Rheumatol 17, 306–308 (1998). https://doi.org/10.1007/BF01451010

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  • DOI: https://doi.org/10.1007/BF01451010

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