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Planning with elderly outpatients for contingencies of severe illness

A survey and clinical trial

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Abstract

The authors examined whether elderly patients would report positive or adverse emotional effects after their doctor, during a routine clinic visit, asked them to begin planning for future serious illness. Seventy-four patients, 65 years old or older, who were followed at a university hospital medical clinic were randomly allocated to an intervention or a control group. The intervention was a detailed discussion with the patient’s physician of the patient’s wishes about decision making and life support therapy in the event of extreme or incapacitating illness. A blinded interviewer then asked all consenting patients how they felt about the physician, the clinic visit, and their medical care. Intervention-group patients were questioned about their reactions to the physician and the discussion. Four important findings emerged: 1) Some emotional uncertainty was created when doctors raised these questions unexpectedly: one patient became visibly upset during the discussion, and three who gave consent to be interviewed afterward said that the discussion had made them wonder about their health. Nonetheless, all patients who received the intervention and completed the study were pleased that their doctor had asked. 2) Only 44% of all consenting patients reported having discussed these issues previously; only one had done so with a doctor. 3) 97% of patients who responded wanted to be kept informed by the doctor about their medical situations in times of serious illness. 4) Patients’ replies to specific questions about life-sustaining therapy in the event of their own severe illnesses were quite variable. During routine clinic visits doctors can encourage most elderly patients to begin specific planning for potential severe illnesses.

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References

  1. Lidz CW, Meisel A, Osterweis M, Holden JL, Marx JH, Munetz MR. Barriers to informed consent. Ann Intern Med 1983;99:539–43.

    PubMed  CAS  Google Scholar 

  2. Meisel A, Roth LH. What we do and do not know about informed consent: an overview of the empirical studies. JAMA 1981;246:2473–7.

    Article  PubMed  CAS  Google Scholar 

  3. Wanzer SH, Adeistein SJ, Cranford RE, et al. The physician’s responsbility toward hopelessly ill patients. N Engl J Med 1984;310:955–9.

    Article  PubMed  CAS  Google Scholar 

  4. Angell M. Respecting the autonomy of competent patients (editorial). N Engl J Med 1984;310:115–6.

    Article  Google Scholar 

  5. Scheiderman LJ, Arras JD. Counseling patients to counsel physicians in the event of patient incompetence. Ann Intern Med 1985;102:693–8.

    Google Scholar 

  6. Barondess JA. Prolonging what? Ethical issues in terminal care (editorial). JAMA 1983;249:2073–4.

    Article  PubMed  CAS  Google Scholar 

  7. Lo B, Jonsen AR. Cinical decisions to limit treatment. Ann Intern Med 1980;93:764–8.

    PubMed  CAS  Google Scholar 

  8. Gordon M, Hurowitz E. Cardiopulmonary resuscitation in the elderly. J Am Geriatr Soc 1984;32:930–4.

    PubMed  CAS  Google Scholar 

  9. McCullough LB. Medical care for patients with diminished competence: an ethical analysis. J Am Geriatr Soc 1984;32:150–3.

    PubMed  CAS  Google Scholar 

  10. Lo B, McLeod GA, Saika G. Patient attitudes to discussing life sustaining treatment. Arch Intern Med 1986;146:1613–5.

    Article  PubMed  CAS  Google Scholar 

  11. Shmerling Rh, Bedell SE, Lilienfeld A, Delbanco TL. Patients’ acceptance of outpatient discussions about cardiopulmonary resuscitation (abstr). Clin Res 1986;34:837A.

  12. Bedell SE, Delbanco TL. Choices about cardiopulmonary resuscitation in the hospital: when do physicians talk with patients? N Engl J Med 1984;310:1090–3.

    Article  Google Scholar 

  13. Evans AL, Brody BA. The do-not-resuscitate order in teaching hospitals. JAMA 1985;253:2236–9.

    Article  PubMed  CAS  Google Scholar 

  14. Fusgen I, Summa JD. How much sense is there in an attempt to resuscitate an aged person? Gerontology 1978;24:37–45.

    Article  PubMed  CAS  Google Scholar 

  15. Wagner A. Cardiopulmonary resuscitation in the aged. A prospective survey. N Engl J Med 1984;310:1129–30.

    Article  PubMed  CAS  Google Scholar 

  16. Starr TJ, Uhlmann RF, Pearlman RA. Quality of life factors in resuscitation decisions (abstr). Clin Res 1985;33:45A.

    Google Scholar 

  17. Brody DS. The patient’s role in clinical decision making. Ann Intern Med 1980;93:718–22.

    PubMed  CAS  Google Scholar 

  18. Waitzkin H, Stoeckle JD. The communication of information about illness. Adv Psychosomat Med 1972;8:180–215.

    CAS  Google Scholar 

  19. Karnofsky DA, Burrhenal JH. The clinical evaluation of chemotherapeutic agents in cancer. In: Macleod C. Medical evaluation of cancer chemotherapeutic agents. New York: Columbia University Press. 1949;195.

    Google Scholar 

  20. Aitken RC. Measurement of feelings using visual analogue scales. Proc R Soc Med 1969;62:989–93.

    PubMed  CAS  Google Scholar 

  21. Bond A, Lader M. The use of analogue scales in rating subjective feelings. Br J Med Psych 1974;47:211–8.

    Google Scholar 

  22. Padilla GV, Dresant C, Grant MM, Melter G, Lepsett J, Herde F. Quality of life instrument for patients with cancer. Res Nurs 1983;6:117–26.

    CAS  Google Scholar 

  23. Louis Harris and Associates. Cited in: Making health care decisions. Volume 2. Empirical studies of informed consent. Washington, DC, US Government Printing Office, 1982; 17.

    Google Scholar 

  24. Wagner A. Cardiopulmonary resuscitation in the aged: a prospective study. N Engl N Med 1984;310:1129–30.

    Article  CAS  Google Scholar 

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Received from West Virginia University School of Medicine, Morgantown, West Virginia. Dr. Finucane is currently at the Johns Hopkins University School of Medicine and the Francis Scott Key Medical Center. Baltimore, Maryland.

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Finucane, T.E., Shumway, J.M., Powers, R.L. et al. Planning with elderly outpatients for contingencies of severe illness. J Gen Intern Med 3, 322–325 (1988). https://doi.org/10.1007/BF02595788

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