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Evaluation of Quality of Life in Crohn’s Disease and Ulcerative Colitis: What Is Health-Related Quality of Life?

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Crohn's Disease and Ulcerative Colitis

Abstract

While good Quality of Life (QoL) has long been a policy goal in the treatment of inflammatory bowel disease (IBD), adequate definition and measurement of it have remained elusive. The term “quality of life” is used to describe the general well-being of individuals in the field of healthcare. QoL should not be confused with “standard of living,” a term defined primarily by income. Instead, standard indicators of QoL include not only wealth and employment, but also the built environment, physical and mental health, education, recreation and leisure time, and social belonging. Health-related quality of life (HRQoL) is a subjective measure of a person’s physical and psychological well-being and represents a patient’s assessment of how a particular disease or intervention has affected their life.

“We should not worry about how long we live but rather how satisfactorily;

For in order to live a long time, you only require fate,

But living satisfactorily requires understanding. Life is long if it is full.”

Lucius Annaeus Seneca (4BC–65 AD)

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Authors and Affiliations

  1. Department of Pediatrics, Hvidovre Hospital, Hvidovre, Denmark

    Katrine Carlsen M.D.

  2. Danish Centre for eHealth & Epidemiology, Department of Gastroenterology, North Zealand Hospital, Frederikssund, Denmark

    Pia Munkholm M.D. & Johan Burisch M.D., Ph.D.

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  1. Katrine Carlsen M.D.
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  2. Pia Munkholm M.D.
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  3. Johan Burisch M.D., Ph.D.
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Correspondence to Pia Munkholm M.D. .

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Editors and Affiliations

  1. Inflammatory Bowel Disease Center, Department of Gastroenterology and Hepatology, Charité Medical School—Humboldt-University of Berlin, Berlin, Germany

    Daniel C. Baumgart

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Carlsen, K., Munkholm, P., Burisch, J. (2017). Evaluation of Quality of Life in Crohn’s Disease and Ulcerative Colitis: What Is Health-Related Quality of Life?. In: Baumgart, D. (eds) Crohn's Disease and Ulcerative Colitis. Springer, Cham. https://doi.org/10.1007/978-3-319-33703-6_25

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