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The Patient-Centered Electronic Health Record and Patient Portals

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Consumer Health Informatics

Part of the book series: Health Informatics ((HI))

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Abstract

Personal health records (PHR), particularly the patient portal, are touted as instrumental to the future of medical care and health management. The patient portal could be a powerful means to engage patients and empower them to manage their own health. Studies show that patients are interested in patient portals, specifically in the self-management and administrative aspects. However, some studies also show little evidence to support claims of improvement in health outcomes, cost measures, or health care utilization. This chapter presents an overview of personal health records and patient portals, beginning with the evolution of these technologies. We next cover the data and functionality components of personal health records and patient portals. Then, we discuss the context in which personal health records and patient portals are situated, including political forces, Meaningful Use, user access and usability, and data issues. Finally, throughout the chapter we consider future directions for personal health records and patient portals.

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Notes

  1. 1.

    Levels here should not be mistaken for the Levels of Consumer Health Informatics services introduced in Chaps. 3, 4, 5, and 6.

References

  1. Ancker JS, Barron Y, Rockoff ML, Hauser D, Pichardo M, Szerencsy A, Calman N. Use of an electronic patient portal among disadvantaged populations. J Gen Intern Med. 2011;26(10):1117–23. doi: 10.1007/s11606-011-1749-y.

    Article  PubMed Central  PubMed  Google Scholar 

  2. Appelboom G, Camacho E, Abraham ME, Bruce SS, Dumont EL, Zacharia BE, D’Amico R, Slomian J, Reginster JY, Bruyère O, Connolly Jr ES. Smart wearable body sensors for patient self-assessment and monitoring. Arch Public Health. 2014;72(1):28. doi: 10.1186/2049-3258-72-28.

    Article  PubMed Central  PubMed  Google Scholar 

  3. Archer N, Fevrier-Thomas U, Lokker C, McKibbon MA, Strauss SE. Personal health records: a scoping review. JAMIA. 2011;18(4):512–22. doi: 10.1136/amiajnl-2011-000105.

    Google Scholar 

  4. Bonato P. Advances in wearable technology and its medical applications. In: Engineering in medicine and biology society (EMBC), 2010 annual international conference of the IEEE. IEEE; 2010. pp. 2021–24

    Google Scholar 

  5. Cimino JJ, Li J, Mendona EA, Sengupta S, Patel VL, Kushniruk AW. An evaluation of patient access to their electronic medical records via the world wide web. In: Proceedings of the AMIA symposium. American Medical Informatics Association; 2000. p. 151

    Google Scholar 

  6. Duggan M. Cell phone activities 2013. Pew Research Internet Project. 2013. Retrieved from http://www.pewinternet.org/2013/09/19/cell-phone-activities-2013/. Last viewed 27 July 2015.

  7. Emont S. Measuring the impact of patient portals. What the literature tells us. California Health Foundation, 2011. Oakland. http://www.chcf.org/~/media/MEDIA%20LIBRARY%20Files/PDF/M/PDF%20MeasuringImpactPatientPortals.pdf. Last viewed 27 July 2015.

  8. Goel MS, Brown TL, Williams A, Cooper AJ, Hasnain-Wynia R, Baker DW. Patient reported barriers to enrolling in a patient portal. JAMIA. 2011;18 Suppl 1:i8–12. doi: 10.1136/amiajnl-2011-000473.

    PubMed Central  PubMed  Google Scholar 

  9. Goel MS, Brown TL, Williams A, Hasnain-Wynia R, Thompson JA, Baker DW. Disparities in enrollment and use of an electronic patient portal. J Gen Intern Med. 2011;26(10):1112–6. doi: 10.1007/s11606-011-1728-3.

    Article  PubMed Central  PubMed  Google Scholar 

  10. Goldzweig CL, Orshansky G, Paige NM, Towfigh AA, Haggstrom DA, Miake-Lye I, Beroes JM, Shekelle PG. Electronic patient portals: evidence on health outcomes, satisfaction, efficiency, and attitudes: a systematic review. Ann Intern Med. 2013;159(10):677–87. doi: 10.7326/0003-4819-159-10-201311190-00006.

    Article  PubMed  Google Scholar 

  11. Gibbons MC, Wilson RF, Samal L, Lehmann CU, Dickersin K, Lehmann HP, Aboumatar H, Finkelstein J, Shelton E, Sharma R, Bass EB. Consumer health informatics: results of a systematic evidence review and evidence based recommendations. Transl Behav Med. 2011;1(1):72–82. doi: 10.1007/s13142-011-0016-4.

    Article  PubMed Central  PubMed  Google Scholar 

  12. Hall AK, Bernhardt JM, Dodd V. Older adults use of online and offline sources of health information and constructs of reliance and self-efficacy for medical decision making. J Health Commun. 2015;20(7):751–8. doi: 10.1080/10810730.2015.1018603.

    Article  PubMed  Google Scholar 

  13. Halamka JD, Mandl KD, Tang PC. Early experiences with personal health records. JAMIA. 2008;15(1):1–7.

    PubMed Central  PubMed  Google Scholar 

  14. Haggstrom DA, Saleem JJ, Russ AL, Jones J, Russell SA, Chubler NR. Lessons learned from usability testing of the VA’s personal health record. JAMIA. 2011;18 Suppl 1:i13–7. doi: 10.1136/amiajnl-2010-000082.

    PubMed Central  PubMed  Google Scholar 

  15. Goldberg L, Lide B, Lowry S, Massett HA, O’Connell T, Preece J, Quesenberry M, Shneiderman B. Usability and accessibility in consumer health informatics current trends and future challenges. Am J Prev Med. 2011;40(5) Suppl 2:187–97. doi: 10.1016/j.amepre.2011.01.009.

    Google Scholar 

  16. Luque AE, van Keken A, Winters P, Keefer MC, Sanders M, Fiscella K. Barriers and facilitators of online patient portals to personal health records among persons living with HIV: formative research. JMIR Res Protoc. 2013;2(1):e8. doi: 10.2196/resprot.2302.

    Article  PubMed Central  PubMed  Google Scholar 

  17. Nazi KM, Hogan TP, Wagner TH, McInnes DK, Smith BM, Haggstrom D, Chumbler NR, Gifford AL, Charters KG, Saleem JJ, Weingardt KR, Fischetti LF, Weaver FM. Embracing a health services research perspective on personal health records: lessons learned from the VA My HealtheVet system. J Gen Intern Med. 2010;25 Suppl 1:67–7. doi: 10.1007/s11606-009-1114-6.

    Google Scholar 

  18. Committee on the Recommended Social, Behavioral Domains, and Institute of Medicine Measures for Electronic Health Records. Capturing social and behavioral domains in electronic health records: Phase 1. books.nap.edu/openbook.php?record_id=18709 (2014). last visited 27 July 2015.

  19. Ralston JD, Coleman K, Reid RJ, Handley MR, Larson EB. Patient experience should be part of meaningful-use criteria. Health Aff. 2010;29(4):607–13. doi: 10.1377/hlthaff.2010.0113.

    Article  Google Scholar 

  20. Szolovits P, Doyle J, Long WJ, Kohane I, Pauker SG. Guardian Angel: patient-centered health information systems. groups.csail.mit.edu/medg/projects/ga/manifesto/GAtr.html, 1994.

  21. Segall N, Saville JG, L’Engle P, Carlson B, Wright MC, Schulman K, Tcheng JE. Usability evaluation of a personal health record. In: Proceedings AMIA 2011 annual symposium. American Medical Informatics; 2011. pp. 1233–42.

    Google Scholar 

  22. Swan M. Emerging patient-driven health care models: an examination of health social networks, consumer personalized medicine and quantified self-tracking. Int J Environ Res Public Health. 2009;6(2):492–525. doi: 10.3390/ijerph6020492.

    Article  PubMed Central  PubMed  Google Scholar 

  23. Tang PC, Lansky D. The missing link: bridging the patient-provider health information gap. Health Aff. 2005;24(5):1290–5.

    Article  Google Scholar 

  24. Zarcadoolas C, Vaughon WL, Czaja SJ, Jevy L, Rockoff ML. Consumers’ perceptions of patient-accessible electronic medical records. JMIR. 2013;15(8):e168. doi: 10.2196/jmir.2507.

    PubMed Central  PubMed  Google Scholar 

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Acknowledgements

This work was supported in part by the National Institutes of Health, National Library of Medicine (NLM) Biomedical and Health Informatics Training Program at the University of Washington (Grant Nr. T15LM007442). The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.

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Vizer, L.M., Hall, A.K. (2016). The Patient-Centered Electronic Health Record and Patient Portals. In: Consumer Health Informatics. Health Informatics. Springer, Cham. https://doi.org/10.1007/978-3-319-19590-2_14

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  • DOI: https://doi.org/10.1007/978-3-319-19590-2_14

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-19589-6

  • Online ISBN: 978-3-319-19590-2

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