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Why PROMs Are Hard: People

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Patient-Reported Outcomes and Experience

Abstract

PROMs and PREMs measure people’s perceptions . They depend on people responding to the surveys. Response rates depend on both the contact rate and the cooperation rate. Barriers at any stage can prevent responses. In this chapter we address several potential barriers relating to the people involved. The barriers and enablers are illustrated in a case study of the English General Practice Patients Survey . Innovation spread depends on diffusion and dissemination, and also where people lie on the innovativeness spectrum (innovators, early adopters, early majority, late majority, and laggards). Innovation is difficult and needs communication, capacity, and perseverance. Studies of change management have identified things that facilitate success and common errors. Behaviour change requires people to have the capability, opportunity, and motivation to do what is needed. Plans typically use the Plan-Do-Study-Act (PDSA) cycle and specific, measurable, assignable, realistic, and time-bound (SMART) objectives.

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Notes

  1. 1.

    GPPS covers: local GP services (8 questions), making an appointment (12 questions), last appointment (9 questions), overall experience (1 question), own health (10 questions), when GP practice is closed (4 questions), NHS dentistry (4 questions), COVID-19 (2 questions), and demographic details (11 questions).

References

  1. Kohut A, Keeter S, Doherty C, et al. Assessing the representativeness of public opinion surveys. Washington DC: Pew Research Centre; 2012.

    Google Scholar 

  2. GP Patient Survey 2021: Technical Annexe. London, Ipsos MORI 2021 (https://www.gp-patient.co.uk/Downloads/2021/GPPS_2021_Technical_Annex_PUBLIC.pdf. Accessed 13 July 2021.

  3. Stone E. Digital exclusion and health inequalities: briefing paper. London: Good Things Foundation; 2021.

    Google Scholar 

  4. Lloyds Bank UK. Consumer digital index, 6th edn. Lloyds; 2021.

    Google Scholar 

  5. Kontos E, Blake KD, Chou W-YS, et al. Predictors of e-health usage: insights on the digital divide from the health information national trends survey 2012. J Med Internet Res. 2014;16:e172.

    Google Scholar 

  6. Global Web Index. London: GWI; 2021.

    Google Scholar 

  7. Rogers E. Diffusion of innovations. 5th ed. New York NY: Free Press; 2003.

    Google Scholar 

  8. Moore G. Crossing the chasm: harnessing and selling disruptive products to mainstream customers, 3rd edn. New York, NY: Harper Collins; 2014.

    Google Scholar 

  9. Alderwick H, Roberton R, Appleby J, Dunn P, Maguire D. Better value in the NHS: the role of changes in clinical practice. London: The Kings Fund; 2015.

    Google Scholar 

  10. Kotter J. Leading change. Harvard Business School Press; 1996.

    Google Scholar 

  11. Michie S, van Stralen M, West R. The behaviour change wheel: a new method for characterising and designing behaviour change interventions. Implement Sci. 2011;6:42.

    Article  Google Scholar 

  12. Kahneman D. Thinking, fast and slow. Penguin; 2012.

    Google Scholar 

  13. Thaler R, Sunstein C. Nudge: the final edition. Penguin; 2021.

    Google Scholar 

  14. Michie S, Richardson M, Johnston M, et al. The behavior change technique taxonomy (v1) of 93 hierarchically clustered techniques: building an international consensus for the reporting of behavior change interventions. Ann Behav Med. 2013;46(1):81–95.

    Article  Google Scholar 

  15. Deming WE. Out of the crisis. Boston: MIT CAES; 1982.

    Google Scholar 

  16. Doran G. There’s a SMART way to write management’s goals and objectives. Manag Rev. 1981;70(11):35–6.

    Google Scholar 

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Correspondence to Tim Benson .

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Benson, T. (2022). Why PROMs Are Hard: People. In: Patient-Reported Outcomes and Experience. Springer, Cham. https://doi.org/10.1007/978-3-030-97071-0_4

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  • DOI: https://doi.org/10.1007/978-3-030-97071-0_4

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  • Print ISBN: 978-3-030-97070-3

  • Online ISBN: 978-3-030-97071-0

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