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Desired assistance versus care received for postpartum depression: access to care differences by race

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Abstract

One in seven women who have a baby will experience postpartum depression. Although there are many treatments for postpartum depression, many women do not receive assistance. When left untreated, this condition can have a deleterious affect on the woman’s health/mental health, the child’s cognitive, psychological, emotional and social development, the marital relationship and ability to contribute to society. This study examined 45 women’s self-reported desire for PPD care and ability to obtain to these services in Erie County, New York. Results showed differences in desired care by race, differences in access to care by race and revealed the lack of PPD care in general.

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Acknowledgment

Special appreciation is given to Fantastic Sam’s for donating gift certificates to study participants. This project was support by the Buffalo State College Research Foundation.

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Correspondence to Kimberley Zittel-Palamara.

Appendix

Appendix

General information

  • Age ___________ Number of people in household ________

  • Race/Ethnicity: ______Prefer not to answer

    • _____African-American/Black _____Native American/Indigenous

    • _____Latino/Hispanic _____Caucasian/White

    • _____Asian American _____Other__________________________

  • Please check all insurances that you presently have ____Prefer not to answer

    • _____Private health insurance _____Medicare _____Medicaid _____Other

  • Annual Salary _____Prefer not to answer

    • ______Below $12,000

    • ______$12,000–$30,000

    • ______$30,000–$50,000

    • ______$50,000–$70,000

    • ______$70,000–$100,000

    • ______Over $100,000

  • Residential Area: ___ Urban ___Suburban ___Rural

  • Religion: ________________________________

    • o Do you find strength in your religion?

      • _____No _____Yes _____Not sure ______Prefer not to answer

    • o Have you felt depression symptoms after previous pregnancies? _______Yes _______No

      • ▪ If yes, how many pregnancies have you had? ________

      • ▪ If yes, how many times have you experienced depressed symptoms after delivery? _______

      • ▪ What length of time did your longest episode last? __________

  • Number of Children: _____________

  • How many child(ren) did you have when you were first diagnosed with PPD depression? ______________

  • Did you have children after you first experienced depression symptoms after delivery?

    • _____No ______Yes ______Currently pregnant

  • Had you been diagnosed with any of the following prior to experiencing PPD?

    • _____Depression _____Obsessive Compulsive Disorder

    • _____Anxiety _____Manic Depression/Bipolar

    • _____PTSD _____Other:___________________________

  • Were you taking an antidepressant or other mental health mediation prior to becoming pregnant?

    • _____No ______Yes ______Not sure

    • o If yes, what medications? __________________________________________

    • _______________________________________________________________

    • o If yes, was the antidepressant or other mental health medication discontinued when you became pregnant?

      • _____No ______Yes ______Not sure

      • ▪ If yes, did your symptoms return during your pregnancy?

        • _____No ______Yes ______Not sure

      • ▪ If yes, how many months pregnant were you when your symptoms returned? ____

      • ▪ If yes, did you start to take the medication again during pregnancy?

        • _____No ______Yes ______Not sure

        • • If yes, at what month did you restart the medication? _______

    • o If yes, how long after you gave birth was your medication started again? ____

      • ▪ Was it the same medication you were taking prior to pregnancy?

        • _____No ______Yes _______Not sure

      • ▪ If not, why? _________________________________________________

      • _____________________________________________________________

      • _____________________________________________________________

      • ▪ What medications were you prescribed instead? ____________________

      • _____________________________________________________________

To the best of your knowledge have any of the following blood relatives ever discussed symptoms of depression after delivering a child?

  • _____Mother

  • _____Sister

  • _____Aunt

  • _____Female cousin

  • _____Grandmother

  • _____Great grandmother

  • _____Other blood relative_____________________________________________________

  • _____None that I am aware of

ID: ____________page 3

Access to postpartum depression care

  • What areas of PPD care do you believe to be important for you to feel better? (Please check all that apply)

    • _____Psychiatric care _____Pediatrician

    • _____Primary care physician _____Spiritual assistance/direction

    • _____OB/GYN care _____Support group (online)

    • _____Hospital inpatient _____Support group (in person)

    • _____Midwife care _____Individual counseling

    • _____Social Worker _____Medication

    • _____Psychologist _____Other:_________________________

  • What areas of PPD care do you/did you receive? (Please check all that apply)

    • _____Psychiatric care _____Pediatrician

    • _____Primary care physician _____Spiritual assistance/direction

    • _____OB/GYN care _____Support group (online)

    • _____Hospital inpatient _____Support group (in person)

    • _____Midwife care _____Individual counseling

    • _____Social Worker _____Medication

    • _____Psychologist _____Other:_________________________

  • How would you describe your ability to get PPD care? (Only check one)

    • _____ Excellent _____ Fair

    • _____ Good _____ Poor

  • Do you need PPD assistance now?

    • _____No ______Yes ______Not sure

  • Do you/did you have difficulty getting PPD care?

    • _____No ______Yes ______Not sure

    • o If yes, please identify what made/makes it difficult: (Check all that apply)

      • _____ Not sure who to speak to about how I was/am feeling

      • _____ Education about postpartum depression

      • _____ Tried to find resources but could not

      • _____ Lack of referral to appropriate resources

      • _____ Postpartum depression symptoms made/makes it difficult to take action

      • _____ Comments from health care professionals that “this is normal”

      • _____ Pressure from family and friends saying things like “Just get over the baby blues”, “it is normal, you are fine”

      • _____ Cost of care

      • _____ Insurance limitations

      • _____ Transportation difficulties

      • _____ Health limitations

      • _____ Child care difficulties

      • _____ Fear that child/ren would be removed from the home

      • _____ Other (describe) ______________________________________

  • How did you get linked to the postpartum depression that you receive now?

    • __________________________________________________________________________________

    • __________________________________________________________________________________

  • Do you wish to have/you had spiritual or religious guidance as you are/were going through postpartum depression?

    • _____No _____Yes _____Not sure _____prefer not to answer

    • o If yes, what kind of spiritual or religious guidance would (have) you like(d)?

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Zittel-Palamara, K., Rockmaker, J.R., Schwabel, K.M. et al. Desired assistance versus care received for postpartum depression: access to care differences by race. Arch Womens Ment Health 11, 81–92 (2008). https://doi.org/10.1007/s00737-008-0001-1

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