Joao Pedro Barros
ABSTRACT
The prevalence of chronic diseases is increasing worldwide alongside with comorbidities and morbidity in modern societies. End Stage Renal Disease (ESRD), as a chronic disease, needs patients to adapt to a whole new daily life situation due to its complex therapeutic regimen. Developments in mHealth have been an answer for many challenges that patients face, providing tools for helping and supporting patient's disease self-management. The aim of this study is to identify relevant mobile apps provided for ESRD Patients, verify which one is closer to provide patient needs in terms of disease self-management, supporting and monitoring their therapeutics, and assess it in terms of functionality and usability. After a literature review, a mobile app which supports ESRD self-management was selected and assessed regarding its functionality and usability by applying the Think Aloud (TA) method and the System Usability Score (SUS). The target population were healthcare professionals with expertise in ESRD. The assessment was performed in two different moments: with the app original version and after an interface redesign with a mockup development. The obtained results show an increase in the SUS score, from 64,25 to 73 and better outcomes in the TA evaluation, with users referring a “better interactivity with the app functionalities”, and that “it is easy to use”.
- A. S. Levey , “Definition and classification of chronic kidney disease: A position statement from Kidney Disease: Improving Global Outcomes (KDIGO),” 2005. Accessed: Jul. 17, 2020. [Online]. Available: www.kdigo.org.Google Scholar
- M. Dąbrowska-Bender, G. Dykowska, W. Żuk, M. Milewska, and A. Staniszewska, “The impact on quality of life of dialysis patients with renal insufficiency,” Patient Prefer. Adherence, vol. 12, pp. 577–583, Apr. 2018, doi: 10.2147/PPA.S156356.Google ScholarCross Ref
- L. Whitehead and P. Seaton, “The effectiveness of self-management mobile phone and tablet apps in long-term condition management: A systematic review,” J. Med. Internet Res., vol. 18, no. 5, 2016, doi: 10.2196/jmir.4883.Google ScholarCross Ref
- K. Lambert, J. Mullan, K. Mansfield, and P. Owen, “Should We Recommend Renal Diet–Related Apps to Our Patients? An Evaluation of the Quality and Health Literacy Demand of Renal Diet–Related Mobile Applications,” J. Ren. Nutr., vol. 27, no. 6, pp. 430–438, 2017, doi: 10.1053/j.jrn.2017.06.007.Google ScholarCross Ref
- C. J. Diamantidis and S. Becker, “Health information technology (IT) to improve the care of patients with chronic kidney disease (CKD),” 2014. Accessed: Jul. 17, 2020. [Online]. Available: www.facebook.com/nationalkidneyfoundation.Google Scholar
- S. W. Ong , “Integrating a smartphone–based self–management system into usual care of advanced CKD,” Clin. J. Am. Soc. Nephrol., vol. 11, no. 6, pp. 1054–1062, 2016, doi: 10.2215/CJN.10681015.Google ScholarCross Ref
- K. Singh , “Patients’ and Nephrologists’ Evaluation of Patient-Facing Smartphone Apps for CKD.,” Clin. J. Am. Soc. Nephrol., vol. 14, no. 4, pp. 523–529, Apr. 2019, doi: 10.2215/CJN.10370818.Google ScholarCross Ref
- F. Barbabella, M. G. Melchiorre, S. Quattrini, R. Papa, and G. Lamura, “How can eHealth improve care for people with multimorbidity in Europe?,” 2016.Google Scholar
- Q. H. Grundy, Z. Wang, and L. A. Bero, “Challenges in Assessing Mobile Health App Quality: A Systematic Review of Prevalent and Innovative Methods,” Am. J. Prev. Med., vol. 51, no. 6, pp. 1051–1059, 2016, doi: 10.1016/j.amepre.2016.07.009.Google ScholarCross Ref
- S. R. Steinhubl, E. D. Muse, and E. J. Topol, “The emerging field of mobile health HHS Public Access,” Sci Transl Med, vol. 7, no. 283, pp. 283–286, 2015, doi: 10.1126/scitranslmed.aaa3487.The.Google ScholarCross Ref
- A. Sobrinho, L. D. da Silva, A. Perkusich, M. E. Pinheiro, and P. Cunha, “Design and evaluation of a mobile application to assist the self-monitoring of the chronic kidney disease in developing countries.,” BMC Med. Inform. Decis. Mak., vol. 18, no. 1, p. 7, Jan. 2018, doi: 10.1186/s12911-018-0587-9.Google ScholarCross Ref
- A. Bonner , “Evaluating the prevalence and opportunity for technology use in chronic kidney disease patients: A cross-sectional study,” BMC Nephrol., vol. 19, no. 1, pp. 4–11, 2018, doi: 10.1186/s12882-018-0830-8.Google ScholarCross Ref
- I. A. Scott, P. Scuffham, D. Gupta, T. M. Harch, J. Borchi, and B. Richards, “Going digital: A narrative overview of the effects, quality and utility of mobile apps in chronic disease self-management,” Aust. Heal. Rev., vol. 44, no. 1, pp. 62–82, 2019, doi: 10.1071/AH18064.Google ScholarCross Ref
- J. K. Stevenson , “eHealth interventions for people with chronic kidney disease.,” Cochrane database Syst. Rev., vol. 8, no. 8, p. CD012379, Aug. 2019, doi: 10.1002/14651858.CD012379.pub2.Google Scholar
- A. Noor, A. Banerjee, M. F. Ahmad, and M. Nazim Uddin, “An IoT based mHealth Platform for Chronic Kidney Disease Patients,” 2019, doi: 10.1109/ICASERT.2019.8934565.Google ScholarCross Ref
- Y. Yang, H. Chen, H. Qazi, and P. P. Morita, “Intervention and evaluation of mobile health technologies in management of patients undergoing chronic dialysis: Scoping review,” JMIR mHealth uHealth, vol. 8, no. 4, 2020, doi: 10.2196/15549.Google Scholar
- S. D. Kosa , “Nutritional Mobile Applications for CKD Patients: Systematic Review,” Kidney Int. Reports, vol. 4, no. 3, pp. 399–407, 2019, doi: 10.1016/j.ekir.2018.11.016.Google ScholarCross Ref
- N. Oliva-Damaso, E. Oliva-Damaso, J. C. Rodriguez-Perez, and J. Payan, “Improved nephrology referral of chronic kidney disease patients: Potential role of smartphone apps,” Clin. Kidney J., vol. 12, no. 6, pp. 767–770, 2019, doi: 10.1093/ckj/sfz115.Google ScholarCross Ref
- N. Oliva-Damaso , “Impact of a phone app on nephrology referral,” Clin. Kidney J., vol. 12, no. 3, pp. 427–432, 2019, doi: 10.1093/ckj/sfy105.Google ScholarCross Ref
- C. F. El Khoury, M. Karavetian, R. J. G. Halfens, R. Crutzen, D. El Chaar, and J. M. G. A. Schols, “Dietary application for the management of patients with hemodialysis: A formative development study,” Healthc. Inform. Res., vol. 25, no. 4, pp. 262–273, 2019, doi: 10.4258/hir.2019.25.4.262.Google ScholarCross Ref
- N. Doyle, M. Murphy, L. Brennan, A. Waugh, M. McCann, and G. Mellotte, “The ‘Mikidney’ smartphone app pilot study: Empowering patients with Chronic Kidney Disease.,” J. Ren. Care, vol. 45, no. 3, pp. 133–140, Sep. 2019, doi: 10.1111/jorc.12281.Google ScholarCross Ref
- J. G. R. de Oliveira, J. E. V. Filho, and G. B. da Silva, “Renal health - a new tool for chronic kidney disease application development and a proposal for interventional study,” Heal. 2018 - 11th Int. Conf. Heal. Informatics, Proceedings; Part 11th Int. Jt. Conf. Biomed. Eng. Syst. Technol. BIOSTEC 2018, vol. 5, no. Biostec, pp. 261–265, 2018, doi: 10.5220/0006533302610265.Google Scholar
- L. C. S. Pinto , “Development and Validation of an Application for Follow-up of Patients Undergoing Dialysis: NefroPortátil,” J. Ren. Nutr., vol. 30, no. 4, pp. 51–57, 2020, doi: 10.1053/j.jrn.2019.03.082.Google ScholarCross Ref
- S. W. Ong , “Integrating a Smartphone-Based Self-Management System into Usual Care of Advanced CKD.,” Clin. J. Am. Soc. Nephrol., vol. 11, no. 6, pp. 1054–1062, Jun. 2016, doi: 10.2215/CJN.10681015.Google ScholarCross Ref
- Y.-L. Lee, Y.-Y. Cui, M.-H. Tu, Y.-C. Chen, and P. Chang, “Mobile health to maintain continuity of patient-centered care for chronic kidney disease: Content analysis of apps,” J. Med. Internet Res., vol. 20, no. 4, 2018, doi: 10.2196/10173.Google Scholar
- K. Singh , “Patients’ and nephrologists’ evaluation of patient-facing smartphone apps for CKD,” Clin. J. Am. Soc. Nephrol., vol. 14, no. 4, pp. 523–529, 2019, doi: 10.2215/CJN.10370818.Google ScholarCross Ref
- R. A. Lewis, M. Lunney, C. Chong, and M. Tonelli, “Identifying Mobile Applications Aimed at Self-Management in People With Chronic Kidney Disease,” Can. J. Kidney Heal. Dis., vol. 6, 2019, doi: 10.1177/2054358119834283.Google Scholar
- A. B. Siddique , “Mobile apps for the care management of chronic kidney and end-stage renal diseases: Systematic search,” J. Med. Internet Res., vol. 21, no. 9, 2019, doi: 10.2196/12604.Google Scholar
- Y.-L. Lee, Y.-Y. Cui, and P. Chang, “A Content Analysis of Mobile Apps for Chronic Kidney Disease Patient Care: Searching in English and Chinese.,” Stud. Health Technol. Inform., vol. 245, p. 1232, 2017.Google Scholar
- J. Chen, L. Wu, and S. Chou, “Effects of Journaling Dietary Intake App on the Health Outcomes of Chronic Kidney Disease Stage 3B-5,” in 2016 49th Hawaii International Conference on System Sciences (HICSS), Jan. 2016, pp. 3379–3388, doi: 10.1109/HICSS.2016.421.Google ScholarDigital Library
- J. Campbell and J. Porter, “Dietary mobile apps and their effect on nutritional indicators in chronic renal disease: A systematic review,” Nephrology, vol. 20, no. 10, pp. 744–751, 2015, doi: 10.1111/nep.12500.Google ScholarCross Ref
- K. Havas, A. Bonner, and C. Douglas, “Self-management support for people with chronic kidney disease: Patient perspectives,” J. Ren. Care, vol. 42, no. 1, pp. 7–14, Mar. 2016, doi: 10.1111/jorc.12140.Google ScholarCross Ref
- A. I. Martins, A. F. Rosa, A. Queirós, A. Silva, and N. P. Rocha, “European Portuguese Validation of the System Usability Scale (SUS),” in Procedia Computer Science, Jan. 2015, vol. 67, pp. 293–300, doi: 10.1016/j.procs.2015.09.273.Google ScholarCross Ref
- A. C. De Barros, R. Leitão, and J. Ribeiro, “Design and evaluation of a mobile user interface for older adults: Navigation, interaction and visual design recommendations,” Procedia Comput. Sci., vol. 27, no. Dsai 2013, pp. 369–378, 2013, doi: 10.1016/j.procs.2014.02.041.Google ScholarCross Ref
- E. V. L. M. R. Weir, Henrich's Principles and Practice of Dialysis, Fifth edit. 2017.Google Scholar
- U. S. D. of Health, H. Services, and others, “Healthy people 2010,” http//www. Heal. gov/healthypeople/Document/HTML/Volume1, 2001.Google Scholar
- mHealth in End Stage Renal Disease Self-management: A Usability study
Recommendations
Features and Effects of Information Technology-Based Interventions to Improve Self-Management in Chronic Kidney Disease Patients: a Systematic Review of the Literature
Slowing down the progression of chronic kidney disease (CKD) and its adverse health outcomes requires the patient's self-management and attention to treatment recommendations. Information technology (IT)---based interventions are increasingly being used ...
Design features and health outcomes of mHealth applications for patient self-management of asthma: a systematic review: mHealth apps for asthma self-management
ACSW '22: Proceedings of the 2022 Australasian Computer Science WeekDespite the potential of mobile health (mHealth) apps to provide patients with an effective means to self-manage asthma, to date, little is known about the key design features and health outcomes brought by such apps. Therefore, this study aims to ...
Improving Self-diet Management of Chronic Kidney Disease Patients Through Chatbots
Human Aspects of IT for the Aged Population. Technology in Everyday LivingAbstractThe purpose of this study is to focus on patients with chronic kidney disease mainly. Through technological services and education, the LINE APP platform is used to build a chatbot for intervention so that patients with kidney disease can use the ...
Comments