Mona Y. Alqassim
Katie A. Siek
Maria K. Wolters
ABSTRACT
Researchers use Asynchronous Remote Communities (ARC) to reach out to target populations who may find it hard to meet in person, or make time for telephone interviews. So far, ARC studies have been conducted using closed and secure groups on Facebook, because most participants are active members of this social network. However, it is not clear how participants' Facebook usage might affect their engagement with an ARC study. In this paper, we report a secondary analysis of a recent ARC study of women who had experienced at least one miscarriage that focused on their information and social support needs. We find participants tend to be comfortable with seeking emotional support on Facebook, and even those who say they rarely post to Facebook engage with most group activities. We discuss implications for choosing platforms for ARC studies.
- Nazanin Andalibi and Andrea Forte. 2018. Announcing Pregnancy Loss on Facebook: A Decision-Making Framework for Stigmatized Disclosures on Identified Social Network Sites. Proceedings of the ACM SIGCHI Conference on Human Factors in Computing Systems (CHI 2018) March (2018). Google Scholar
Digital Library
- Clare Bellhouse, Meredith J Temple-smith, and Jade E Bilardi. 2018. "It ' s just one of those things people don 't seem to talk about ... " women ' s experiences of social support following miscarriage : a qualitative study. (2018), 1--9.Google Scholar
- K. Cassie Kresnye, Juan F. Maestre, Ben Jelen, Mona Y. Alqassim, Maria K. Wolters, and Katie A. Siek. 2019. Lessons Learned from Conducting Group-Based Research on Facebook. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems - CHI '19.Google Scholar
- Haley MacLeod, Ben Jelen, Annu Prabhakar, Lora Oehlberg, Katie Siek, and Kay Connelly. 2017. A Guide to Using Asynchronous Remote Communities (ARC) for Researching Distributed Populations. EAI Endorsed Transactions on Pervasive Health and Technology 3 (07 2017), 152898.Google Scholar
- Juan F Maestre, Haley Macleod, Ciabhan L Connelly, Julia C Dunbar, Jordan Beck, Katie A Siek, and Patrick C Shih. 2018. Defining Through Expansion : Conducting Asynchronous Remote Communities ( ARC ) Research with Stigmatized Groups. (2018). Google ScholarDigital Library
- Annu Sible Prabhakar, Lucia Guerra-Reyes, Vanessa M. Kleinschmidt, Ben Jelen, Haley MacLeod, Kay Connelly, and Katie A. Siek. 2017. Investigating the Suitability of the Asynchronous, Remote, Community-based Method for Pregnant and New Mothers. Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems - CHI '17 (2017), 4924--4934. Google ScholarDigital Library
Index Terms
- Facebook for Support versus Facebook for Research: The Case of Miscarriage
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Announcing Pregnancy Loss on Facebook: A Decision-Making Framework for Stigmatized Disclosures on Identified Social Network Sites
CHI '18: Proceedings of the 2018 CHI Conference on Human Factors in Computing SystemsPregnancy loss is a common experience that is often not disclosed in spite of potential disclosure benefits such as social support. To understand how and why people disclose pregnancy loss online, we interviewed 27 women in the U.S. who are social media ...
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