ABSTRACT
The main problem with remote monitoring of cardiac device patients relates to inefficient communication. This is because patients and clinicians are separated in space and time. In the SCAUT project (2014--2018) we experiment with asynchronous interaction and explore how different types of patient-generated data can improve collaboration. The types of data that patients generate using the SCAUT patient app includes symptom experiences (categories/audio/numeric values), context (activity level/audio), medication list and travel information. We find that it is very important to consider how the data that patients enter can become useful for patients and clinicians simultaneously.
- Andersen, T.O., Bansler, J.P., Kensing, F., and Moll, J. 2017. From Prototype to Product: Making Participatory Design of mHealth Commercially Viable. In A.M. Kanstrup, A. Bygholm, P. Bertelsen and C. Nøhr, eds., Participatory Design Health Information Technology. IOS Press, 95--112.Google Scholar
- Andersen, T.O., Bjørn, P., Kensing, F., and Moll, J. 2011. Designing for collaborative interpretation in telemonitoring: Re-introducing patients as diagnostic agents. International Journal of Medical Informatics 80, 8, e112--e126.Google ScholarCross Ref
- Grudin, J. 1988. Why CSCW applications fail: problems in the design and evaluation of organizational interfaces. In Proceedings of the conference on Computer-supported cooperative work (CSCW '88), 85--93. Google ScholarDigital Library
- Oudshoorn, N. 2008. Diagnosis at a distance: the invisible work of patients and healthcare professionals in cardiac telemonitoring technology. Sociology of health & illness 30, 2, 272--288.Google Scholar
- Ricci, R.P., Morichelli, L., D'onofrio, A., Calò, L., Vaccari, D., Zanotto, G., Curnis, A., Buja, G., Rovai, N. and Gargaro, A. 2014. Manpower and outpatient clinic workload for remote monitoring of patients with cardiac implantable electronic devices: data from the HomeGuide Registry. Journal of cardiovascular electrophysiology, 25(11), 1216--1223.Google ScholarCross Ref
- Skov, M.B., Johansen, P.G., Skov, C.S., and Lauberg, A. 2015. No News is Good News: Remote Monitoring of Implantable Cardioverter-Defibrillator Patients. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '15), 827--836. Google ScholarDigital Library
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