Families Raising Disabled Children

1. Front Matter

   Pages i-xiii

   PDF

2. Theorising Parents, Professionals and Disabled Babies

   • Dan Goodley, Janice McLaughlin

   Pages 1-20

3. Methodology

   • Dan Goodley, Janice McLaughlin, Emma Clavering, Pamela Fisher

   Pages 21-35

4. Research Encounters

   • Dan Goodley, Janice McLaughlin, Emma Clavering, Pamela Fisher

   Pages 36-52

5. Unmaking Children

   • Janice McLaughlin, Dan Goodley

   Pages 53-77

6. Productive Parental Alliances

   • Dan Goodley, Janice McLaughlin

   Pages 78-104

7. Community Practices

   • Dan Goodley, Janice McLaughlin

   Pages 105-134

8. Professional, Institutional and Ethical Practices

   • Janice McLaughlin, Dan Goodley

   Pages 135-159

9. The Gender Dynamics, Transformative Potential and Boundaries of Care

   • Janice McLaughlin, Dan Goodley

   Pages 160-182

10. Values of Enabling Care and Social Justice

    • Janice McLaughlin, Dan Goodley

    Pages 183-198

11. Back Matter

    Pages 199-228

    PDF

Drawing upon qualitative material from parents and professionals, including ethnography, narrative inquiry, interviews and focus groups, this book brings together feminist and critical disability studies theories.

• care
• children
• community
• Familie
• feminism
• gender
• Institution
• methodology
• social justice

'This well written, incredibly emotive and thought-provoking book is about revealing the tensions, dilemmas and impacts for parent's, carers and professionals who have, or come into contact with, disabled babies and children...[It] is valuable in its rich content, but is also theoretically sophisticated. The insights provided for families of disabled children, professionals working with disabled children and students and academics who are interested in disability and families alike will benefit from reading this accessible book.' - Chrissie Rogers, Disability& Society

• Newcastle University, UK

  Janice McLaughlin, Emma Clavering

• Manchester Metropolitan University, UK

  Dan Goodley

• University of Huddersfield, UK

  Pamela Fisher

JANICE MCLAUGHLIN is is Executive Director of the Policy, Ethics and Life Sciences (PEALS) Research Centre, Newcastle University, UK

DAN GOODLEY is Professor of Psychology and Disability at the Department of Psychology and Social Change, Manchester Metropolitan University, UK.

EMMA CLAVERING was one of the research associates involved in this study, she continues to work with Janice McLaughlin in PEALS in associated research projects.

PAMELA FISHER was one of the research associates involved in this study, she is now Senior Lecturer in Sociology at the University of Huddersfield, UK.

Policies and ethics