Download PDF
Indian Journal of Neurosurgery 2015; 04(03): 148-156
DOI: 10.1055/s-0035-1568994
Original Article
Neurological Surgeons' Society of India

Development of Home Care Guidelines for the Caregivers of the Patients Being Discharged with Spinal Cord Injury

Navdeep Kaur
1   National Institute of Nursing Education, Postgraduate Institute of Medical Education & Research, Chandigarh, Punjab, India
,
Neena Vir Singh
1   National Institute of Nursing Education, Postgraduate Institute of Medical Education & Research, Chandigarh, Punjab, India
,
Sukhpal Kaur
1   National Institute of Nursing Education, Postgraduate Institute of Medical Education & Research, Chandigarh, Punjab, India
,
Rajesh Chabra
2   Department of Neurosurgery, Postgraduate Institute of Medical Education & Research, Chandigarh, Punjab, India
› Author Affiliations
Further Information

Publication History

08 April 2015

25 May 2015

Publication Date:
16 December 2015 (online)

   Permissions and Reprints

Abstract

Background After spinal cord injury (SCI), victims may become partially or fully dependent on the caregivers. After getting discharge from the hospital, they are cared by their caregivers. Often patients return to hospital with serious complications owing to inadequate knowledge of the caregivers. So, it is essential to meet the informational needs of the caregiver regarding home care.

Objective The aim of this study is to develop home care guidelines for the caregivers of the patients being discharged with SCI.

Method The study was conducted in five phases. The blueprint of the home care guidelines was prepared. Face and content validity of the home care guidelines were done using the Delphi technique. An observational checklist was prepared from the final draft of the guidelines. The guidelines were found feasible after conducting a pilot study on five caregivers. To calculate the reliability of the guidelines, 30 caregivers were taught as per developed guidelines and were observed while caring for their patients by checklist. Reliability was calculated using Cronbach α coefficient.

Results The checklist showed Cronbach α of 0.91. Guidelines were found to be feasible and reliable. Guidelines were developed in two languages: English and Hindi.

Conclusion The home care guidelines are valid and reliable. Guidelines enable caregivers to provide the best possible care to their patient at home to prevent development of complications.

Keywords

SCI - home care guidelines - caregiver
 

  • References

  • 1 Hicky JV. The Clinical Practice of Neurology and Neurological Nursing. Philadelphia, PA: J. B. Lippincott; 2005
    Google Scholar
  • 2 Johnson EA, Jackson JE. Teaching the home care client. Nurs Clin North Am 1989; 24 (3) 687-693
    PubMedGoogle Scholar
  • 3 Diong J, Harvey LA, Kwah LK , et al. Incidence and predictors of contracture after spinal cord injury—a prospective cohort study. Spinal Cord 2012; 50 (8) 579-584
    CrossrefPubMedGoogle Scholar
  • 4 Kwiczala-Szydłowska S, Skalska A, Grodzicki T. Pressure ulcer prevention—evaluation of awareness in families of patients at risk. Przegl Lek 2005; 62 (12) 1393-1397
    PubMedGoogle Scholar
  • 5 Eves FJ, Rivera N. Prevention of urinary tract infections in persons with spinal cord injury in home health care. Home Healthc Nurse 2010; 28 (4) 230-241
    CrossrefPubMedGoogle Scholar
  • 6 Guihan M, Goldstein B, Smith BM, Schwartz A, Manheim LM. SCI health care provider attitudes about pressure ulcer management. J Spinal Cord Med 2003; 26 (2) 129-134
    PubMedGoogle Scholar
  • 7 Kaur J, Kaur S, Chabra R. Functional dependence and impairment in patients with spinal trauma and associated complications. Indian Journal of Continuing Nursing Education 2014; 15 (1) 93-97
    PubMedGoogle Scholar
  • 8 Afsar SI, Yemisci OU, Cosar SN, Cetin N. Compliance with clean intermittent catheterization in spinal cord injury patients: a long-term follow-up study. Spinal Cord 2013; 51 (8) 645-649
    CrossrefPubMedGoogle Scholar
  • 9 Engkasan JP, Sudin SS. Neurogenic bowel management after spinal cord injury: Malaysian experience. J Rehabil Med 2013; 45 (2) 141-144
    CrossrefPubMedGoogle Scholar
  • 10 Kirkwood M, Wales A, Wilson A. Delphi study to determine nursing research priporities in North Glasgow university hospitals. Int J Nurs Stud 2005; 43: 560-566
    PubMedGoogle Scholar
  • 11 Kaushal RK, Kapoor S, Kaur S, Bhagat H. A methodological study to develop a “Nursing Checklist” for receiving patients in ICUs. Nursing and Midwifery Research Journal 2015; 11 (1) 1-11
    PubMedGoogle Scholar
  • 12 Katz N, Golstand S, Bar-Ilan RT, Parush S. The Dynamic Occupational Therapy Cognitive Assessment for Children (DOTCA-Ch): a new instrument for assessing learning potential. Am J Occup Ther 2007; 61 (1) 41-52
    CrossrefPubMedGoogle Scholar
  • 13 May-Benson TA, Koomar JA. Identifying gravitational insecurity in children: A pilot study. American Journal of Occupational Therapy 2007; 61: 142-147
    CrossrefPubMedGoogle Scholar
  • 14 Bandana WI, Saini SK. Development of audit tool: A methodological study for auditingthe family health records. Nursing and Midwifery Research Journal 2009; 5 (4) 166-175
    PubMedGoogle Scholar
  • 15 Kaur V, Saini SK, Walia I. Development of birth preparedness tool- A tool to assess mother preparedness for delivery, postnatal and new born care. Nursing and Midwifery Research Journal 2009; 5: 45-58
    PubMedGoogle Scholar