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Translation and cross-cultural adaptation of the Dignity Therapy Question Protocol to Brazilian Portuguese

Published online by Cambridge University Press:  13 April 2023

Michelle Uchida Miwa ,
Carlos Eduardo Paiva Open the ORCID record for Carlos Eduardo Paiva [Opens in a new window] ,
Ana Julia Sucupira Ferreira ,
Miguel Julião Open the ORCID record for Miguel Julião [Opens in a new window] ,
Harvey Max Chochinov  and
Bianca Sakamoto Ribeiro Paiva Open the ORCID record for Bianca Sakamoto Ribeiro Paiva [Opens in a new window]
Michelle Uchida Miwa
Affiliation:
Palliative Care Unit, Barretos Cancer Hospital, Barretos (SP), Brazil Research Group on Palliative Care and Health-Related Quality of Life, Barretos Cancer Hospital, Barretos (SP), Brazil
Carlos Eduardo Paiva
Affiliation:
Research Group on Palliative Care and Health-Related Quality of Life, Barretos Cancer Hospital, Barretos (SP), Brazil Department of Clinical Oncology, Breast and Gynecology Division, Barretos Cancer Hospital, Barretos (SP), Brazil
Ana Julia Sucupira Ferreira
Affiliation:
Research Group on Palliative Care and Health-Related Quality of Life, Barretos Cancer Hospital, Barretos (SP), Brazil
Miguel Julião
Affiliation:
Equipa Comunitária de Suporte em Cuidados Paliativos de Sintra, Sintra, Portugal
Harvey Max Chochinov
Affiliation:
Department of Psychiatry, Research Institute of Oncology and Hematology, Cancer Care Manitoba, Manitoba, Canada
Bianca Sakamoto Ribeiro Paiva*
Affiliation:
Research Group on Palliative Care and Health-Related Quality of Life, Barretos Cancer Hospital, Barretos (SP), Brazil
*
Author for correspondence: Bianca Sakamoto Ribeiro Paiva, Hospital de Câncer de Barretos, Rua Antenor Duarte Vilella, 1.331 – Bairro Dr. Paulo Prata, Barretos (SP) 14784-400, Brazil. Email: bsrpaiva@gmail.com
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Abstract

Objectives

Dignity therapy (DT) was developed to help patients at their end of life to reframe and give meaning to their illness process. The DT question protocol focuses on personhood and important aspects of the individual’s life. This study aimed to translate and culturally adapt the Dignity Therapy Question Protocol (DTQP) to Brazilian Portuguese.

Methods

This was a descriptive and methodological study, and cross-cultural adaptation process comprised 4 stages: (1) translation and synthesis of English original version protocol into Brazilian Portuguese, (2) back translation, (3) experts committee, and (4) pretest.

Results

The Portuguese version of the DTQP – Protocolo de Perguntas sobre Terapia da Dignidade – demonstrated a content validity index of 1 for all equivalences. The initial sample consisted of 41 participants (9 [21.9%] refused to participate and 1 [2.43%] dropped out). The pretest was applied to 30 (73.1%) participants, 15 of them were female and the mean age was 53.4 years. The final version consisted of 10 questions that were approved by the original authors who affirmed that the DTQP Brazilian Portuguese version maintained the original English characteristics.

Significance of results

The Brazilian cultural adaptation of the DTQP was well understood by patients. It will be very useful in palliative care clinical practice for patients nearing end of life. The adapted version to Brazilian Portuguese will facilitate future studies using the DTQP.

Keywords

Dignity therapyDignity therapy question protocolPalliative careBrazilian Portuguese adaptation
Type
Original Article
Information
Palliative & Supportive Care , Volume 21 , Issue 5 , October 2023 , pp. 856 - 862
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Copyright
© The Author(s), 2023. Published by Cambridge University Press.

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