Hostname: page-component-8448b6f56d-qsmjn Total loading time: 0 Render date: 2024-04-17T20:25:25.779Z Has data issue: false hasContentIssue false

Perceptions de l’arrêt de la dialyse et des traitements de maintien de la vie chez la clientèle québécoise en hémodialyse hospitalière: comparaison selon l’âge

Published online by Cambridge University Press:  13 December 2012

Judith Gagnon*
Affiliation:
Faculty of Nursing, University of Alberta
Jocelyne Saint-Arnaud
Affiliation:
Faculté des sciences Infirmières, Université de Montréal
Marc Bourdeau
Affiliation:
École Polytechnique, Université de Montréal Department of Medicine, Division of Nephrology, University of Alberta
Josée Côté
Affiliation:
Faculté des sciences Infirmières, Université de Montréal
Claire Chapados
Affiliation:
Faculté des sciences Infirmières, Université de Montréal
Cécile Michaud
Affiliation:
École des sciences Infirmières, Faculté de médecine et des sciences de la santé, Université de Sherbrooke
*
*La correspondance et les demandes de tirés-à-part doivent être adressées à : Correspondence and requests for offprints should be sent to: Judith Gagnon, M.Sc. 7708 154A Street NW Edmonton, AB T5R 1V2 (judith.gagnon@hotmail.com)

Abstract

The End-Stage Renal Disease population is aging. Considering that hemodialysis is a treatment that maintains and prolongs life, this descriptive-comparative study looks at the perceptions of patients according to age group -<65 years, n=121 and ≥65 years, n=123, as it pertains to dialysis treatment cessation and life-sustaining treatments. Results: Older patients are more indecisive as to what dialysis treatment cessation may actually represent for them (p=0,01). They expressed a greater need for support from the health care team if they decided to stop dialysis treatments (p=0,02); a greater involvement from the physician (p=0,04); and, in the event patients could not take part in end-of-life decision-making, they would give priority to the wishes of loved ones instead of their own wishes (p=0,01). Conclusion: Advanced care planning is necessary to demystify hemodialysis withdrawal and to support patients and their loved ones through this process.

Résumé

La clientèle au stade terminal d’insuffisance rénale est vieillissante. Considérant le fait que l’hémodialyse est un traitement qui maintien et prolonge la vie cette étude décrit et compare les perceptions de deux groupes de patients en hémodialyse selon l’âge -<65ans, n=121 et ≥65 ans, n=123) - quant à l’arrêt de la dialyse et les traitements de fin de vie. Résultats: Les ≥65 ans sont indécis quant à ce que représente un arrêt de dialyse (p= 0,01); ils souhaitent davantage le soutien de l’équipe de soins advenant l’arrêt de dialyse (p=0,02); ils sont plus nombreux à vouloir que le médecin décide pour eux des traitements de fin de vie (p=0,04); et, si inaptes, ils veulent d’avantage que les volontés de leurs proches aient priorité sur les leurs (p=0,01). Conclusion: Une planification des soins de fin de vie intégrée aux soins peut aider à démystifier l’arrêt de l’hémodialyse et à soutenir la clientèle âgée dans ce processus.

Type
Articles
Copyright
Copyright © Canadian Association on Gerontology 2012 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Références

Birmelé, B. (2006). L’arrêt de dialyse: une situation fréquente, parfois difficile à accepter. Néphrologie et Thérapeutique, 2(1), 2428.10.1016/j.nephro.2005.11.002CrossRefGoogle Scholar
Calvin, A.O. (2004). Haemodialysis patients and end-of-life decisions: A theory of personal preservation. Journal of Advanced Nursing, 46(5), 558566.10.1111/j.1365-2648.2004.03030.xCrossRefGoogle ScholarPubMed
Cohen, L.M., Fischel, S., Germain, M., Woods, A., Braden, G.L., & McCue, J. (1996). Ambivalence and dialysis discontinuation. General Hospital Psychiatry, 18(6), 431435.10.1016/S0163-8343(96)00091-6CrossRefGoogle ScholarPubMed
Cohen, L.M., McCue, J.D., Germain, M., et Woods, A. (1997). Denying the dying. Advance directives and dialysis discontinuation. Psychosomatics, 38(1), 2734.10.1016/S0033-3182(97)71500-7CrossRefGoogle ScholarPubMed
Cohen, L.M., Germain, M., Poppel, D.M., Woods, A., & Kjellstrand, C.M. (2000). Dialysis discontinuation and palliative care. American Journal of Kidney Disease, 36(1), 140144.10.1053/ajkd.2000.8286CrossRefGoogle ScholarPubMed
Cohen, L.M., & Germain, M. (2005). The psychiatric landscape of withdrawal. Seminars in Dialysis, 18(2), 147153.10.1111/j.1525-139X.2005.18201.xCrossRefGoogle ScholarPubMed
Cohen, L.M., Moss, A.H., Weisbord, S.D., & Germain, M.J. (2006). Editorial: Renal palliative care. Journal of Palliative Medicine, 9(4), 977992.10.1089/jpm.2006.9.977CrossRefGoogle Scholar
Davison, S.N. (2001). Quality end-of-life care in dialysis units. Seminars in Dialysis, 15(1), 4144.10.1046/j.1525-139x.2002.00015.xCrossRefGoogle Scholar
Davison, S.N. (2011). Integrating palliative care for patients with advanced chronic kidney disease: Recent advances, remaining challenges. Journal of Palliative Care, 27(1), 5361.10.1177/082585971102700109CrossRefGoogle ScholarPubMed
Davison, S.N., Jhangri, G.S., & Johnson, J.A. (2006). Cross-sectional validity of a modified Edmonton symptom assessment system in dialysis patients: A simple assessment of symptom burden. International Society of Nephrology, 69, 16211625.Google ScholarPubMed
Davison, S.N., & Simpson, C. (2006). Hope and advance care planning in patients with end stage renal disease: Qualitative interview study. British Medical Journal, 333, 888889.10.1136/bmj.38965.626250.55CrossRefGoogle ScholarPubMed
Davison, S.N., & Torgunrud, C. (2007). The creation of an advance care planning process for patients with ESRD. American Journal of Kidney Diseases, 49(1), 2736.10.1053/j.ajkd.2006.09.016CrossRefGoogle ScholarPubMed
Dinwiddie, L.C. (2003). Insight into the ESRD workgroup final report summary on end-of-life care. Nephrology Nursing Journal, 30(1), 58.Google ScholarPubMed
Drought, T.S., & Koenig, B.A. (2002). “Choice” in end-of-life decision making: Researching fact or fiction? Gerontologist, 42(Spec No 3), 114128.10.1093/geront/42.suppl_3.114CrossRefGoogle ScholarPubMed
Emanuel, E.J., Fairclough, D.L., Wolfe, P., & Emanuel, L.L. (2004). Talking with terminally ill patients and their caregivers about death, dying, and bereavement: Is it stressful? Is it helpful? Archives of Internal Medicine, 164(18), 19992004.10.1001/archinte.164.18.1999CrossRefGoogle ScholarPubMed
Gregory, D.M., Way, C.Y., Hutchinson, T., Barrett, B., & Parfrey, P.S. (1998). Patients’ perceptions of their experiences with ESRD and hemodialysis treatment. Quality Health Research, 8, 764783.10.1177/104973239800800604CrossRefGoogle ScholarPubMed
Hines, S.C., Babrow, A.S., Badzek, L., & Moss, A. (2001). From coping with life to coping with death: Problematic integration for the seriously ill elderly. Health Community, 13(3), 327342.10.1207/S15327027HC1303_6CrossRefGoogle ScholarPubMed
Hutchinson, T.A. (2005). Transitions in the lives of patients with End-Stage Renal Disease: A cause of suffering and an opportunity for healing. Palliative Medicine, 19(4), 270277.10.1191/0269216305pm1028oaCrossRefGoogle Scholar
Institut Canadien d’Information sur la Santé. (2011). Traitement du Stade Terminal de l’Insuffisance Organique au Canada, 2002 et 2003. Registre Canadien de l’Insuffisance Organique au Canada.Google Scholar
Johnson, R., Baranowski-Birkmeier, T., & O’Donnell, J. (1995). Advanced directives in the medical intensive care unit of a community teaching hospital. Chest 107(3), 152156.10.1378/chest.107.3.752CrossRefGoogle ScholarPubMed
Kaufman, S.R. (1998). Intensive care, old age, and the problem of death in America. Gerontologist, 38(6), 715725.10.1093/geront/38.6.715CrossRefGoogle ScholarPubMed
Kaufman, S.R., Shim, J.K., & Russ, A.J. (2006). Old age, life extension, and the character of medical choice. Journal of Gerontology: Social Sciences 61(4), S175S184.10.1093/geronb/61.4.S175CrossRefGoogle ScholarPubMed
Mendelssohn, D.C. (1997). Principles of end-stage renal disease care. Annals of Royal College of Physicians and Surgeons of Canada, 30(5), 271273.Google Scholar
Ott, B.B. (1999). Advance directives: The emerging body of research. American Journal of Critical Care, 8(1), 514519.10.4037/ajcc1999.8.1.514CrossRefGoogle ScholarPubMed
Russ, A.J., Shim, J.K., & Kaufman, S.R. (2005). “Is there life on dialysis?”: Time and aging in a clinically sustained existence. Medical Anthropology, 24, 297324.10.1080/01459740500330639CrossRefGoogle Scholar
Saint-Arnaud, J. (2000). “L’approche bioéthique par principes: Fondements et critiques”. Byk, Dans C. (Ed.), La Bioéthique: Un Langage pour mieux se comprendre? (pp. 5569). Paris: Éditions Alexandre Lacassagne/ESKA.Google Scholar
Saint-Arnaud, J. (2005). Les familles et les équipes de soin face à l’arrêt de traitement de maintien de vie: aspects éthiques et juridiques. Bartha, Dans K.M., Herve, C., Molinari, P.A., et Moutel, G. (Ed.), Place de la Bioéthique en Recherche et dans les Services Cliniques (pp. 191207). Paris: Dalloz.Google Scholar
Saint-Arnaud, J., Bouchard, L., Loiselle, C.G., Verrier, P., Laflamme, M.C., et Audet, M. (2003). L’impact de la rareté des ressources sur la pratique de la dialyse au Québec. Perspective infirmière, 1(2), 1631.Google Scholar
Sansone, P., & Philips, M. (1995). Advanced directives for elderly people: Worthwhile cause or wasted effort? Social Work, 40(3), 397401.Google ScholarPubMed
Schneiderman, L.J., Pearlman, R.A., Kaplan, R.M., Anderson, J.P., & Rosenberg, E.M. (1992). Relationship of general advance directive instructions to specific life-sustaining treatment preferences in patients with serious illness. Archives of Internal Medicine, 152(10), 21142122.10.1001/archinte.1992.00400220122021CrossRefGoogle ScholarPubMed
Seymour, J., Gott, M., Bellamy, G., Ahmedzi, S.H., & Clark, D. (2004). Planning for the end of life: The views of older people about advance care statements. Social science and Medicine, 54, 5768.10.1016/j.socscimed.2003.10.005CrossRefGoogle Scholar
Sims, R.J.A., Cassidy, M.J.D., & Masud, T. (2003). The increasing number of older patients with renal disease. British Medical Journal, 327(7413), 463464.10.1136/bmj.327.7413.463CrossRefGoogle ScholarPubMed
Singer, P.A., Martin, D.G., Lavery, J.V., Thiel, E.C., Kelner, M., & Mendelssohn, D.C. (1998). Reconceptualizing advance care planning from the patient’s perspective. Archives of Internal Medicine, 158, 879883.10.1001/archinte.158.8.879CrossRefGoogle ScholarPubMed
Sonnenblick, M., Friendlander, Y., & Steinberg, A. (1992). Dissociation between the wishes of terminally ill patients and decisions by their offspring. Journal of the American Geriatry Society, 41(6), 499604.Google Scholar
Tulsky, J.A. (2005). Interventions to enhance communication among patients, providers and families. Journal of Palliative Medicine, 8(1), S95S102.10.1089/jpm.2005.8.s-95CrossRefGoogle ScholarPubMed
US, Renal, Data, and System. (2004). Morbidity and Mortality, 2005 annual report.Google Scholar
Watne, K., & Donner, T.A. (1995). Distinguishing between life-saving and life- sustaining treatments: When the physician and spouse disagree. Dimension of Critical Care Nursing, 14(1), 4247.10.1097/00003465-199501000-00008CrossRefGoogle ScholarPubMed
White, Y., & Fitzpatrick, G. (2006). Dialysis: Prolonging life or prolonging dying? Ethical, legal and professional considerations for end of life decision making. EDTNA/ERCA Journal, 32(2), 99103.Google ScholarPubMed