Ethical issueLetting go: Family willingness to forgo life support
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Family members' perceptions of surrogate decision-making in the intensive care unit: A systematic review
2023, International Journal of Nursing StudiesCitation Excerpt :1) End-of-life decisions refer to the process of developing and implementing end-of-life treatment and care plans for terminally ill patients, including whether to initiate, continue, withdraw, or withhold life-sustaining treatment (Wendler and Rid, 2011), such as mechanical ventilation, extracorporeal membrane oxygenation (ECMO), or cardiopulmonary resuscitation (CPR). Approximately 19 studies were included within this decision category (Apatira et al., 2008; Dionne-Odom et al., 2015; Hadler et al., 2021; Jacob, 1998; Kryworuchko et al., 2012; Li et al., 2018; Limerick, 2007; Lind et al., 2011; Long et al., 2011; Moss et al., 2019; Nunez et al., 2015; Quinn et al., 2012; Radwany et al., 2009; Schenker et al., 2012a, 2012b; Swigart et al., 1996; Tilden et al., 1995; Xie et al., 2015; Zier et al., 2008; Zier et al., 2012). ( 2) Treatment decisions refer to the process of selecting medical measures, such as medication, indwelling arterial line, dialysis, surgery, or procedural interventions (McKenzie et al., 2015), appropriate for the patient's current condition from proposed treatment options based on a correct diagnosis (Blank et al., 2006).
The Science of Context: Transforming Serious Illness Care Though In Situ Observation
2022, Journal of Pain and Symptom ManagementCitation Excerpt :Responding to his own call-to-action, in 2002, Randy laid out a detailed framework and a rigorous approach to answer these fundamental research questions by studying family conferences using qualitative data collection and analysis.5 At that time, the application of qualitative methods in the ICU by physician-investigators was rare, and fundamental questions remained about the feasibility and acceptability of recording highly sensitive discussions that take place during family conferences.2–4 Randy's successful use of these methods to leverage the key moments for data collection within a complex clinical environment helped establish the viability and necessity of this approach.6-8
Outcomes of Palliative Care Team Consultation for Ventilator Withdrawal from Terminally Ill Patients in the Intensive Care Unit
2016, International Journal of GerontologyU.S. Physicians' Opinions about Accommodating Religiously Based Requests for Continued Life-Sustaining Treatment
2016, Journal of Pain and Symptom ManagementAn Emerging Concept: Peaceful Letting Go
2015, Archives of Psychiatric NursingA conceptual model of the role of communication in surrogate decision making for hospitalized adults
2012, Patient Education and CounselingCitation Excerpt :One study found higher posttraumatic stress symptoms in ICU family members who participated in decision making than those who did not [36]. Qualitative studies have examined the experience of the surrogate in other settings such as the nursing home [37,38] or ICU [39,40], or have interviewed the family members of veterans [41–43], of patients who died after withdrawal of life-sustaining treatments [44,45], and family members who have made a decision about a feeding tube [46,47]. Both these and quantitative, survey based studies [48] have consistently shown that the decision making process was stressful to family members.
Funded by the National Institutes of Health, National Institute of Nursing Research. RO3117-01.