Abstract
Introduction
There have been reports of thalidomide-affected people suffering a deterioration in their disability over time [1, 2]. This study assessed changes in disabilities among thalidomide-affected people in the Irish population.
Methods
A questionnaire, assessing musculo-skeletal health, quality-of-life, general health and illness intrusiveness was sent to 26 people affected by thalidomide in the Republic of Ireland.
Results
Seventeen (65%) responded. Six (35%) respondents were not working as a result of their disability. Eleven (65%) reported a worsening of their disability over time, with nine of them reporting the deterioration as moderate to severe. The impact of this decline was measured by respondents in terms of ability to perform daily tasks, emotional health and finances (due to extra costs related to clothing, transport, housing alterations and heating).
Conclusion
There is a need to continually review the physical, psychological and social needs of thalidomide survivors in order to ensure optimum care is made available.
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Conflict of interest
The lead author was affected by thalidomide. There exists a possibility that the Government may give further financial assistance to people affected by thalidomide and potentially, the results of this study could affect such a settlement. To minimise this conflict all three authors independently assessed the results of the study.
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O’Carroll, A., O’Reilly, F. & Whitford, D.L. What has happened to people affected by thalidomide 50 years on?. Ir J Med Sci 180, 475–478 (2011). https://doi.org/10.1007/s11845-011-0683-7
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DOI: https://doi.org/10.1007/s11845-011-0683-7