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Telling it like it was: dignity therapy and moral reckoning in palliative care

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Abstract

This article offers a conceptual analysis of self-respect and self-esteem that informs the ethics of psychotherapy in palliative care. It is focused on Chochinov’s Dignity Therapy, an internationally recognized treatment offered to dying patients who express a need to bolster their sense of self-worth. Although Dignity Therapy aims to help such patients affirm their value through summarized life stories that are shared with their survivors, it is not grounded in a robust theory of self-respect. There is reason to be skeptical about deathbed narratives, and Dignity Therapy can unintentionally encourage distorted representations at odds with the self-respect it aims to affirm. Dignity therapy can also encourage distortions of self-esteem that are in conflict with self-respect. Although Chochinov does not address it, the distinction between self-respect and self-esteem is relevant to deathbed accounts. Dillon’s feminist revisioning of self-respect can inform the practice of Dignity Therapy by encouraging honest life stories through a reckoning with one’s moral complexity, especially in moral generativity cases where patients seek forgiveness, relate atonement, or present their lives as examples to be followed. Her concept of self-esteem allows for therapeutic benefits that are less demanding, but no less significant, than those derived from a moral reckoning. Appropriate affirmations of self-esteem can provide much-needed solace when self-respect is damaged beyond adequate repair. Dillon’s account of self-respect and self-esteem enables a richer understanding of the kinds of personal evaluation and disclosure that Dignity Therapy accommodates. As such, their place in Dignity Therapy needs more critical evaluation than it has received.

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Notes

  1. Existential suffering comprises a range of experiences that can be especially acute in palliative care. These feelings include retrospective disappointment and remorse, hopelessness, futility, death anxiety, and loss of agency, identity, and interpersonal connectedness. By 2011, acknowledgement of existential suffering was ascendant among palliative care physicians and nurses, although subject to multiple (i.e., at least fifty-six) definitions [3]. The maintenance or reestablishment of meaning, purpose, and self-worth are central goals in treating the existential suffering of palliative care patients [4, p. 313; 5, p. 71].

  2. Dillon rejects the “false claim” that damaged self-respect is limited to women. But insofar as her feminist revisioning understands self-respect as reflecting “prevailing forms of social and political life,” many of which are oppressive to women, damaged self-respect cannot be fully understood “without taking its gender dimensions seriously” [20, pp. 236, 244].

  3. Dillon extended her initial revisioning to include basal self-respect, or the most primordial valuing of ourselves as having worth [20]. I focus here on how the initial account modifies traditional notions of an abstract agent in favor of a more particularist version of a self-respecting person. An examination of the issues raised by basal self-respect is beyond the scope of this paper.

References

  1. Chochinov, Harvey Max, Thomas Hack, Thomas Hassard, Linda J. Kristjanson, Susan McClement, and Mike Harlos. 2004. Dignity and psychotherapeutic considerations in end-of-life care. Journal of Palliative Care 20: 134–142.

    Article  Google Scholar 

  2. Chochinov, Harvey Max. 2012. Dignity therapy: final words for final days. Oxford: Oxford University Press.

    Book  Google Scholar 

  3. Boston, Patricia, Anne Bruce, and Rita Schreiber. 2011. Existential suffering in the palliative care setting: an integrated literature review. Journal of Pain and Symptom Management 41: 604–618.

    Article  Google Scholar 

  4. Cherny, Nathan I. 2009. The treatment of suffering in patients with advanced cancer. In Handbook of psychiatry in palliative medicine, 2nd ed, ed. Harvey Max Chochinov and William Breitbar, 300–323. Oxford: Oxford University Press.

    Google Scholar 

  5. Pellegrino, Edmund D., and Daniel P. Sulmasy. 2009. Ethical issues in palliative care. In Handbook of psychiatry in palliative medicine, 2nd ed, ed. Harvey Max Chochinov and William Breitbart, 267–280. Oxford: Oxford University Press.

    Google Scholar 

  6. Erikson, Erik H. 1950. Childhood and society. New York: Norton.

    Google Scholar 

  7. Martínez, Marina, María Arantzamendi, Alazne Belar, José Miguel Carrasco, Ana Carvajal, María Rullán, and Carlos Centeno. 2017. ‘Dignity therapy’, a promising intervention in palliative care: a comprehensive systematic literature review. Palliative Medicine 31: 492–509.

    Article  Google Scholar 

  8. Ratcliffe, Matthew. 2015. Experiences of depression: a study in phenomenology. Oxford: Oxford University Press.

    Google Scholar 

  9. Pullman, Daryl. 2004. Death, dignity, and moral nonsense. Journal of Palliative Care 20: 171–178.

    Article  Google Scholar 

  10. Dillon, Robin S. 1995. Toward a feminist conception of self-respect. In Dignity, character, and self-respect, ed. Robin S. Dillon, 290–310. New York: Routledge.

    Google Scholar 

  11. Dillon, Robin S. 2019. Self-respect and self-esteem. In The international encyclopedia of ethics, ed. Hugh LaFollett, 1–12. Oxford: John Wiley.

    Google Scholar 

  12. Peneff, Jean. 1990. Myths in life stories. In The myths we live by, ed. Raphael Samuel and Paul Thompson, 36–48. London: Routledge.

    Google Scholar 

  13. Lindemann Nelson, Hilde (ed.). 1997. Stories and their limits: narrative approaches to bioethics. New York: Routledge.

    Google Scholar 

  14. Paley, John, and Gail Eva. 2005. Narrative vigilance: the analysis of stories in health care. Nursing Philosophy 6: 83–97.

    Article  Google Scholar 

  15. Paley, John. 2009. Narrative machinery. In Narrative and stories in health care: illness, dying, and bereavement, ed. Yasmin Gunaratnum and David Oliviere, 17–32. Oxford: Oxford University Press.

    Chapter  Google Scholar 

  16. Eva, Gail. 2009. Narrative, story, and service evaluation—patients’ stories and their consequences. In Narrative and stories in health care: illness, dying, and bereavement, ed. Yasmin Gunaratnum and David Oliviere, 95–110. Oxford: Oxford University Press.

    Chapter  Google Scholar 

  17. Frank, Arthur W. 2009. The necessity and dangers of illness narratives, especially at the end of life. In Narrative and stories in health care: illness, dying, and bereavement, ed. Yasmin Gunaratnum and David Oliviere, 161–175. Oxford: Oxford University Press.

    Chapter  Google Scholar 

  18. Gunaratnam, Yasmin. 2009. Narrative interviews and research. In Narrative and stories in health care: illness, dying, and bereavement, ed. Yasmin Gunaratnum and David Oliviere, 47–61. Oxford: Oxford University Press.

    Chapter  Google Scholar 

  19. Frosh, Stephen. 2007. Disintegrating qualitative research. Theory and Psychology 17: 635–653.

    Article  Google Scholar 

  20. Dillon, Robin S. 1997. Self-respect: moral, emotional, political. Ethics 107: 226–249.

    Article  Google Scholar 

  21. Darwall, Stephen L. 1977. Two kinds of respect. Ethics 88: 36–49.

    Article  Google Scholar 

  22. Mauri, Margarita. 2011. Self-respect and honesty. Filozofia 66: 74–82.

    Google Scholar 

  23. Meyers, Diana T. 1995. Self-respect and autonomy. In Dignity, character, and self-respect, ed. Robin S. Dillon, 218–248. New York: Routledge.

    Google Scholar 

  24. Baumeister, Roy F., Jennifer D. Campbell, Joachim I. Krueger, and Kathleen D. Vohs. 2003. Does high self-esteem cause better performance, interpersonal success, happiness, or healthier lifestyles? Psychological Science in the Public Interest 4: 1–44.

    Article  Google Scholar 

  25. McClement, Susan, Harvey M. Chochinov, Thomas Hack, Thomas Hassard, Linda Joan Kristjanson, and Mike Harlos. 2007. Dignity therapy: family member perspectives. Journal of Palliative Medicine 10: 1076–1082.

    Article  Google Scholar 

  26. Gecas, Viktor. 2001. The self as a social force. In Extending self-esteem theory and research: sociological and psychological currents, ed. Timothy J. Owens, Sheldon Stryker, and Norman Goodman, 85–100. Cambridge: Cambridge University Press.

    Chapter  Google Scholar 

  27. Seneca, Lucius Annaeus. 1917. On old age and death. In Seneca ad Lucilium epistulae morales, vol. 1, trans. Richard M. Gummere, 186–193. London: Heinemann.

    Google Scholar 

  28. Lindqvist, Olav, Guinever Threlkeld, Annette F. Street, and Carol Tishelman. 2014. Reflections on using biographical approaches in end-of-life care: dignity therapy as example. Qualitative Health Research 25: 40–50.

    Article  Google Scholar 

  29. Vuksanovic, Dean, Heather Green, Shirley Morrissey, and Sharelle Smith. 2017. Dignity therapy and life review for palliative care patients: a qualitative study. Journal of Pain and Symptom Management 54: 530–537.

    Article  Google Scholar 

  30. Bernard, Michael E. (ed.). 2013. The strength of self-acceptance: theory, practice and research. New York: Springer.

    Google Scholar 

  31. Dillon, Robin S. 1992. How to lose your self-respect. American Philosophical Quarterly 29: 125–139.

    Google Scholar 

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Acknowledgements

I am grateful to Dr. R. S. Turner, Ted Killen, Katelyn MacDougald, and two anonymous referees for comments on previous drafts.

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Correspondence to Duff R. Waring.

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Waring, D.R. Telling it like it was: dignity therapy and moral reckoning in palliative care. Theor Med Bioeth 42, 25–40 (2021). https://doi.org/10.1007/s11017-021-09542-3

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