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Intelligent Personal Health Record: Experience and Open Issues

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Abstract

Web-based personal health records (PHRs) are under massive deployment. To improve PHR’s capability and usability, we previously proposed the concept of intelligent PHR (iPHR). By introducing and extending expert system technology and Web search technology into the PHR domain, iPHR can automatically provide users with personalized healthcare information to facilitate their daily activities of living. Our iPHR system currently provides three functions: guided search for disease information, recommendation of home nursing activities, and recommendation of home medical products. This paper discusses our experience with iPHR as well as the open issues, including both enhancements to the existing functions and potential new functions. We outline some preliminary solutions, whereas a main purpose of this paper is to stimulate future research work in the area of consumer health informatics.

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References

  1. Ackley, B. J., and Ladwig, G. B., Nursing Diagnosis Handbook: An Evidence-based Guide to Planning Care, 8th ed. Mosby, 2007.

  2. Adomavicius, G., and Tuzhilin, A., Toward the next generation of recommender systems: a survey of the state-of-the-art and possible extensions. TKDE 17(6):734–749, 2005.

    Google Scholar 

  3. AllegroMedical homepage. http://www.allegromedical.com, 2010.

  4. Amazon homepage. http://www.amazon.com, 2010.

  5. Bing homepage. http://www.bing.com, 2010.

  6. Bulechek, G. M., Butcher, H. K., and Dochterman, J. M., Nursing Interventions Classification (NIC), 5th ed. Mosby, 2007.

  7. Baeza-Yates, R. A., and Ribeiro-Neto, B. A., Modern Information Retrieval. ACM Press/Addison-Wesley, 1999.

  8. Billings, J. A., and Stoeckle, J. D., The Clinical Encounter: A Guide to the Medical Interview & Case Presentation, 2nd ed. Mosby, 1999.

  9. Chatroulette homepage. http://chatroulette.com, 2010.

  10. Cimino, J. J., Use, usability, usefulness and impact of an Infobutton manager. Proceedings of AMIA’06, pp. 151–155, 2006.

  11. Collins, R. D., Algorithmic Diagnosis of Symptoms and Signs: Cost-Effective Approach. Lippincott Williams & Wilkins, 2002.

  12. Conditions by incidence. http://www.wrongdiagnosis.com/lists/incid.htm, 2010.

  13. Data & Statistics, Centers for Disease Control and Prevention. http://www.cdc.gov/DataStatistics, 2010.

  14. Dunning, T., Nursing Care of Older People with Diabetes. Wiley-Blackwell, 2005.

  15. Duyff, R. L., American Dietetic Association Complete Food and Nutrition Guide, 3rd ed. Wiley, 2006.

  16. Eysenbach, G., Consumer health informatics. BMJ 320(7251):1713–1716, 2000.

    Article  Google Scholar 

  17. Eysenbach, G., Medicine 2.0: social networking, collaboration, participation, apomediation, and openness. J Med Internet Res 10(3):e22, 2008.

    Article  Google Scholar 

  18. Farfan, F., Hristidis, V., and Ranganathan, A., et al., XOntoRank: Ontology-aware search of electronic medical records. Proceedings of ICDE’09, pp. 820-831, 2009.

  19. Gagliano, M. E., A literature review on the efficacy of video in patient education. J Med Educ 63(10):785–792, 1988.

    Google Scholar 

  20. Garra, K., Medical benefits of Wii. http://newhorizonllc.net/company-news/38-news/71-medical-benefits-of-wii, 2010.

  21. Goetz, T., The Decision Tree: Taking Control of Your Health in the New Era of Personalized Medicine. Rodale Books, 2010.

  22. Google product search homepage. http://www.google.com/products, 2010.

  23. Hanas, R., Type 1 Diabetes in Children, Adolescents and Young Adults: How to Become an Expert on Your Own Diabetes, 4th ed. Class Publishing, 2009.

  24. Hanson, W., The Edge of Medicine: The Technology That will Change Our Lives. Palgrave Macmillan, 2008.

  25. Healthline homepage. http://www.healthline.com, 2010.

  26. New Healthline symptom search dramatically improves one of the most popular online health research activities. http://www.healthline.com/corporate/news/healthline_announces_symptom_search.html, 2007.

  27. HealthPricer homepage. http://www.healthpricer.com, 2010.

  28. Hidola homepage. http://www.hidola.com, 2010.

  29. Hood, C., Unique holiday gifts - fitness equipment. http://dailylivingaids.wordpress.com/tag/unique-gifts, 2007.

  30. Johnson, M., Bulechek, G. M., and Dochterman, J. M., et al., NANDA, NOC, and NIC Linkages: Nursing Diagnoses, Outcomes, and Interventions, 2nd ed. Mosby, 2005.

  31. Li, X., and Croft, W. B., Time-based language models. Proceedings of CIKM’03, pp. 469–475, 2003.

  32. Luo, G., Design and evaluation of the iMed intelligent medical search engine. Proceedings of ICDE’09, pp. 1379–1390, 2009.

  33. Luo, G., Intelligent output interface for intelligent medical search engine. Proceedings of AAAI’08, pp. 1201–1206, 2008.

  34. Luo, G., Lessons learned from building the iMed intelligent medical search engine. Proceedings of EMBC’09, pp. 5138–5142, 2009.

  35. Luo, G., On search guide phrase compilation for recommending home medical products. Proceedings of EMBC’10, pp. 2167–2171, 2010.

  36. Luo, G., Navigation interface for recommending home medical products. JMS, to appear.

  37. Luo, G., and Tang, C., On iterative intelligent medical search. Proceedings of SIGIR’08, pp. 3–10, 2008.

  38. Luo, G., and Tang, C., Challenging issues in iterative intelligent medical search. Proceedings of ICPR’08, pp. 1–4, 2008.

  39. Luo, G., and Tang, C., Automatic home nursing activity recommendation. Proceedings of AMIA’09, pp. 401–405, 2009.

  40. Luo, G., Thomas, S. B., and Tang, C., Intelligent consumer-centric electronic medical record. Proceedings of MIE’09, pp. 120–124, 2009.

  41. Luo, G., Thomas, S. B., and Tang, C., Automatic home medical product recommendation. JMS, to appear.

  42. Metz, C., Google eyes Cleveland medical records. http://www.theregister.co.uk/2008/02/21/google_health_records_private_launch, 2008.

  43. Microsoft HealthVault homepage. http://www.healthvault.com, 2010.

  44. Meyer, M. M., and Derr, P., The Comfort of Home: a Complete Guide for Caregivers, 3rd ed. CareTrust Publications LLC, 2007.

  45. PatientsLikeMe homepage. http://www.patientslikeme.com, 2010.

  46. Prevention magazine editors. The Doctors Book of Home Remedies. Bantam, 2003.

  47. Ramasubramanian, V., Peterson, R., and Sirer, E. G., Corona: A high performance publish-subscribe system for the World Wide Web. Proceedings of NSDI’06, 2006.

  48. Revolution Health homepage. http://www.revolutionhealth.com, 2010.

  49. Radomski, M. V., and Trombly, C. A., Occupational Therapy for Physical Dysfunction, 6th ed. Lippincott Williams & Wilkins, 2007.

  50. Sullivan, D., What is real time search? Definitions & players. http://searchengineland.com/what-is-real-time-search-definitions-players-22172, 2009.

  51. Tatum, M., Which sugar substitutes are safe for diabetics? http://www.wisegeek.com/which-sugar-substitutes-are-safe-for-diabetics.htm, 2010.

  52. Teevan, J., Dumais, S. T., and Liebling, D. J., To personalize or not to personalize: modeling queries with variation in user intent. Proceedings of SIGIR’08, pp. 163-170, 2008.

  53. Thompson, H. J., and Thielke, S. M., How do health care providers perceive technologies for monitoring older adults? Proceedings of EMBC’09, pp. 4315–4318, 2009.

  54. Vogeli, C., Shields, A. E., Lee, T. A., et al., Multiple chronic conditions: prevalence, health consequences, and implications for quality, care management, and costs. JGIM 22(Suppl 3):391–395, 2007.

    Article  Google Scholar 

  55. WebMD homepage. http://www.webmd.com, 2010.

  56. White, R.W., and Horvitz, E., Cyberchondria: Studies of the escalation of medical concerns in Web search. ACM Trans. Inf. Syst. 27(4), 2009.

  57. Wii Fit homepage. http://wiifit.com, 2010.

  58. Wikipedia homepage. http://www.wikipedia.org, 2010.

  59. Wilkinson, R., and Smeaton, A.F., Automatic link generation. ACM Comput. Surv. 31(4), 1999.

  60. YouTube homepage. http://www.youtube.com, 2010.

  61. Yang, K., Evens, M. W., and Trace, D., Improving the text summaries in the intelligent medical record system. Proceedings of MAICS’06, 2006.

  62. American Dietetic Association. Electronic medical records and personal health records: A call for the creation and inclusion of a nutrition dataset. http://anhi.org/Learning/PDFs/Other/EMR-PHR_Nutrition_Dataset_Paper(6-29-09).pdf, 2009.

  63. Bakken, S., Currie, L. M., Lee, N. J., et al., Integrating evidence into clinical information systems for nursing decision support. I J Med Inform 77(6):413–420, 2008.

    Article  Google Scholar 

  64. Barnett, G. O., Cimino, J. J., Hupp, J. A., et al., DXplain. An evolving diagnostic decision-support system. JAMA 258(1):67–74, 1987.

    Article  Google Scholar 

  65. Batavia, M., Contraindications in Physical Rehabilitation: Doing No Harm. Saunders, 2006.

  66. Brin, S., and Page, L., The anatomy of a large-scale hypertextual Web search engine. Comput Netw 30(1–7):107–117, 1998.

    Google Scholar 

  67. Collins, R.D., Algorithmic Approach to Treatment. Lippincott Williams & Wilkins, 1997.

  68. Collins, R.D., Algorithmic Selection and Interpretation of Diagnostic Tests. Williams & Wilkins, 1998.

  69. Demner-Fushman, D., Seckman, C., and Fisher, C., et al., A prototype system to support evidence-based practice. Proceedings of AMIA’08, pp. 151-155, 2008.

  70. Doenges, M., Moorhouse, M., and Murr, A., Nursing Care Plans: Guidelines for Individualizing Client Care across the Life Span, 8th ed. F.A. Davis Company, 2009.

  71. Elhadad, N., Kan, M., Klavans, J. L., et al., Customization in a unified framework for summarizing medical literature. Artif Intell Med 33(2):179–198, 2005.

    Article  Google Scholar 

  72. Google Alerts homepage. http://www.google.com/alerts, 2010.

  73. Google Guide Quick Reference: Google Advanced Operators (Cheat Sheet). http://www.googleguide.com/advanced_operators_reference.html, 2010.

  74. Google homepage. http://www.google.com, 2010.

  75. Haugen, N., and Galura, S.J., Ulrich & Canale's Nursing Care Planning Guides: Prioritization, Delegation, and Critical Thinking, 7th ed. Saunders, 2010.

  76. International Classification of Diseases (ICD-10) homepage. http://www.who.int/classifications/icd/en/, 2010.

  77. Luo, G., Tang, C., and Thomas, S. B., Intelligent personal health record: experience and open issues. Proceedings of IHI’10, pp. 326-335, 2010.

  78. Rodgers, S., Delmar's Medical-Surgical Nursing Care Plans. Delmar Cengage Learning, 2007.

  79. Tatro, D. S., 2011 Drug Interaction Facts: The Authority on Drug Interactions. Lippincott Williams & Wilkins, 2010.

  80. Wang, Y., and Liu, Z., Automatic detecting indicators for quality of health information on the Web. I J Med Inform 76(8):575–582, 2007.

    Article  Google Scholar 

  81. Wilson, P., How to find the good and avoid the bad or ugly: a short guide to tools for rating quality of health information on the internet. BMJ 324(7337):598–602, 2002.

    Article  Google Scholar 

  82. http://nursingcrib.com/nursing-care-plan/, 2010.

  83. http://www.nursingcareplan.blogspot.com/, 2010.

  84. Comer, S. R., Delmar's Geriatric Nursing Care Plans, 3rd ed. Delmar Cengage Learning, 2004.

  85. Comer, S. R., Delmar's Critical Care Nursing Care Plans, 2nd ed. Delmar Cengage Learning, 2004.

  86. Luxner, K. L., Delmar's Maternal-Infant Nursing Care Plans, 2nd ed. Delmar Cengage Learning, 2004.

  87. Luxner, K. L., Delmar's Pediatric Nursing Care Plans, 3rd ed. Delmar Cengage Learning, 2004.

  88. Gulanick, M., and Myers, J. L., Nursing Care Plans: Diagnoses, Interventions, and Outcomes, 7th ed. Mosby, 2010.

  89. Swearingen, P. L., All-in-One Care Planning Resource: Medical-Surgical, Pediatric, Maternity, and Psychiatric Nursing Care Plans, 2nd ed. Mosby, 2007.

  90. Schultz, J. M., and Videbeck, S. L., Lippincott's Manual of Psychiatric Nursing Care Plans, 8th ed. Lippincott Williams & Wilkins, 2008.

  91. Varcarolis, E. M., Manual of Psychiatric Nursing Care Planning: Assessment Guides, Diagnoses, Psychopharmacology, 4th ed. Saunders, 2010.

  92. Cawsey, A. J., Jones, R. B., and Pearson, J., The evaluation of a personalised health information system for patients with cancer. User Model User-Adapt Interact 10(1):47–72, 2000.

    Article  Google Scholar 

  93. Al-Busaidi, A., Gray, A., and Fiddian, N., Personalizing web information for patients: linking patient medical data with the web via a patient personal knowledge base. Health Inform J 12(1):27–39, 2006.

    Article  Google Scholar 

  94. Bental, D. S., Cawsey, A., and Jones, R., Patient information systems that tailor to the individual. Patient Educ Couns 36(2):171–180, 1999.

    Article  Google Scholar 

  95. ICD-10 ontology. https://dkm.fbk.eu/index.php/ICD-10_Ontology, 2011.

  96. Luo, G., Tang, C., and Yang, H., et al., MedSearch: a specialized search engine for medical information retrieval. Proceedings of CIKM’08, pp. 143-152, 2008.

  97. A future doctor shortage? A growing lack of new doctors could be American's next health crisis. http://www.cbsnews.com/stories/2006/06/17/eveningnews/main1726479.shtml, 2006.

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  1. IBM T.J. Watson Research Center, 19 Skyline Drive, Hawthorne, NY, 10532, USA

    Gang Luo, Chunqiang Tang & Selena B. Thomas

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  1. Gang Luo
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  2. Chunqiang Tang
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Correspondence to Gang Luo.

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Luo, G., Tang, C. & Thomas, S.B. Intelligent Personal Health Record: Experience and Open Issues. J Med Syst 36, 2111–2128 (2012). https://doi.org/10.1007/s10916-011-9674-5

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