Abstract
Autistic students are a growing subgroup within post-secondary schooling; however, little is known about barriers to their success in that context. Research suggests autistic students face more challenges to completing post-secondary education than neurotypical students, but findings often rely on expert opinion and fail to incorporate first-hand perspectives. To address this gap, a qualitative inquiry into barriers to success for autistic post-secondary students was conducted. Thematic Analysis yielded 10 themes in three categories, while two separate cross-cutting themes emerged; themes interact with one another, intensifying concerns of autistic students. Findings can support post-secondary institutions to reflect on the extent to which these barriers are present for their autistic students and modify support services accordingly.

Similar content being viewed by others
Explore related subjects
Discover the latest articles and news from researchers in related subjects, suggested using machine learning.Notes
Identity-first language will be used due to the growing evidence that person-first language increases stigma (e.g., Gernsbacher, 2017).
References
Adreon, D., & Durocher, J. S. (2007). Evaluating the college transition needs of individuals with high-functioning autism spectrum disorders. Intervention in School and Clinic, 42(5), 271–279. https://doi.org/10.1177/10534512070420050201
Alcorn MacKay, S. (2010). Identifying trends and supports for students with autism spectrum disorder transitioning into postsecondary. Higher Education Quality Council of Ontario.
American Psychiatric Association. (2022). Diagnostic and statistical manual of mental disorders 5th ed., Text Revision. American Psychiatric Association.
Anderson, A. H., Carter, M., & Stephenson, J. (2018a). Perspectives of university students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48, 651–665. https://doi.org/10.1007/s10803-017-3257-3
Anderson, A. H., Stephenson, J., & Carter, M. (2017). A systematic literature review of the experiences and supports of students with autism spectrum disorder in post-secondary education. Research in Autism Spectrum Disorders, 39, 33–53. https://doi.org/10.1016/j.rasd.2017.04.002
Anderson, C., & Butt, C. (2017). Young adults on the autism spectrum at college: Successes and stumbling blocks. Journal of Autism and Developmental Disorders, 47, 3029–3039. https://doi.org/10.1080/1034912X.2017.1403573
Anderson, K. A., Sosnowy, C., Kuo, A. A., & Shattuck, P. T. (2018b). Transition of individuals with autism to adulthood: A review of qualitative studies. Pediatrics, 141(s4), S318–S327. https://doi.org/10.1542/peds.2016-4300I
Bebko, J. M., Schroeder, J. H., & Ames, M. E. (2011). A mentoring program for students with Asperger and ASDs. York University.
Bolourian, Y., Zeedyk, S. M., & Blacher, J. (2018). Autism and the University Experience: Narratives from Students with Neurodevelopmental Disorders. Journal of Autism and Developmental Disorders, 48, 3330–3343. https://doi.org/10.1007/s10803-018-3599-5
Bottema-Beutel, K., Park, H., & Kim, S. Y. (2018). Commentary on social skills training curricula for individuals with ASD: Social interaction, authenticity, and stigma. Journal of Autism and Developmental Disorders, 48, 953–964. https://doi.org/10.1007/s10803-017-3400-1
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
Cai, R. Y., & Richdale, A. L. (2016). Educational experiences and needs of higher education students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(1), 31–41. https://doi.org/10.1007/s10803-015-2535-1
Camarena, P. M., & Sarigiani, P. A. (2009). Postsecondary educational aspirations of high-functioning adolescents with autism spectrum disorders and their parents. Focus on Autism and Other Developmental Disabilities, 24(2), 115–128. https://doi.org/10.1177/1088357609332675
Corrigan, P. W., Markowitz, F. E., & Watson, A. C. (2004). Structural levels of mental illness stigma and discrimination. Schizophrenia Bulletin, 30(3), 481–491. https://doi.org/10.1093/oxfordjournals.schbul.a007096
Cox, B. E., Thompson, K., Anderson, A., Mintz, A., Locks, T., Morgan, L., Edelstein, J., & Wolz, A. (2017). College experiences for students with autism spectrum disorder: Personal identity, public disclosure, and institutional support. Journal of College Student Development, 58(1), 71–87. https://doi.org/10.1353/csd.2017.0004
Cullen, J. A. (2015). The needs of college students with autism spectrum disorders and Asperger’s syndrome. Journal of Postsecondary Education and Disability, 28(1), 89–101. Retrieved from http://files.eric.ed.gov/fulltext/EJ1066322.pdf
Dillon, M. R. (2007). Creating supports for college students with Asperger syndrome through collaboration. College Student Journal, 41(2), 499. Retrieved from https://psycnet.apa.org/record/2007–07102–027
Dymond, S. K., Meadan, H., & Pickens, J. L. (2017). Postsecondary education and students with autism spectrum disorders: Experiences of parents and university personnel. Journal of Developmental and Physical Disabilities, 29, 809–825. https://doi.org/10.1007/s10882-017-9558-9
Eaves, L. C., & Ho, H. H. (2008). Young adult outcome of autism spectrum disorders. Journal of Autism and Developmental Disorders, 38, 739–747. https://doi.org/10.1007/s10803-007-0441-x
Elias, R., Muskett, A. E., & White, S. W. (2019). Educator perspectives on the postsecondary transition difficulties of students with autism. Autism, 23(1), 260–264. https://doi.org/10.1177/1362361317726246
Elias, R., & White, S. W. (2018). Autism goes to college: Understanding the needs of a student population on the rise. Journal of Autism and Developmental Disorders, 48, 732–746. https://doi.org/10.1007/s10803-017-3075-7
Gargaro, B. A., Rinehart, N. J., Bradshaw, J. L., Tonge, B. J., & Sheppard, D. M. (2011). Autism and AD/HD: How far have we come in the comorbidity debate? Neuroscience and Biobehavioral Reviews, 35(5), 1081–1088. https://doi.org/10.1016/j.neubiorev.2010.11.002
Gelbar, N. W., Smith, I., & Reichow, B. (2014). Systematic review of articles describing experience and supports of individuals with autism enrolled in college and university programs. Journal of Autism and Developmental Disorders, 44(10), 2593–2601. https://doi.org/10.1007/s10803-014-2135-5
Gernsbacher, M. A. (2017). Editorial perspective: The use of person-first language in scholarly writing may accentuate stigma. Journal of Child Psychology and Psychiatry, 58(7), 859–861. https://doi.org/10.1111/jcpp.12706
Getzel, E. E. (2014). Fostering self-determination in higher education: Identifying evidence-based practices. Journal of Postsecondary Education and Disability, 27(4), 381–386. Retrieved from http://files.eric.ed.gov/fulltext/EJ1060006.pdf
Glennon, T. J. (2001). The stress of the university experience for students with Asperger syndrome. Work, 17(3), 183–190. Retrieved from http://www.iospress.nl/journal/work/
Hendricks, D. R., & Wehman, P. (2009). Transition from school to adulthood for youth with autism spectrum disorders: Review and recommendations. Focus on Autism and Other Developmental Disabilities, 24(2), 77–88. https://doi.org/10.1177/1088357608329827
Jackson, S. L., Hart, L., Brown, J. T., & Volkmar, F. R. (2018a). Brief report: Self-reported academic, social, and mental health experiences of post-secondary students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48, 643–650. https://doi.org/10.1007/s10803-017-3315-x
Jackson, S. L., Hart, L., & Volkmar, F. R. (2018b). Preface: Special issue—College experiences for students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48, 639–642. https://doi.org/10.1007/s10803-018-3463-7
Knott, F., & Taylor, A. (2014). Life at university with Asperger syndrome: A comparison of student and staff perspectives. International Journal of Inclusive Education, 18(4), 411–426. https://doi.org/10.1080/13603116.2013.781236
Leitner, Y. (2014). The co-occurrence of autism and attention deficit hyperactivity disorder in children—What do we know? Frontiers in Human Neuroscience, 8, 1–8. https://doi.org/10.3389/fnhum.2014.00268
Mays, N., & Pope, C. (2000). Assessing quality in qualitative research. British Medical Journal, 320(7226), 50. Retrieved from www.bmj.com
McCrimmon, A. W., Jitlina, K., Matchullis, R. L., & Altomare, A. A. (2012). School-based practices for Asperger syndrome: A Canadian perspective. Canadian Journal of School Psychology, 27(4), 319–336. https://doi.org/10.1177/0829573512454991
Morrison, J. Q., Sansoti, F. J., & Hadley, W. M. (2009). Parent perceptions of the anticipated needs and expectations for support for their college-bound students with Asperger’s syndrome. Journal of Postsecondary Education and Disability, 22(2), 78–87. Retrieved from http://files.eric.ed.gov/fulltext/EJ868133.pdf
Newman, L., Wagner, M., Knokey, A. M., Marder, C., Nagle, K., Shaver, D., & Wei, X. (2011). The Post-High School Outcomes of Young Adults with Disabilities up to 8 Years after High School: A Report from the National Longitudinal Transition Study-2 (NLTS2). NCSER 2011–3005. National Center for Special Education Research.
Roberts, K. D. (2010). Topic areas to consider when planning transition from high school to postsecondary education for students with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 25(3), 158–162. https://doi.org/10.1177/1088357610371476
Ross, S. E., Niebling, B. C., & Heckert, T. M. (1999). Sources of stress among college students. Social Psychology, 61(5), 841–846. Retrieved from https://psycnet.apa.org/record/1999-03006-021
Sarrett, J. C. (2018). Autism and accommodations in higher education: Insights from the autism community. Journal of Autism and Developmental Disorders, 48, 679–693. https://doi.org/10.1007/s10803-017-3353-4
Shattuck, P. T., Narendorf, S. C., Cooper, B., Sterzing, P. R., Wagner, M., & Taylor, J. L. (2012a). Postsecondary education and employment among youth with an autism spectrum disorder. Pediatrics, 129(6), 1042–1049. https://doi.org/10.1542/peds.2011-2864
Shattuck, P. T., Roux, A. M., Hudson, L. E., Taylor, J. L., Maenner, M. J., & Trani, J. F. (2012b). Services for adults with an autism spectrum disorder. The Canadian Journal of Psychiatry, 57(5), 284–291. https://doi.org/10.1177/070674371205700503
VanBergeijk, E., Klin, A., & Volkmar, F. (2008). Supporting more able students on the autism spectrum: College and beyond. Journal of Autism and Developmental Disorders, 38(7), 1359–1370. https://doi.org/10.1007/s10803-007-0524-8
Volkmar, F. R., Jackson, S. L., & Hart, L. (2017). Transition issues and challenges for youth with autism spectrum disorders. Pediatric Annals, 46(6), e219–e223. https://doi.org/10.3928/19382359-20170519-03
Ward, D., & Webster, A. (2018). Understanding the lived experiences of university students with autism spectrum disorder (ASD): A phenomenological study. International Journal of Disability, Development and Education, 65(4), 373–392. https://doi.org/10.1080/1034912X.2017.1403573
Wright, J. J. (1967). Reported personal stress sources and adjustment of entering freshmen. Journal of Counseling Psychology, 14(4), 371. https://doi.org/10.1037/h0024750
Funding
This work was funded by SSHRC.
Author information
Authors and Affiliations
Contributions
Taylor M. Schembri-Mutch and Michael L. Zwiers contributed to the study design. Material preparation and data collection was performed by Taylor M. Schembri-Mutch. Data analysis was performed by Taylor M. Schembri-Mutch and Michael L. Zwiers. The first draft of the manuscript, all previous versions of the manuscript, and the final draft were was written, edited, and approved by Taylor M. Schembri-Mutch and Adam W. McCrimmon.
Corresponding author
Ethics declarations
Conflict of interest
All authors certify that they have no affiliations with or involvement in any organization or entity with any financial interest or non-financial interest in the subject matter or materials discussed in this manuscript.
Additional information
Publisher's Note
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Appendix 1: Interview Questions
Appendix 1: Interview Questions
-
A)
Some people chose not to go to university/college. Why did you choose to attend a post-secondary institution?
-
a.
Have you thought about what you would like to be doing in 5–10 years?
-
b.
What do you hope to be doing? Do you have any specific goals?
-
c.
How does attending a post-secondary institution help you in reaching these goals?
-
a.
-
B)
Most people are unsure as to what university/college will be like, but some have ideas or expectations about their experiences. Have your expectations been met while attending university/college?
-
C)
What are some of the barriers to success both on and off campus that you have experienced while attending post-secondary school?
-
D)
Have there been any other barriers or do you have any other concerns that you have not told me about?
-
E)
Do you currently feel your university/college is equipped to support ASD students, like yourself, with their concerns and needs?
-
a.
Do you think the university as an organization understands you and your needs?
-
b.
What could the university do to better assist you?
-
c.
Would anything prevent you from using services that the university provides?
-
a.
-
F)
Have you accessed other community or family supports to assist you with your needs and/or concerns?
Rights and permissions
Springer Nature or its licensor (e.g. a society or other partner) holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law.
About this article
Cite this article
Schembri-Mutch, T.M., McCrimmon, A.W. & Zwiers, M.L. Understanding the Needs of Autistic Post-Secondary Students. J Autism Dev Disord 54, 2636–2650 (2024). https://doi.org/10.1007/s10803-023-06010-w
Accepted:
Published:
Issue Date:
DOI: https://doi.org/10.1007/s10803-023-06010-w