Abstract
Purpose
The purpose of this study was to obtain first-hand contributions from survivors, family members, and front-line health care professionals regarding the rehabilitation needs for head and neck cancer (HNC) patients, to inform development of a rehabilitation intervention.
Methods
The researchers conducted a series of focus groups with the three key stakeholder groups.
Results
A total of seven focus groups with 40 participants were conducted, two with survivors, one with family members, and four with health care professionals. All three participant groups reported that motivation based on a strong desire to return to meaningful roles and activities, and rehabilitation resources embedded within the cancer system were important facilitators of functional recovery. Lack of access to rehabilitation services was a concern expressed repeatedly.
Conclusion
While generalization is limited by the small sample size, findings include a comprehensive list of rehabilitation needs following treatment for HNC, factors that facilitate and hinder recovery of functional health, and specific suggestions for the development of rehabilitation consult intervention for survivors of HNC.
References
Holm LV, Hansen DG, Johansen C, Vedsted P, Larsen PV, Kragstrup J, Sondergaard J (2012) Participation in cancer rehabilitation and unmet needs: a population-based cohort study. Support Care Cancer 20:2913–2924
Zhen Y, Wang JG, Tao D, Wang HJ, Chen WL (2012) Efficacy survey of swallowing function and quality of life in response to therapeutic intervention following rehabilitation treatment in dysphagic tongue cancer patients. Eur J Oncol Nurs 16:54–58
Kotz T, Federman AD, Kao J, Milman L, Packer S, Lopez-Prieto C, Forsythe K, Genden EM (2012) Prophylactic swallowing exercises in patients with head and neck cancer undergoing chemoradiation: a randomized trial. Arch Otolaryngol Head Neck Surg 138:376–382
Retel VP, van der Molen L, Hilgers FJ, Rasch CR, L’Ortye AA, Steuten LM, van Harten WH (2011) A cost-effectiveness analysis of a preventive exercise program for patients with advanced head and neck cancer treated with concomitant chemo-radiotherapy. BMC Cancer 11:475
Carnaby-Mann G, Crary MA, Schmalfuss I, Amdur R (2012) “Pharyngocise”: randomized controlled trial of preventative exercises to maintain muscle structure and swallowing function during head-and-neck chemoradiotherapy. Int J Radiat Oncol Biol Phys 83:210–219
Eades M, Murphy J, Carney S, Amdouni S, Lemoignan J, Jelowicki M, Nadler M, Chasen M, Gagnon B (2013) Effect of an interdisciplinary rehabilitation program on quality of life in patients with head and neck cancer: review of clinical experience. Head Neck 35:343–349
Lehman C (1979) Teaching and learning the craft of handwriting. Visible Lang 13:5–15
McEwen SE, Davis AM, Jones JM, Martino R, Poon I, Rodriguez AM, Ringash J (2015) Development and preliminary evaluation of a rehabilitation consult for survivors of head and neck cancer: an intervention mapping protocol. Implement Sci. doi:10.1186/s13012-014-0191-z
Hsieh HF, Shannon SE (2005) Three approaches to qualitative content analysis. Qual Health Res 15:1277–1288
Nund RL, Ward EC, Scarinci NA, Cartmill B, Kuipers P, Porceddu SV (2014) Survivors’ experiences of dysphagia-related services following head and neck cancer: implications for clinical practice. Int J Lang Commun Disord 49:354–363
Lubberding S, van Uden-Kraan CF, Te Velde EA, Cuijpers P, Leemans CR, Verdonck-de Leeuw IM (2015) Improving access to supportive cancer care through an eHealth application: a qualitative needs assessment among cancer survivors. J Clin Nurs 24:1367–1379
Acknowledgments
The authors would like to thank Tammy Craig for her assistance with note taking and time keeping during focus groups.
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The authors declare that they have no conflict of interest. The authors have full control over the primary data and agree to allow the journal to review the data if requested.
Funding
The funding was provided by the Grant Miller Cancer Grant, University of Toronto Faculty Fund.
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McEwen, S., Rodriguez, A.M., Martino, R. et al. “I didn’t actually know there was such a thing as rehab”: survivor, family, and clinician perceptions of rehabilitation following treatment for head and neck cancer. Support Care Cancer 24, 1449–1453 (2016). https://doi.org/10.1007/s00520-015-3021-1
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DOI: https://doi.org/10.1007/s00520-015-3021-1