Skip to main content

Advertisement

SpringerLink
Log in

Engaging patients and families in pediatric radiology

  • Minisymposium: Patient experience in pediatric radiology
  • Published:
Pediatric Radiology Aims and scope Submit manuscript

Abstract

While patient and family-centered care (PFCC) is currently a hot topic in medicine, it has long been a specific focus of pediatrics. The concept of PFCC includes a change in culture where physicians and patients move away from paternalism and instead view patients and families as partners in care. Although there are many ways in which adult-focused radiologists can learn from pediatric radiologists as leaders in PFCC, there remain many opportunities for improvement for all radiologists.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Log in via an institution

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

Fig. 1
Fig. 2

Similar content being viewed by others

References

  1. Institute for patient and family-centered care (IPFCC). https://www.ipfcc.org/about/pfcc.html. Accessed 15 April 2020

  2. Emanuel EJ, Emanuel LL (1992) Four models of the physician-patient relationship. JAMA 267:2221–2226

    Article  CAS  Google Scholar 

  3. Cerezo PG, Juvé-Udina ME, Delgado-Hito P (2016) Concepts and measures of patient empowerment: a comprehensive review. Rev Esc Enferm USP 50:667–674

    Article  Google Scholar 

  4. Balogh EP, Miller BT, Ball JR (eds) (2015) Improving diagnosis in health care. National Academies Press, Washington, DC

    Google Scholar 

  5. Yudkin S (1959) Children and hospitals. Med World 90:57–60

    CAS  PubMed  Google Scholar 

  6. MacCarthy D, Lindsay M, Morris I (1962) Children in hospital with mothers. Lancet 1:603–608

    Article  CAS  Google Scholar 

  7. Hales-Tooke A (1968) Improving hospital care for children. Children 15:116–118

    CAS  PubMed  Google Scholar 

  8. National Institute for Children's Health Quality (NICHQ) (2020) Our body of work. https://www.nichq.org/impact/our-work. Accessed 12 March 2020

  9. Conway J, Johnson B, Edgman-Levitan S et al (2020) Partnering with patients and families to design a patient- and family-centered health care system: a roadmap for the future. Institute for Healthcare Improvement. http://www.ihi.org/resources/Pages/Publications/PartneringwithPatientsandFamilies.aspx. Accessed 12 March 2020

  10. American Academy of Pediatrics (AAP) (2008) Formation of parent advisory group highlights AAP commitment to family-centered care. https://www.aappublications.org/content/29/6/21. Accessed 12 March 2020

  11. American Academy of Pediatrics (AAP) (2012) Patient- and family-centered care and the pediatrician’s role. https://pediatrics.aappublications.org/content/129/2/394. Accessed 12 March 2020

  12. Health Leads (2018) Patient-centered care: elements, benefits and examples. https://healthleadsusa.org/resources/patient-centered-care-elements-benefits-and-examples/. Accessed 15 March 2020

  13. Bridges Together (2018) Celebrating our culture: a new how-to-guide. https://www.bridgestogether.org/celebrating-our-culture-a-new-how-to-guide/. Accessed 14 April 2020

  14. Pediatric Academic Societies (PAS) (2020) About the PAS meeting. 2020.pas-meeting.org/about. Accessed 15 April 2020

  15. American Academy for Pediatrics (AAP) (2020) AAP sections. https://services.aap.org/en/community/aap-sections. Accessed 15 April 2020

  16. Image Gently Alliance and Society for Pediatric Radiology (2014) Campaign overview. https://www.imagegently.org/About-Us/Campaign-Overview. Accessed 14 April 2020

  17. Children’s Healthcare of Atlanta (2020) Events. https://www.choa.org/search?q=&zip=&tab=events&events_services_and_conditions=&event_categories=Foundation&event_types=&event_month_year=. Accessed 16 March 2020

  18. Emory Healthcare (2020) Classes & events. https://events.emoryhealthcare.org/weblink/classes/calendar/undefined/2020/4. Accessed 16 March 2020

  19. Eakins C, Ellis WD, Pruthi S et al (2012) Second opinion interpretations by specialty radiologists at a pediatric hospital: rate of disagreement and clinical implications. AJR Am J Roentgenol 199:916–920

    Article  Google Scholar 

  20. Brown BP (2018) Adding value within medicine's new paradigm: the pediatric radiologist. Pediatr Radiol 48:612–614

    Article  Google Scholar 

  21. Image Gently (2020) Image Gently website. www.imagegently.org. Accessed 14 April 2020

  22. Khan JJ, Donnelly LF, Koch BL, Curtwright LA (2007) A program to decrease the need for pediatric sedation for CT and MRI. Appl Radiol 36:30

    Google Scholar 

  23. Pfohl SJ (1977) The “discovery” of child abuse. Soc Probl 24:310–323

    Article  Google Scholar 

  24. Wootton-Gorges SL, Soares BP, Alazraki AL et al (2017) ACR appropriateness criteria suspected physical abuse — child. J Am Coll Radiol 14:S338–S349

    Article  Google Scholar 

  25. Adler B (2017) Recognizing child abuse in radiology (1st edn), by Alan E. Oestreich and Marguerite M. Caré. Pediatr Radiol 48:283

  26. Radiological Society of North America (2019) Radiologists can help identify victims of domestic violence. https://www.rsna.org/en/news/2019/February/Identifying-Domestic-Violence-Victims. Accessed 16 March 2020

  27. Mulvihill DJ, Jhawar S, Kostis JB, Goyal S (2017) Diagnostic medical imaging in pediatric patients and subsequent cancer risk. Acad Radiol 24:1456–1462

    Article  Google Scholar 

  28. The ALARA (as low as reasonably achievable) concept in pediatric CT intelligent dose reduction. Multidisciplinary conference organized by the Society of [sic] Pediatric Radiology. August 18–19, 2001. Pediatr Radiol 32:217–313

  29. Image Gently (2020) The alliance. www.imagegently.org/About-Us/The-Alliance. Accessed 14 April 2020

  30. Weinman JP, Mirsky DM, Jensen AM, Stence NV (2019) Dual energy head CT to maintain image quality while reducing dose in pediatric patients. Clin Imaging 55:83–88

    Article  Google Scholar 

  31. Smiljkovic M, Renaud C, Tapiero B et al (2019) Head ultrasound, CT or MRI? The choice of neuroimaging in the assessment of infants with congenital cytomegalovirus infection. BMC Pediatr 19:180

    Article  Google Scholar 

  32. Kearl YL, Claudius I, Behar S et al (2016) Accuracy of magnetic resonance imaging and ultrasound for appendicitis in diagnostic and nondiagnostic studies. Acad Emerg Med 23:179–185

    Article  Google Scholar 

  33. American College of Radiology (2020) Appropriateness criteria. https://acsearch.acr.org/list?_ga=2.116208902.1634914546.1584557357-1171294034.1574271815. Accessed 16 March 2020

  34. Zielinska M, Bartkowska-Sniatkowska A, Becke K et al (2019) Safe pediatric procedural sedation and analgesia by anesthesiologists for elective procedures: a clinical practice statement from the European Society for Paediatric Anaesthesiology. Paediatr Anaesth 29:583–590

    Article  Google Scholar 

  35. Kamat PP, Sulton C, Kudchadkar SR et al (2019) Procedural sedation outside the operating room and potential neurotoxicity: analysis of an at-risk pediatric population. Acad Pediatr 19:978–984

    Article  Google Scholar 

  36. Malviya S, Voepel-Lewis T, Prochaska G, Tait AR (2000) Prolonged recovery and delayed side effects of sedation for diagnostic imaging studies in children. Pediatrics 105:E42

    Article  CAS  Google Scholar 

  37. Dong SZ, Zhu M, Bulas D (2019) Techniques for minimizing sedation in pediatric MRI. J Magn Reson Imaging 50:1047–1054

    Article  Google Scholar 

  38. Jung D, Wood J, Gloer K et al (2016) Cardiac magnetic resonance imaging can be performed without the use of anesthesia in patients 7-10 years of age with child life support and MRI video goggles. J Cardiovasc Magn Reson 18

  39. Antonov NK, Ruzal-Shapiro CB, Morel KD et al (2017) Feed and wrap MRI technique in infants. Clin Pediatr 56:1095–1103

    Article  Google Scholar 

  40. Meléndez JC, McCrank E (1993) Anxiety-related reactions associated with magnetic resonance imaging examinations. JAMA 270:745–747

    Article  Google Scholar 

  41. Loh PS, Ariffin MA, Rai V et al (2016) Comparing the efficacy and safety between propofol and dexmedetomidine for sedation in claustrophobic adults undergoing magnetic resonance imaging (PADAM trial). J Clin Anesth 34:216–222

    Article  CAS  Google Scholar 

  42. Association of Child Life Professionals (ACLP) (2020) The child life profession. https://www.childlife.org/the-child-life-profession. Accessed 16 March 2020

  43. Sanchez Cristal N, Staab J, Chatham R et al (2018) Child life reduces distress and pain and improves family satisfaction in the pediatric emergency department. Clin Pediatr 57:1567–1575

    Article  Google Scholar 

  44. Tyson ME, Bohl DD, Blickman JG (2014) A randomized controlled trial: child life services in pediatric imaging. Pediatr Radiol 44:1426–1432

    Article  Google Scholar 

  45. Association of Child Life Professionals (2020) History of the ACLP. https://www.childlife.org/about-aclp/history-of-aclp. Accessed 14 April 2020

  46. American Cancer Society (2017) Patient navigators help cancer patients manage care. https://www.cancer.org/latest-news/navigators-help-cancer-patients-manage-their-care.html. Accessed 18 March 2020

  47. Silvis J (2013) Children's hospital design grows up. Healthcare Design. https://www.healthcaredesignmagazine.com/architecture/childrens-hospital-design-grows/. Accessed 18 March 2020

  48. EYP (2020) Scottish Rite campus. https://www.eypae.com/client/childrens-healthcare-atlanta/scottish-rite-campus. Accessed 14 April 2020

  49. Arndt RZ (2017) Redesigning hospitals with patient experience in mind. Modern Healthcare. https://www.modernhealthcare.com/article/20171111/NEWS/171109884/redesigning-hospitals-with-patient-experience-in-mind. Accessed 19 March 2020

  50. Theodore D (2016) Better design, better hospitals. CMAJ 188:902–903

    Article  Google Scholar 

  51. Joyner BL Jr (2018) Does family presence in the trauma bay help or hinder care? AMA J Ethics 20:507–512

    Article  Google Scholar 

  52. RadiologyInfo.org (2020) Web site. www.radiologyinfo.org. Accessed 14 April 2020

  53. Bange M, Huh E, Novin SA et al (2019) Readability of patient education materials from RadiologyInfo.org: has there been progress over the past 5 years? AJR Am J Roentgenol 213:875–879

  54. U.S. Food & Drug Administration (2002) Mammography quality standards act regulations. https://www.fda.gov/radiation-emitting-products/regulations-mqsa/mammography-quality-standards-act-regulations. Accessed 19 March 2020

  55. Nguyen DL, Ambinder EB, Jones MK et al (2019) Improving patient comprehension of screening mammography recall lay letters. J Am Coll Radiol 16:1669–1676

    Article  Google Scholar 

  56. Marcus EN, Sanders LM, Pereyra M et al (2011) Mammography result notification letters: are they easy to read and understand? J Women’s Health 20:545–551

    Article  Google Scholar 

  57. State of Washington Medical Quality Assurance Commission (2016) Guideline. https://wmc.wa.gov/sites/default/files/public/documents/GUI2016-02CommunicatingTestResultsToPatients.pdf. Accessed 19 March 2020

  58. Pennsylvania General Assembly (2018) Patient Test Result Information Act. https://www.legis.state.pa.us/cfdocs/legis/li/uconsCheck.cfm?yr=2018&sessInd=0&act=112. Accessed 19 March 2020

  59. Pennsylvania Medical Society (2019) Bill seeking to amend patient test results law is introduced in Pa. House. https://www.pamedsoc.org/detail/article/patient-test-result-information-act. Accessed 19 March 2020

  60. Callen J, Georgiou A, Li J, Westbrook JI (2015) The impact for patient outcomes of failure to follow up on test results. How can we do better? EJIFCC 26:38–46

    PubMed  PubMed Central  Google Scholar 

  61. Oh SC, Cook TS, Kahn CE Jr (2016) PORTER: a prototype system for patient-oriented radiology reporting. J Digit Imaging 29:450–454

    Article  Google Scholar 

  62. Patel BN, Lopez JM, Jiang BG et al (2017) Image-rich radiology reports: a value-based model to improve clinical workflow. J Am Coll Radiol 14:57–64

    Article  Google Scholar 

  63. Gelfand DW, Schwarz DL, Ott DJ (1996) The illustrated radiology report. AJR Am J Roentgenol 167:1099–1100

    Article  CAS  Google Scholar 

  64. Mitchell JW (2018) Study finds patients confused by radiology reports. HealthCareBusiness News. https://www.dotmed.com/news/story/43035. Accessed 19 March 2020

  65. Cullen L, Wagner M, Matthews G, Farrington M (2017) Evidence into practice: integration within an organizational infrastructure. J Perianesth Nurs 32:247–256

    Article  Google Scholar 

  66. Lee B, Otero HJ, Whitehead MT (2017) The fate of radiology report recommendations at a pediatric medical center. Pediatr Radiol 47:1724–1729

    Article  Google Scholar 

  67. Singh H, Wilson L, Reis B et al (2010) Ten strategies to improve management of abnormal test result alerts in the electronic health record. J Patient Saf 6:121–123

    Article  Google Scholar 

  68. Cook TS, Lalevic D, Sloan C et al (2017) Implementation of an automated radiology recommendation-tracking engine for abdominal imaging findings of possible cancer. J Am Coll Radiol 14:629–636

    Article  Google Scholar 

  69. Wandtke B, Gallagher S (2017) Reducing delay in diagnosis: multistage recommendation tracking. AJR Am J Roentgenol 209:970–975

    Article  Google Scholar 

Download references

Acknowledgments

This content was presented during the 2019 Radiological Society of North America (RSNA) annual meeting.

Author information

Authors and Affiliations

  1. Department of Radiology and Imaging Sciences, Emory University School of Medicine, Atlanta, GA, USA

    Nadja Kadom

  2. Department of Radiology, Children’s Healthcare of Atlanta, Egleston Campus, 1405 Clifton Road NE, Atlanta, GA, 30322, USA

    Nadja Kadom

Authors
  1. Nadja Kadom
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Nadja Kadom.

Ethics declarations

Conflicts of interest

None

Additional information

Publisher’s note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Kadom, N. Engaging patients and families in pediatric radiology. Pediatr Radiol 50, 1492–1498 (2020). https://doi.org/10.1007/s00247-020-04742-w

Download citation

  • Received:

  • Revised:

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s00247-020-04742-w

Keywords

Search

Navigation