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Needs for care of patients with schizophrenia and the consequences for their informal caregivers

Results from the EPSILON multi centre study on schizophrenia

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Social Psychiatry and Psychiatric Epidemiology Aims and scope Submit manuscript

Abstract.

Background:

Schizophrenia as a chronic mental disorder not only has far-reaching consequences for patients, but also for their family members or other informal caregivers. In this study, we investigated whether needs for care of patients with schizophrenia are related to (negative) consequences for their informal caregivers.

Method:

A total of 287 patients with schizophrenia and their informal caregivers participated in the EPSILON study of schizophrenia in five European countries. Caregiver consequences were measured by the Involvement Evaluation Questionnaire (IEQ) and needs for care by the Camberwell Assessment of Need (CAN).

Results:

Total number of needs for care as well as specific areas of needs for care of patients appeared to be only weak predictors of caregiver consequences in terms of explained variance.

Conclusion:

Subjective needs for care as measured by the CAN are not a good indicator for consequences experienced by the informal care system of patients with schizophrenia.

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Authors and Affiliations

  1. Dept. of Psychiatry, Academic Medical Centre Rm. A3.254, 22700, 1100, DE Amsterdam, The Netherlands

    Karin Meijer,  Aart Schene & Maarten Koeter

  2. Psychiatric Centre North, Næstved, Denmark

    Helle Charlotte Knudsen

  3. Dept. of Psychiatry, University of Leipzig, Leipzig, Germany

    Thomas Becker

  4. Dept. of Health Services Research, Institute of Psychiatry, King’s College London, London, UK

    Graham Thornicroft

  5. Clinical and Social Psychiatry Research Unit, University Hospital ‘Marqués de Valdecilla’, Santander, Spain

    José Luis Vázquez-Barquero

  6. Dept. of Medicine and Public Health, Section of Psychiatry, University of Verona, Verona, Italy

    Michele Tansella

Authors
  1. Karin Meijer
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  2. Aart Schene
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  3. Maarten Koeter
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  4. Helle Charlotte Knudsen
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  5. Thomas Becker
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  6. Graham Thornicroft
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  7. José Luis Vázquez-Barquero
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  8. Michele Tansella
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Meijer, K., Schene, A., Koeter, M. et al. Needs for care of patients with schizophrenia and the consequences for their informal caregivers. Soc Psychiatry Psychiatr Epidemiol 39, 251–258 (2004). https://doi.org/10.1007/s00127-004-0737-5

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  • DOI: https://doi.org/10.1007/s00127-004-0737-5

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