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Profiles of Social and Coping Resources in Families of Children with Autism Spectrum Disorder: Relations to Parent and Child Outcomes

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Abstract

This study described empirically derived profiles of parents’ personal and social coping resources in a sample of 207 families of children diagnosed with autism spectrum disorder. Latent Profile Analysis identified four family profiles based on socieoeconomic risk, coping strategy utilization, family functioning, available social supports, and perceptions of family-centered support. During the time of children’s transition to school, parents in the most disadvantaged group experienced the highest levels of parenting stress and depression, and their children had significantly lower adaptive behaviour scores and more parent-reported behavior problems than children in the other three groups. Results highlight the need for systematic surveillance of family risk factors so that supports can be provided to enhance both parental well-being and children’s developmental health.

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  • 15 February 2018

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Acknowledgments

We are grateful to the parents and children who participate in the Pathways in ASD study, and to the current and past members of the study team. We are also grateful to our funders, the Canadian Institutes for Health Research, Kids Brain Health, Autism Speaks, the Sinneave Family Foundation, and Alberta Innovates Health Solutions.

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Authors and Affiliations

  1. School of Education, Tel Aviv University, P.O. Box 39040, 6997801, Tel Aviv, Israel

    Anat Zaidman-Zait

  2. University of British Columbia, 215 Main Mall, Vancouver, BC, V6T 1Z4, Canada

    Pat Mirenda

  3. Centre for Addiction and Mental Health, University of Toronto, Toronto, ON, Canada

    Peter Szatmari

  4. McMaster University, Hamilton, ON, Canada

    Eric Duku, Teresa Bennett & Stelios Georgiades

  5. Dalhousie University/IWK Health Centre, Halifax, NS, Canada

    Isabel M. Smith

  6. University of Ottawa, Ottawa, ON, Canada

    Tracy Vaillancourt

  7. University of Alberta, Edmonton, AB, Canada

    Joanne Volden & Lonnie Zwaigenbaum

  8. Simon Fraser University, Burnaby, BC, Canada

    Charlotte Waddell

  9. McGill University/Montreal Children’s Hospital, Montreal, PQ, Canada

    Mayada Elsabaggh

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  1. Anat Zaidman-Zait
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The Pathways in ASD Study Team

Contributions

AZ-Z conceived of the study and its design, performed the statistical analysis, participated in the design and interpretation of the data, and drafted the manuscript; PM provided oversight for data collection, participated in the design and interpretation of the data, and drafted the manuscript; PS coordinated the study, participated in interpretation of the data, and critically reviewed and revised the manuscript; and ED, IS, TV, JV, CW, TB, LZ, ME, and SG provided oversight for data collection, participated in interpretation of the data, and critically reviewed and revised the manuscript. All authors read and approved the final manuscript.

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Correspondence to Anat Zaidman-Zait or Pat Mirenda.

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The authors declare that all procedures involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed Consent

Informed consent was obtained from all individual participants included in the study.

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Zaidman-Zait, A., Mirenda, P., Szatmari, P. et al. Profiles of Social and Coping Resources in Families of Children with Autism Spectrum Disorder: Relations to Parent and Child Outcomes. J Autism Dev Disord 48, 2064–2076 (2018). https://doi.org/10.1007/s10803-018-3467-3

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