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Quality of Life of Adults with Pervasive Developmental Disorders and Intellectual Disabilities

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Abstract

The purpose of this study was to observe quality of life (QoL) and global evolution of persons with Pervasive Developmental Disorders (PDD) in three different groups. Individualized programs for PDD were compared to traditional programs for intellectual disabilities. Behavioural disorders were repeatedly evaluated using the Aberrant Behaviour Checklist (ABC) and QoL once a year. Little research has investigated this domain due to methodological problems with a non-verbal population. Two preliminary studies of individualized programs showed a significant reduction in behaviour disorders over the course of the study. The recent inclusion of a control group indicates that a traditional program reduces lethargy/social withdrawal (ABC factor 2). A good QoL was measured for the three groups.

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References

  • Aman, M. G., Burrow, W. H., & Wolford, P. L. (1995). The Aberrant behaviour checklist-community: Factor validity and effect of subject variables for adults in group homes. American Journal on Mental Retardation, 100(3), 283–292.

    PubMed  Google Scholar 

  • Aman, M. G., Richmond, G., Stewart, A. W., Belle, J. C., & Kissel, R. C. (1987). The Aberrant behaviour checklist: Factor structure and the effect of subject variables in American and New Zealand Facilities. American Journal of Mental Deficiency, 91, 578–579.

    Google Scholar 

  • Aman, M. G., Singh, N. N., Stewart, A. W, & Field, C. J. (1985a). The Aberrant behaviour checklist: A behaviour rating scale for assessment of treatment effects. American Journal of Mental Deficiency, 89(5), 485–491.

    PubMed  Google Scholar 

  • Aman, M. G., Singh, N. N., Stewart, A. W., & Field, C. J. (1985b). Psychometric Characteristics of the aberrant behaviour checklist. American Journal of Mental Deficiency, 89(5), 492–502.

    PubMed  Google Scholar 

  • Aman, M. G., Turbot, S. H., & Singh, N. N. (1987). Reliability of the Aberrant behaviour checklist and the effect of variations in instructions. American Journal of Mental Deficiency, 92, 237–240.

    PubMed  Google Scholar 

  • Billstedt, E., Gillberg, C., & Gillberg, C. (2005). Autism after adolescence: Population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders, 35(3), 351–360.

    Article  PubMed  Google Scholar 

  • Campo, S. F., Sharpton, W. R., Thompson, B., & Sexton, D. (1996). Measurement characteristics of the Quality of Life Index when used with adults who have severe mental retardation. American Journal on Mental Retardation, 100(5), 546–550.

    PubMed  Google Scholar 

  • Felce, D., Lowe, K., & Jones, E. (2002a). Staff Activity in supported housing services. Journal of Applied Research in Intellectual Disabilities, 15, 388–403.

    Article  Google Scholar 

  • Felce, D., Lowe, K., & Jones, E. (2002b). Association between the provision characteristics and operation of supported housing services and resident outcomes. Journal of Applied Research in Intellectual Disabilities, 15, 404–418.

    Article  Google Scholar 

  • Galli Carminati, G., Gerber, F., Baud, M.-A., & Baud, O. (2007a). Evaluating the effects of a structured program for adults with autism spectrum disorders and intellectual disabilities. Research in Autism Spectrum Disorders, 1, 256–265. doi:10.1016/j.rasd.2006.11.001.

    Article  Google Scholar 

  • Galli Carminati, G., Gerber, F., Constantin, N., & Baud, O. (2007b). Evolution of adults with autism and profound intellectual disabilities living within a structured residential program: a 21-month longitudinal study. Swiss Archives of Neurology and Psychiatry, 158(5), 233–241.

    Google Scholar 

  • Marshburn, E. C., & Aman, M. G. (1992). Factor validity and norms for the aberrant behavior checklist in a community sample of children with mental retardation. Journal of Autism and Developmental Disorders, 22(3), 357–373.

    Article  PubMed  Google Scholar 

  • Mesibov, G. B., Schopler, E., Schaffer, B., & Landrus, R. (1997). Profil psycho-éducatif pour adolescents et adultes (AAPEP) [Adolescents and adults psychoeducational profile]. Editions De Boeck Université.

  • Mesibov, G. B., Schopler, E., Schaffer, B., & Michal, N. (1989). Use of the childhood autism rating scale with autistic adolescents and adults. Journal of the American Academy of Child and Adolescent Psychiatry, 28(4), 538–541.

    Article  PubMed  Google Scholar 

  • Persson, B. (2000). Brief report: A longitudinal study of quality of life and independence among adult men with autism. Journal of Autism and Developmental Disorders, 30(1), 61–66.

    Article  PubMed  Google Scholar 

  • Rojahn, J., & Helsel, W. J. (1991). The Aberrant Behavior Checklist with children and adolescents with dual diagnosis. Journal of Autism and Developmental Disorders, 21(1), 17–28.

    Article  PubMed  Google Scholar 

  • Rojahn, J., Aman, M. G., Matson, J. L., & Mayville, E. (2003). The Aberrant Behavior Checklist and the Behavior Problems Inventory: convergent and divergent validity. Research in Developmental Disabilities, 24(5), 391–404.

    Article  PubMed  Google Scholar 

  • Schalock, R. L. (2005). Special issue on quality of life: introduction and overview. Journal of Intellectual Disability Research, 49(10), 695–698.

    Article  PubMed  Google Scholar 

  • Schalock, R. L., & Keith, K. (1993). Quality of life Questionnaire. Worthington, OH: IDS.

    Google Scholar 

  • Schopler, E., & Mesibov, G. B. (1985). Autism in Adolescents and Adults. New York/London Plenum Press.

  • Schopler, E., Mesibov, G. B., Reichler, R. J., & Brenner, B. R. (1988). The Childhood Autism Rating Scale (CARS). Los Angeles, USA: Western Psychological Services.

    Google Scholar 

  • Schwartz, C., & Rabinovitz, S. (2003). Life satisfaction of people with intellectual disability living in community residences: perceptions of the residents, their parents and staff members. Journal of Intellectual Disabilities Research, 47(2), 75–84.

    Article  Google Scholar 

  • Sherer, M. R., & Schreibman, L. (2005). Individual behavioral profiles and predictors of treatment effectiveness for children with autism. Journal of Consulting and Clinical Psychology, 73(3), 525–538.

    Article  PubMed  Google Scholar 

  • Tremblay, G., & Martin-Laval, H. (1997). Inventaire de qualité de vie en milieu résidentiel, I.Q.V.M.R. Montréal, Québec: Les Editions de la collectivité.

    Google Scholar 

  • Van Bourgondien, M. E., & Elgar, S. (1990). The relationship between existing residential services and the needs of autistic adults. Journal of Autism and Developmental Disorders, 20(3), 299–308.

    Article  PubMed  Google Scholar 

  • Van Bourgondien, M. E., & Schopler, E. (1990). Critical issues in the residential care of people with autism. Journal of Autism and Developmental Disorders, 20(3), 391–399.

    Article  PubMed  Google Scholar 

  • Van Bourgondien, M. E., Reichle, N. C., & Schopler, E. (2003). Effects of a model treatment approach on adults with autism. Journal of Autism and Developmental Disorders, 33(2), 131–140.

    Article  PubMed  Google Scholar 

  • World Health Organization. (1994). International statistical classification of diseases and related health problems-10th revision (ICD-10). Paris: WHO/Masson.

    Google Scholar 

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Acknowledgments

The authors would like to thank the research grant “Research & Development” of the University Hospitals of Geneva, which financially supported this study. Authors would also like to thank the Fondation FRH for its financial support of the longitudinal study since 2002 with the “Muriel Sarfati Grant”. Finally, we would like to thank Severine Bessero for her help in editing the article.

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Correspondence to F. Gerber.

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Gerber, F., Baud, M.A., Giroud, M. et al. Quality of Life of Adults with Pervasive Developmental Disorders and Intellectual Disabilities. J Autism Dev Disord 38, 1654–1665 (2008). https://doi.org/10.1007/s10803-008-0547-9

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  • DOI: https://doi.org/10.1007/s10803-008-0547-9

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