Abstract
Today most children born with intellectual disability will enter adulthood. Some with the rarest syndromes or multiple associated disease will die in infancy or childhood, and here it is important that they will receive the same end-of-life service as the general population. Today, changing demographics that has resulted in a growing number of people with intellectual disability living into old age and suffering from the same diseases as the general aging population is creating a need for more organized palliative care for this population and to educate professionals to handle end-of-life issues with the persons with intellectual disability themselves dying, their families, and also care staff, who are not always prepared for these events.
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Merrick, J., Morad, M. (2011). Palliative Care and End-of-Life Issues. In: Patel, D., Greydanus, D., Omar, H., Merrick, J. (eds) Neurodevelopmental Disabilities. Springer, Dordrecht. https://doi.org/10.1007/978-94-007-0627-9_27
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DOI: https://doi.org/10.1007/978-94-007-0627-9_27
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